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A Moment to Pause

ISSUE #4
April 21, 2020


 
Through this note, by offering a reflection on the remarkable spirit of the nearly 6,000 DPH and UCSF staff, scientists and clinicians contributing at ZSFG, we intend to highlight our collective efforts to becoming the best place to work.

Roots

He was back in the COVID ICU.  The gentleman we transferred to the ICU three weeks ago got better. He went from the ICU to the sixth floor.  After a turn for the worse, he is back on a ventilator.  Standing outside his room, I see a large photograph of him taped to his door.  He is in casual clothes, smiling. His head tilted towards his son perched on his right shoulder. His son’s smile is bigger. A joyous moment in both lives.  The nurse told me all the families are sending photos of their loved ones.  Looking around, I see them now.  Photos are on every door.  Anyone entering had to look right at them - a person in dress clothes at a celebration; another laughing over a meal with family; one sitting on a stoop with friends in the Mission.  Anyone looking at the photos would also see they are mostly LatinX men.  The nurse confirmed what my hospitalist colleagues observe - about 80% of the patients with COVID in the ICU and on the sixth floor have been LatinX.  The man I transferred to the ICU is LatinX.  To begin to appreciate the enormous significance of this 80% prevalence, realize before the pandemic, LatinX patients made up 25-30% of the General’s hospitalized patients.  From last census, they represent about 15% of San Francisco’s population.  That means we are hospitalizing three times as many LatinX people with COVID than our typical admission pattern and five times more than you would predict based on their population. What is going on?  We need to understand more of this story. Financial strain likely is playing a role. Many in the Mission are compelled to work in essential jobs at grocery stores, in cleaning services and preparing take-out food carried to our doors. Their work supports us to shelter safely, and relatively comfortably.    The community urgently needs and deserves prevention interventions.

 

The roots of effective initiatives lie in the legacy of San Francisco’s response to the HIV epidemic.  Through the 1980s, as gay men died, healthcare professionals in the clinics, at the General, in the SFDPH in partnership with UCSF, recognized the need for new approaches to care.  Out of this realization grew the San Francisco Model of AIDS Care based on the intent to meet the people you serve on their terms, informed by their stated wishes and needs.  It involved listening and often letting the community lead. As misinformation, fear and denial persisted, Project Inform organized in 1984 to advocate by and for people infected with HIV. As communities suffered from hunger and isolation, volunteers organized Project Open Hand to bring the healing of lovingly cooked food.  Once HIV testing was available, clinicians worked with community groups to expand screening, refining outreach messages to resonate with audiences distrustful of institutional approaches.  City hall mobilized resources, financed new programs.  Throughout, scientists carefully studied what worked to focus resources on activities of greatest impact.  All this, to save lives through prevention, while work advanced in parallel for effective therapeutics and vaccines.  This legacy in the care of people with HIV inspires many of us.  Initial examples of community outreach, expanded screening of vulnerable populations, advocacy for equity and rigorous scientific analysis are taking place now.  Far more is required.  Yet, collectively these are hallmarks of our work with HIV. With history as a guide, we will rise to the challenge of COVID-19, together, with the community.

 

“Know from whence you came.  If you know whence you came, there are absolutely no limitations to where you can go.”

James Baldwin

 

With great respect for your caring work. With gratitude for your caring self.

Jeff Critchfield

RESOURCES


Community Partnerships

 

An initiative involving UCSF and UC Berkeley in collaboration with Mission and LatinX Community Partners, Latino Task Force COVID19, the San Francisco Department of Public Health with Grant Colfax, Office of Hillary Ronen and the Chan-Zuckerberg Hub will test a census tract of 6,000 people living in the Mission, housed or unhoused older than 4 years old.  They will provide counselling and treatment appropriate for the test outcomes.  This presentation provides greater details.  Notably a key community liaison is Diane Jones, one of the first nurse managers in the HIV wards created in the 80’s at the General, she continues inspiring dedication to putting people and communities first.

The Mission Local newspaper is covering the story here with additional details.

Advocacy

On April 9th, ZSFG based physicians Marlene Martin, Alicia Fernandez and Kirsten Bibbins-Domingo call out for greater awareness and action in support of the LatinX community.
SF Examiner article.
 
Here is Alicia Frenandez in USA Today bringing her voice to the national discussion on the impact of the pandemic on people in lower socio-economic including the LatinX community.





Masks for the Community

In alignment with the new health order, ZSFG is supporting our patients and LatinX community by distributing cloth masks.  Please see the image to the left for information on how to donate to this effort.

Research

This article in the April 19th SF Chronicle details research efforts with testing in the Mission and the entire community of Bolinas.  Scientists are now analyzing and reporting data ranging from the clinical manifestations of the first 100 COVID-19 patients at the General; drug trials with Remdesivir; use of stem cells to treat lung injury.  Far more to follow in the coming weeks and months.

HIV LEGACY

In Life Before the Lifeboat, Paul Volberding leads us through a 28 minute reflection of life with HIV before highly active anti-retroviral therapy (HAART). The video has cameo appearances by Donald Abrams and Diane Jones describing patient centered care in the 80s on ward 5A and in the clinics.  To come full circle, Diane Jones is a community liaison for the Unidos de Salud project aiming to test 6,000 people for SARS CoV-2 this weekend in the Mission.  She is partnering with Diane Havlir, a co-lead on the project, who also was a co-lead on the now historic 1997 study demonstrating for the first time HAART could dramatically suppress replication of HIV.  Perhaps it could extend lives – the lifeboat had arrived.

WE WOULD LOVE TO HEAR FROM YOU

Please click here or scan the QR code below to suggest a future topic for A Moment to Pause or to share a word or phrase to describe how you took a moment to pause. (Played with my kids, walked my dog, phone call with family, wrote 30 love letters...)

Jeff Critchfield | Aiyana Johnson | Margaret Damiano | Brandi Frazier | Shannon Smith


We asked how you took A Moment To Pause, and you shared: