IMP Newsletter #36 : January 2022
Happy New Year! We hope you all had a safe and happy holiday season, although we know that it can be a difficult time for many within our commits.
The IMP Board has been hard at work to evaluate the ways IMP can continue to make a measurable impact on the global mitochondrial disease community and the ways in which we can support our member organisations. On the agenda for 2022 is the review of the List of Medicines to be used with caution, the next phase of the CureMILS project and the Global Registry initiative. We will also be entering into a strategic planning exercise to set the stage for the future of IMP. Be sure to check back with us for updates on the progress of these important projects.
Thank you so much to everyone who participated in World Mitochondrial Disease Week last year. It was fantastic to see so many members, and their local mito communities, raise awareness throughout the week. Please save the date for World Mitochondrial Disease Week 2022, LHON Awareness Day and Light Up for Mito - details below. This year there will be an inaugural TK2D Awareness Day leading up to Awareness Week.
The IMP Board also recently launched a member survey so that we can continue to evaluate the best ways we can support each of our partner patient advocacy organisations, opportunities for collaboration and how we can continue to serve the greater mitochondrial disease community. We welcome your feedback and ideas.
We hope that you will stay in touch, continue to visit the website and learn how you can become involved with IMP during 2022. Together, we are stronger and it is an honour to lead this charge for the global community.
Chair of IMP
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