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Welcome to the June 2013 eBulletin!

The Carers NSW eBulletin is a bimonthly electronic newsletter for professionals interested in carer-related issues. It features research, policy and best practice, plus news, conferences and publications.

This edition of the eBulletin is the first to be published in our new format, which has been specially designed to make it easier for you to navigate. If you are having trouble viewing this format, click here to read the eBulletin in your web browser.

To subscribe to the Carers NSW eBulletin, suggest an item for publication or view previous editions, click here.

In this edition...

Ageing
CALD carers
Children, youth and young carers
Chronic conditions, illnesses and disabilities
Employment and financial issues
GLBTI carers

Ageing

Older Australians want to age at home

The Australian Institute of Health and Welfare (AIHW) has released a bulletin on the desire of older Australians to age in place. Click here to view the full document.

More hospital admissions among older Australians

A report published by the Australian Institute of Health and Welfare (AIHW) shows that hospital admissions are rising rapidly among older Australians. Click here to read the report.

New standard contract for NSW retirement villages

Fair Trading Minister Anthony Roberts has announced a new plain English standard contract and disclosure statement for retirement villages. Click here for more information.

Continued funding for Aged Care Supported Accommodation Service

The Government has announced that it will continue to fund advoacy, information and education services for residents of supported accommodation in 2013-16. Click here for more information.

Presentations on falls prevention

Presentations from the NSW Falls Prevention Network Rural Forums held in Dubbo and Broken Hill are now available online. Click here to access the presentations.

COTA NSW Survey

The Council on the Ageing (COTA) NSW is researching the experiences and views of older people regarding health, wellbeing and end of life decision making. Click here to participate.

CALD carers

Feedback on Framework for Mental Health in Multicultural Australia

Mental Health in Multicultural Australia (MHIMA) is inviting feedback on the new Framework for Mental Health in Multicultural Australia: Towards Culturally Inclusive Delivery. Click here for more information, or contact Saskia de Vries at  saskia@mhima.org.au or (07) 3167 8319.

Children, youth and young carers

Resources for teachers to become more 'care aware'

New online resources have been developed to increase awareness about young carers among school teachers. Click here to view these resources on the CareAware website.

Young carers in the media

Young carers featured on national television twice last month, contributing to community awareness of the experiences and needs of young carers.
  • ‘Young Carers’ on Insight, SBS, 14th May 2013. Watch it online.
  • ‘Carers Debate’ on A Current Affair, 3rd May 2013. Watch it online.

Campaign for carer support in universities - have your say

The Disabilities Collective at Sydney University is running a survey to assist its campaign for better recognition and support of student carers at universities. Carers from any university may participate. Click here to complete the survey.

Research on siblings of young people with a disability

The Social Policy Research Centre (SPRC) is seeking young people to participate in research on how disability affects sibling relationships. Click here for more information, or contact Ariella Meltzer on (02) 9385 3747 or a.meltzer@unsw.edu.au.

School nurses in the UK to become 'young carer champions'

School nurse teams in England’s schools are pioneering a more tailored service which includes training in how to support young carers.  Click here for more information.

Young Carer E-News

The Carers NSW Young Carer program sends out a monthly e-newsletter with information about upcoming events and useful resources. Click here to read the latest edition or past editions or click here to subscribe.

Chronic conditions, illnesses and disabilities

COAG disability report

The fourth Council of Australian Governments (COAG) Reform Council report on disability, Disability 2011-12: Comparing performance across Australia, has been released. Click here to read the full report.

Dementia researcher honoured by Alzheimer's Australia

Last month Professor Henry Brodaty was awarded the Lifetime Alzheimer’s Australia Award at the Alzheimer’s Australia National Conference. Click here for more information.

The effect of vision loss on carers

New research by the Macular Disease Foundation Australia has revealed the burden of wet age-related macular degeneration (wet AMD) on carers. Click here to read the media release or contact the Foundation on 1800 111 709 for free resources.

Nominations for Don't DIS my ABILITY ambassadors

Nominations for ambassadors of the 2013 Don’t DIS my ABILITY campaign are now open to the public. Nominations close 10th June 2013. Click here for more information. 

Participation in research on successful ageing in intellectual disability

Families and service providers are invited to register their interest in participating in a study of successful ageing in intellectual disability being carried out at the University of NSW. For more information, contact Beth Turner on (02) 9385 3994 or SAge-ID@unsw.edu.au

Participation in research into fertility issues after cancer diagnosis

Researchers at the University of Western Sydney are researching people’s experiences and views about fertility following a cancer diagnosis. People who have, or have had cancer, and partners are invited to participate. Click here to find out more.

Employment and financial issues

Australians want time to care

The Australian Council of Trade Unions (ACTU) has released a report on views regarding the support required to balance work and care. Click here to download the report.

Report on the social impact of utility disconnection

The Public Interest Advocacy Centre (PIAC) has released the report Cut Off III: The Social Impact of Utility Disconnection. Click here to download the report.

Report on social and economic disadvantage

The Salvation Army has released a report on its 2013 Economic & Social Impact Survey, entitled It’s not asking too much. Click here for the full report.

UK survey shows impacts of caring on employment and finances

A new report on the State of Caring survey in the UK has found that many carers have difficulty juggling work and care and experience financial hardship. Click here to read the full report.

GLBTI carers

Outrageous Ageing survey closing soon

Lesbian, Gay, Bisexual, Transgender and Intersex (LGBTI) people over the age of 50 are invited to participate in a survey about their perspectives on ageing. Click here to participate, or for more information, contact Sujay Kentlyn on 0488 035 500 or sujay@outrageousageing.org.au.

Children of same-sex couples faring well

A research project conducted by University of Melbourne has found that children of same-sex couples surveyed were doing as well as, or better than, the national averages on a number of key health indicators. Click here to read the news article.

Health

Resources to make health professionals more 'care aware'

A new fact sheet and video will assist health professionals to better identify and support carers. Click here to view the resources.

Increasing out-of-pocket health care costs for Australian consumers

The April edition of the Journal of the Consumers Health Forum Australia explores a range of perspectives on increasing healthcare costs in Australia. Click here to read the publication, or click here for the 2012 AIHW report referring to this subject.

Housing

Continued homelessness funding from NSW Government

The NSW Government has committed $36 million to extend the National Partnership on homelessness. This funding will enable assist people in crisis to find long term housing and get back on track financially and in terms of their mental health. Click here to find out more.

Koori carers

Dementia three times as likely for Aboriginal Australians

Findings from the Koori Growing Old Well Study by Neuroscience Research Australia have indicated that the rate of dementia in Aboriginal Australians is significantly higher than the rest of the Australian population. Click here to find out more.

Funding for Aboriginal and Torres Strait Islander Suicide Prevention Strategy

The Australian Government has announced $17.8 million over four years to fund the first national strategy to prevent suicide among Aboriginal and Torres Strait Islander Australians. Click here for more information.

Working with older Aboriginal and Torres Strait Islander people

The Benevolent Society has released the practice briefing Working with older Aboriginal and Torres Strait Islander people. Click here to download a copy of the briefing.

New guide for developing wills for Aboriginal people

The NSW Trustee and Guardian has produced a guide on making culturally appropriate wills for Aboriginal people. Click here to view the resource.

Aboriginal self identification project

Aboriginal Affairs NSW is consulting with Aboriginal communities to find out why some Aboriginal people choose not to self-identify when using government services. Click here to find out more.

Mental health

Psychiatrists call for better support for carers

The Royal Australian and New Zealand College of Psychiatrists (RANZCP) has launched a position statement entitled Supporting carers in the mental health system at their annual congress in Sydney. Click here to view the document.

Report on the outcomes of the Partners in Depression program

Hunter Institute of Mental Health has released its report Supporting Those Who Care which evaluates its Partners in Depression program. Click here to access the full report.

The Case for Mental Health Reform in Australia

A new report by the Nous Group, The Case for Mental Health Reform in Australia: a Review of Expenditure and System Design, reports on the fragmentation and cost of the mental health system. Click here for more information.

Commission highlights physical health of people with mental health problems

The National Mental Health Commission has called for urgent action to address the poor physical health of the one in five Australians experiencing mental health problems. Click here to read the media release.

Mental Health Report Card will again consider carers

The themes for the 2013 Mental Health Report Card have been announced and reflect that carers' perspectives will again be considered. An Expert Reference Group has also been commissioned to support the Ministerial Working Group in responding to the findings of the 2012 report card, and includes consumer and carer representatives. Click here for more information.

Mental Health Matters Awards - call for nominations

The Mental Health Matters Awards celebrate individuals and organisations working to improve understanding, awareness and service provision and the general mental health of communities in NSW. Click here for more information or to nominate someone.

Bipolar depression treatment trial

People with bipolar disorder who are currently experiencing symptoms of depression are invited to participate in a study investigating the benefits of adding vitamins and other natural compounds to participants’ usual treatment. For more information, contact Michelle Tanious on (02) 9462 9902 or michelle.tanious@sydney.edu.au.

Research on consumer and carer experiences of mental health services

Researchers at the University of Sydney are conducting a study into people’s experiences of mental health services in Australia. To participate in a survey of providers and users, click here, and for a survey of consumers' and carers' direct experiences, click here.

Free DVD for parents and mental health professionals

Parents experiencing depression or anxiety and mental health professionals can order a free DVD from Family Focus containing tools to facilitate family discussions. Click here for more information.

Start planning for Mental Health Month

Mental Health Month is not until October, but a Starter Kit is now available which includes tips, registration information and grant application forms for planning events, as well as a range of merchandise and resources. Click here to access these resources.

NDIS (DisabilityCare Australia)

DisabilityCare Australia update

All Australian states and territories apart from Western Australia have now signed up to the full roll out of DisabilityCare. Click here to read about Western Australia’s reasons for holding out from agreeing to the NDIS.

The first stage of DisabilityCare will be launched from 1st July 2013 in the Hunter area in New South Wales, the Barwon area in Victoria, for children in South Australia and for young people in Tasmania. Click here for more details.

Legislation has now been passed to partly fund DisabilityCare through an increase the Medicare levy from 1.5 to 2 per cent of taxable income by 1st July 2014. Click here to read the media release.

Plan for implementing the NDIS in Aboriginal communities

The First Peoples’ Disability Network has published a ten-point plan for the implementation of the NDIS among Aboriginal and Torres Strait Islander people with disabilities. Click here to see the plan.

Technology

New online system for accessing Government services

The Australian Government has launched a new online portal, myGov, which offers secure, personalised accounts that will act as a 'one-stop shop' for accessing the full range of digital government services. Click here to see the new website.

YouTube videos on eHealth and mental health

The Department of Health and Ageing has developed two videos on eHealth and mental health which have been uploaded to their YouTube page. Click here and choose the eHealth PCEHR video list to access these videos.

Free mental health services online and over the phone

The MindSpot Clinic offers services online and over the phone for Australians experiencing anxiety or depression. Click here to visit the website.

Innovative website and app for the palliative care sector

Palliative Care Australia and international partners have launched ehospice, a new website and free app for the international palliative care sector. Click here to view the website.

Positive Ageing website

The Office for Ageing has a new website, Positive Ageing, which contains links to a number of services, and contains information about the NSW Whole of Government Ageing Strategy. Click here to see the website.

New website for people with osteoarthritis or joint pain

Arthritis Australia has launched a new website containing evidence-based resources and support for managing osteoarthritis and joint pain. Click here to view the website.

New Human Rights Commission website

The Australian Human Rights Commission has launched a new, more modern website with a range of new interactive and accessibility features. Click here to view the website.

Free resilience game and iPhone app

SuperBetter is an online game and iPhone app designed to help people increase their personal resilience and achieve their health goals. Click here for more information.

E-learning resource on child and family-sensitive supervision

Children of Parents with a Mental Illness (COPMI) has announced a new online training course for supervisors and managers on child and family-sensitive supervision strategies. Click here for more information.

Online game teaches kids with disabilities to use Triple Zero

An upated version of Triple Zero Kids has been released with greater accessibility for children with disabilities. The game teaches children how and when to use emergency services. Click here for more information.

Conferences, training and events

DisabilityCare conference: My Choice, My Control, My Future
23rd-24th June, Melbourne. Click here for more information.

National Indigenous Health Conference
25th-27th November 2013, Cairns. Click here or email admin@indigenoushealth.net.

Disability Advocacy Network conference
31st October-1st November 2013, Brisbane. Click here for more information.

Mid North Coast Community Care Conference
16th-18th October 2013, Coffs Harbour. Click here for more information.

Community, Work and Family Conference
17th-19th July 2013, Sydney. Click here for more information.

Federation of Ethnic Communities' Councils of Australia conference
7th - 8th November 2013, Gold Coast. Click here for more information.

Online conference showcasing broadband innovation in health and aged care
12th-13th June 2013, online. Click here for more information.

Advancing Quality in Dementia Care symposium
21st June 2013, Sydney. Click here or contact Evin Donohoe on (02) 9351 0778 or evin.donohoe@sydney.edu.au.

LGBTI Aged Care Forum
13th-14th June 2013, Sydney. Click here or contact Sophie Little on (02) 9080 4353 or sophie.little@informa.com.au.

Creating Synergy 2013 Drug and Alcohol forum
13th-14th June 2013, Wollongong. Click here for more information.

COTA NSW Parliamentary Forum - 'Lets talk about dying'
27th June 2013, Sydney. Click here or contact COTA NSW on (02) 9286 3860.

COTA Australia Policy Forum: Rights, Respect, Recognition
23rd July 2013, Canberra. Click here for more information.

Children with Disability Australia online forum - bullying in schools
To join the discussion, click here, click the ‘like’ button at the top of the screen and scroll to the bottom to add your comments.

NSW Carers (Recognition) Act 2010 information sessions for government agencies and local councils
Various dates and locations. Click here for the calendar and registration form.

Human rights training for CEOs and senior managers of ADHC-funded organisations
June and July 2013, various locations. Click here or contact Katherine Orr on (02) 9256 3167 or katherine.orr@nds.org.au.

Disability Yarn Ups
June 2013, various locations. Click here or or contact Nattlie on 1800 605 489 or livinglifemyway@facs.nsw.gov.au.

My Choice Matters workshops - Getting started
27th June, Newcastle. Click here or call 1800 144 653 or email info@mychoicematters.org.au.


Supported Living webinar
14th June 2013, online. Click here for more information.

Resourcing Families Individualised funding information sessions
Various dates and locations. Click here or call (02) 9869 7753.

Autism Spectrum Disorder education for parents and professionals
14th and 22nd June 2013, Sydney. Click here for more information.

Challenging behaviour workshops for parents
July-September 2013, Western Sydney. Click here or phone (02) 4683 2776.

Free personal development courses for carers of people with a mental illness
June and July 2013, Western Sydney. Click on the course titles for more information: Holding onto hope; Managing stress and building resilience; Communication for carers; or call (02) 8842 8289.

Free carer education course on helping a person at risk of suicide
27th June 2013, Parramatta. Click here for more information.

Mental illness information and training for carers
13th and 17th June 2013, Bankstown. Click here for more information.

Carers' information and support day on Frontotemporal Dementia
12th June 2013, Sydney. Click here or contact Sarah Homewood on (02) 9399 1134 or s.homewood@neura.edu.au.

Sexuality and intellectual disability - forum for parents and carers
15th June 2013, Sydney. Click here for more information.

Cancer support and information evening for same sex attracted women and their partners
26th June and 24th July, Sydney. Click here or contact Ann-Maree Rundle on (02) 9206 2129 or arundle@acon.org.au.

HammondCare 'live-in' training program for dementia carers
June-October 2013, Sydney. Click here or contact HammondCare on 0405 429 640 or gtsah@hammond.com.au.

Free clinical workshops for carers and people with a disability
June-August 2013, Newcastle. Click here or contact Melanie Lloyd on (02) 4969 6261 or melanie.lloyd@paraquad.org.au.

Free mental health first aid course for Arabic carers
9th and 10th July 2013, Parramatta. Click here or contact Yamam Abuzinadah on 0417 464 168 or yamam.abuzinadah@ucmh.org.au.

Managing Anxiety course for carers
Mondays in June 2013, Sydney. Click here or call the Pole Depot Carer Support Team on (02) 9580 0688.

Partners in Depression program groups
June and July 2013, various locations. Click here for more information.

Free support groups for people with depression or bipolar disorder
June and July 2013, various locations. Click here for more information.

Camps for siblings of children with Autism Spectrum Disorder
24th-26th November 2013, Sydney. Click here for more information.

Free Tai Chi Gong lessons for Fibromyalgia patients, carers and friends
11th June and 16th July, Sydney. For more information, call 0468 576 569 or email info@sydneyfibromyalgia.com.

NSW Carers Awards 
Nominations close Friday 28th June 2013. Click here or contact the Office for Carers at carers-awards@facs.nsw.gov.au.

Carers Week 2013 Grant Applications are now open
Applications close 2nd August 2013. Click here to apply or find out more.
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