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Carers NSW NDIS Update, January 2016                                                 View this email in your browser

Carers NSW NDIS Update
January 2016

Welcome to the Carers NSW NDIS Update, one of several resources developed by Carers NSW to help carers understand and engage with the National Disability Insurance Scheme (NDIS).

It takes time and effort to understand the NDIS. Many family and friend carers of people with disability in NSW are finding it hard to keep up. This update aims to make it easier for carers to stay up to date with NDIS news, resources and events.

Carers NSW resources
NDIS news
Have your say

Featured resources
Upcoming events
Further information

Carers NSW Resources


Workshops for carers on the NDIS
Carers NSW has developed a half-day workshop for carers called Carers and the NDIS. The workshop aims to provide carers with a general introduction to the NDIS, help carers support the person they care for to access the NDIS, and prepare carers to communicate their own needs in relation to the NDIS.

"I've been to five of these workshops and this was easily the most informative." - Workshop participant

We are currently taking registrations for the following workshops:
  • Campbelltown, 25 February, 3 & 10 March 2016
  • Kariong, 16 March 2016
  • Bankstown, 17 March 2016
  • Wyong, 7 April 2016
Click here for more information. To register, contact our Education and Training team at education@carersnsw.org.au or 02 9280 4755.

Want to learn more about the NDIS?
As the peak organisation for carers in NSW, we want to help carers get the best outcomes from the NDIS for themselves and the people they care for. Click here to see our fact sheets and checklist for carers on the NDIS.

Are our resources useful?
Please take a couple of minutes to answer five quick questions about this newsletter and our other NDIS resources. We want to know if they are useful for carers. Click here for our short survey.

NDIS News

What support should the NDIS provide to families?
The Independent Advisory Council (IAC) is a group of disability experts that gives the NDIS advice from the perspectives of people with disability and their families and carers. They have written a paper on support for families that provides the following advice to the NDIS:

  • People with disability need family members that have the time and emotional energy to care, and the knowledge and skills to break down barriers and create opportunities for them.
  • Families require practical assistance with the tasks of caring and support to build their advocacy skills.
  • Most families are used to a crisis-driven service where they are encouraged to focus on how bad things are, and are not empowered to be more self-sufficient.
  • Caring without adequate support can have negative impacts on families, including siblings.
  • Strengthening families' informal support networks is important.
  • Support is best when it is tailored to a family's needs and able to be adjusted by them.
  • The NDIS should support family members to remain in or return to work.
  • The traditional model of respite may actually not be meeting carers' needs, and the concept is demeaning for people with disability. More flexible approaches are needed that both take pressure of carers and meet the needs of people with disability.

Click here to read the full paper.

Thumbs up from carers in the Hunter trial site
In 2015 the National Disability Insurance Agency (NDIA) trialled their outcomes framework, a way of seeing how the NDIS is impacting people with disability, their families and carers. The report talks about carers' experiences and wellbeing, and is mostly positive about the impact of the NDIS. The information is brief and fairly easy to read. Click here to read the report.

When ADHC stops and the NDIS starts
The NSW Council for Intellectual Disability (CID) has released a position statement on how the NDIS transition should happen for people with intellectual disability. Click here to read the statement.

More information on information, linkages and capacity building (ILC)
In December 2015 the NDIS released another document about the Information, linkages and capacity building (ILC) part of the NDIS. The draft Commissioning Framework provides more detail about how ILC will run, including the following:

  • Organisations will compete for money to run programs that increase people's skills, independence and connections with their communities.
  • Any person with disability and their carer can access these programs - whether or not they have an NDIS package.
  • ILC will fund some programs especially for carers, e.g. peer support and mentoring. But these activities must benefit the person with disability, so recreational activities for carers are not included.

Click here to read the document or find out how you can have a say.

What will happen with supported accommodation?
The NDIA has released a new framework on specialist disability accommodation. It says that:

  • People who are not currently in specialist disability accommodation but who are on the waiting list and eligible for the NDIS will be prioritised, as will younger people living in nursing homes.
  • Anyone who currently lives in specialist disability accommodation who is not eligible for an NDIS package, or not eligible to stay in specialist disability accommodation, will continue to be supported in some way.
  • The NDIS will not cover rent. Participants will pay 25% of the base rate of the Disability Support Pension as a resident contribution fee.
  • Whether or not carers can cope to have the person remaining at home, and whether the person poses any risks to their household members, will be considered when deciding who can access specialist disability accommodation.

Click here to read the document or find out how you can have a say.

Official NDIS e-newsletter 
You can find the latest official e-newsletter for the NDIS here or sign up for their regular updates here.

Have Your Say

Share your experiences of the NDIS
Carers NSW Policy Team is interested in hearing about carers' experiences of the NDIS so we can tell the NSW and Australian Governments how best to support carers. You can share your highlights, concerns or suggestions with us by calling the Policy Team on 02 9280 4744, emailing us at policy@carersnsw.org.au, or by completing an online Policy Advice Form here.

Share your thoughts and ideas
People with disability, their families and carers are invited to provide feedback on the following:

  • Information, linkages and capacity building: Click here for information on making a written submission on the Draft Commissioning Framework. Dates for face-to-face consultations will be announced soon and included in this Update. Send your contact details to ILC@ndis.gov.au to receive ongoing information about the consultations.
  • Supported accommodation: Public consultations will take place across NSW on the Specialist Disability Accommodation Pricing and Payments Framework. See the NDIS website or the 'Upcoming Events' section of this Update for more information or register your interest by emailing your details to SDAHousing@ndis.gov.au.
  • Accommodation for people with disability: The Joint Standing Committee on the NDIS wants to hear ideas and solutions on good housing models for people with disability. Click here for more information or to make a submission.
  • Reforming the NDIS: Civil Society Australia is inviting comment on their twelve proposals for reforming the NDIS. Click here for more information.

Featured Resources

New videos on the NDIS for carers
Carers Australia has developed 22 videos especially for carers on different topics relating to the NDIS, including preparing for the NDIS, managing supports, support for carers and carer stories. Click here to access the videos.

NDIA videos show how the NDIS has impacted people with disability and carers
The NDIA has released a second video showing the experiences of five different participants with NDIS plans. Click here to watch the original video Living My Plan: NDIS at work and click here to watch Living My Plan: Part 2.

Find out when your area or service will transition
The NSW Government NDIS website, www.ndis.nsw.gov.au, has fact sheets about when different areas and people with disability accessing different kinds of supports will transition to the NDIS. Click here to browse the fact sheets.

Carer checklists for the NDIS
Three organisations have developed checklists to help carers prepare for the NDIS:

  • The Carers NSW NDIS checklist for carers in NSW is available here.
  • The Carers Australia Carer Checklist to prepare for the NDIS assessment & planning meetings is available here.
  • The Mental Health Australia Mental Health Carer Checklist is available here.

Getting Prepared projects
The NSW Department of Family and Community Services (FACS), Ageing, Disability and Home Care, has invested in a number of projects to support people with disability, families and carers in developing their skills to participate confidently in individualised arrangements and prepare for the NDIS. Click here for more information.

Learn about the NDIS from someone like you
Carers Australia's Peer Conversation Partners Project puts carers of people applying for the NDIS in touch with carers whose loved one is already accessing the NDIS. These trained carers are available to share their experiences and tips in approaching the NDIS planning process. Click here for more information or contact 02 6122 9900 or carers.ndis@carersaustralia.com.au.

Free support to help you plan
People with disability and their families and carers receiving funding or services from the Department of Family and Community Services (FACS) / Ageing, Disability and Home Care (ADHC) may be eligible for up to 12 hours of free individual support planning to prepare for the NDIS. Click here for more information. To register your interest, contact your case worker or the ADHC intake line for your area, which you can find here.

Need help understanding and preparing for the NDIS?
Community Connectors work in the Blue Mountains, Hawkesbury, Lithgow and Penrith local government areas. They are funded by the NDIA to help children, young people and their families to access the NDIS. Click here for more information, or to speak to a Community Connector directly, call 1300 883 430 (select option 2), or email communityconnectors@Unitingcarenswact.org.au.

New source of information and support for carers
The Carer Gateway is a new national website and phone number to help carers access information and advice and connect with services in their local area. It is the first stage of the Australian Government’s Integrated Plan for Carer Support Services. Carers can use the Carer Gateway online at www.carergateway.gov.au or by calling 1800 422 737 (Monday to Friday, 8am to 6pm). Click here for more information.

Upcoming Events

Click on a link for more events by area:

HUNTER

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call 02 4942 9200.
  • NDIS planning cafes and Peer2Peer meetings run by Community Disability Alliance Hunter (CDAH). Various dates 2016, Charlestown, Maitland, Rutherford. Click here for more information or call 0490 053 454 or info@cdah.org.au.
  • Specialist Disability Accommodation Pricing and Payments Consultation run by the NDIA. 2 February 2016, Newcastle. Contact SDAHousing@ndis.gov.au for more information.
  • Supported Decision Making workshops for young people with disability aged 14-18 years and their families and carers run by Carers NSW. Various dates and locations 2016. Click here for more information and here for a full schedule of dates, or contact 02 9280 4744 or sdm@carersnsw.org.au.

NEPEAN BLUE MOUNTAINS

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call 02 4942 9200.
  • General information sessions and 'plan ready' workshops run by Community Connectors from UnitingCare Disability (RSVP only). Various dates and locations. Call 1300 883 430 for more information.
  • Supported Decision Making workshops for young people with disability aged 14-18 years and their families and carers run by Carers NSW. Various dates and locations 2016. Click here for more information and here for a full schedule of dates, or contact 02 9280 4744 or sdm@carersnsw.org.au.

REST OF NSW

  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.
  • Harness the possibilities: Enriching lives in changing times run by Resourcing Families. Various dates 2016, Coffs Harbour, Wagga Wagga and Dubbo. Click here for more information or call 1800 620 588.
  • Specialist Disability Accommodation Pricing and Payments Consultation run by the NDIA. 1 February 2016, Sydney; 4 February 2016, Albury. Contact SDAHousing@ndis.gov.au for more information.
  • Getting ready for the NDIS: A workshop for carers run by Carers NSW. Various dates and locations 2016. Click here or contact 02 9280 4744 or education@carersnsw.org.au for more information.
  • Supported Decision Making workshops for young people with disability aged 14-18 years and their families and carers run by Carers NSW. Various dates and locations 2016. Click here for more information and here for a full schedule of dates, or contact 02 9280 4744 or sdm@carersnsw.org.au.
Some of the events promoted in these updates are run by organisations that are registered providers for the NDIS. Attending their event does not mean you have to choose them as your NDIS provider. Participants and their families can choose the providers they want.

Further Information


For more information and resources about the NDIS: This update is not endorsed by the National Disability Insurance Agency (NDIA). It has been developed by Carers NSW based on publicly available information. Every effort has been made to ensure that all information is correct and up to date. However, it should be used as a guide only. All information should be verified with the NDIA.
Copyright © 2016 Carers NSW, All rights reserved.


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