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Welcome to the 
March 2015 eBulletin


The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Don't be Careless this March

The NSW state election will take place on 28 March and Carers NSW is calling on all candidates to consider and respond to the following key issues for carers:
  1. Continuity and support – no carer worse off as NSW transitions to the NDIS
  2. Ageing parent carers – need the extra care that the Older Parent Carer program provides
  3. Access to health care – getting there is the first step
Please read the campaign overview here and visit our election website http://dontbecareless.com.au for further information.
You can order our election postcards to hand out to your contacts by emailing policy@carersnsw.org.au.

Special General Meeting of Carers NSW Incorporated to be held at Sydney Masonic Centre on Monday 27 April 2015 at 2pm

On 27 April 2015 Carers NSW will be holding a Special General Meeting. Members will be asked to consider and approve a special resolution to change the legal status of Carers NSW from an incorporated association under the Associations Incorporation Act 2009 (NSW) to a company limited by guarantee under the Corporations Act 2001 (Cth).
Members will have received papers with their recent Carers News.

Carers NSW Biennial Conference

Carers NSW is excited to announce the confirmation of internationally renowned digital innovation expert Dominic Campbell as a keynote for the 2015 Biennial Conference ‘Let’s revolutionise caring: inclusion, innovation, diversity.' Dominic is the Director and Founder of FutureGov, supporting government in the UK and Australia in the areas of business improvement and citizen engagement. FutureGov’s recent work has focused on carers services and how digital innovation might transform the relationship between public services and the carers they support.  For more information about FutureGov and Dominic Campbell, click here.
Registrations for the Carers NSW Biennial Conference are now open. For more information click here.

Carers NSW telephone counselling groups

Grief and Loss: Talk-Link for former carers of someone with MND, Tuesdays from 21 April 2015. Contact 1800 242 636.

Running or setting up a carer support group?

Carers NSW is offering free workshops for Click above for details or contact the Education & Training Team on (02) 9280 4744 or education@carersnsw.org.au.

Report on Government Services

The Productivity Commission Report on Government Services for 2014 has been released. It includes breakdowns of Commonwealth spending on aged care and disability services, including services for carers. Click here for the media release.

Report on supporting carers to work

Carers NSW has published Supporting carers to work: Qualitative research in support of employed carers as it looks into the 2.7 million carers in Australia that provide informal care to family, friends or neighbours. Click here to read the report.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Disability
Employment, finances and housing
Health

Aboriginal and Torres Strait Islander carers

Closing the gap annual reports released

The Closing the gap: Prime Minister’s report 2015 and the Closing the gap – progress and priorities report, the annual report cards prepared by the Close the Gap Steering Committee have been released. Click here for more information.

Children, youth and young carers

Advocate for children and young people 

The NSW Government has appointed NSW's first Advocate for Children and Young People to represent and help develop policies to tackle the big issues facing children and young people. Click here for more information.

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Disability

NSW Disability Inclusion Plan launched

The NSW Government has launched the NSW Disability Inclusion Plan, which aims to remove systemic and attitudinal barriers to ensure that people with disability have opportunities to lead a meaningful life. Click here for more information and here for the media release.

Young people with disability and advocacy

A new Children with Disability Australia (CDA) publication, Strengthening Participation of Children and Young People with Disability in Advocacy, looks at the different ways in which participation by children and young people with disability can improve and foster positive changes in their lives and influence others' lives as well. Click here for more information.

Improved services for customers with disability

The NSW Government has announced a range of improvements for customers with disability using public transport or taxi services. Click here for the media release.

New alliance for Australians with disability

The Federal Government has established the National Cross-Disability Alliance to provide practical advice to improve policies and legislation impacting people with disability across Australia. Click here for the media release.

Get Ready for Study and Work

The National Disability Coordination Officer Program has put together the top ten tips for young people with disability in its Get Ready for Study and Work student workbook and Parent Guide. Click here for more information.

Guide to the Disability Standards for Education

Disability Standards for Education: A Practical Guide for Individuals, Families and Communities, provides resources in supporting the rights of students with disability to receive equitable education. Click here for more information.

Survey on carers' experiences of complex service systems

Are you the parent of a son or daughter affected by a genetic condition? Researchers from the University of Sydney are seeking feedback about the many services you may be in contact with (e.g., health, education, disability, finance, employment). Contact Pam Joseph (0435 532 074; pjos3628@uni.sydney.edu.au) for more information.

Resource for moving out of home

Adam moves out documents the process and details as a young man moves out of home into a shared house. Click here for Adam's story.

Running or setting up a support group for carers of people with disability?

The together program provides opportunities for disability carer support groups to link with each other, Carers NSW and a Regional Assisting Organisation to receive support, including education and training and some potential small grants to assist in the running costs of the group. Click here for more information.

Employment, finances and housing

McClure Review of welfare - final report released

The Australian Government has now released the Final Report into the review of Australia’s welfare system, A New System for Better Employment and Social Outcomes. The report recommends a major overhaul of the current social security system, while retaining a separate Carer Payment. Click here to view the report.

Housing impacts of caring for ageing parents

A recent article published in the Canberra Times looks at how a carer moving in to care for an ageing parent may be vulnerable to losing their home and being left without adequate employment when their parent moves to residential care. Click here for more details.

Carers UK report on isolation and loneliness 

Carers UK has recently released a report based on a 12-month investigation looking into the financial hardships faced by carers. Click here to read the report.

Health

End-of-life initiatives help families

An article published in the Sydney Morning Herald has reported the development of a new DVD Consider as a guide to for healthcare professionals to support families in planning for end-of-life care. Click here to read the article.

Mental health

Guide promotes emotional wellbeing 

beyondblue has published the following guides to promote emotional wellbeing:
  • What works to promote emotional wellbeing in older people: A guide for aged care staff working in community or residential care settings. Click here to read the report.
  • Connections matter: Helping older people stay socially active emphasising the benefits of being connected to others is important for mental wellbeing and protect against anxiety and depression. Click here for the report.

Access to mental health care

Research conducted at the Monash University has found that people in regional and remote areas and financially disadvantaged metro areas have less access to mental health services. Click here for more information.

NDIS

Feedback required on aspects of NDIS 

The National Disability Insurance Agency (NDIA) and Department of Social Services (DSS) are seeking feedback on the following aspects of the NDIS
  • Assistive Technology: click here for more information.
  • Safeguarding: click here for more information.

New NDIS resources for carers 

Carers NSW has published two new fact sheets in its series of resources for carers on the NDIS. How can I prepare for the NDIS? and NDIS checklist for carers in NSW are designed to help carers understand and engage with the NDIS. These and other useful resources can be found here.

Older people

Calls for research participants

  • Surveys about consumers views on residential aged and home care services. Click here for more information.
  • Survey about carers' beliefs about medicines Click here to access the survey online. If you would prefer a paper copy to be sent to you, or if you have any questions, please contact Emily Reeve (emily.reeve@sydney.edu.au, 02 9926 4924).

Technology

App aims to make Sydney accessible

Association for Children with a Disability (ACD) NSW has developed the Accessible Sydney App to help families with special needs pre-plan their trips and find accessible facilities. Click here for more information.

New App for carers 

Care for Me is an App for iPads and iPhones designed to help children and adults with special needs, their family, carers and teachers. Click here for more information.

Conferences and forums

Cultivating Inclusive Communities in Consumer Directed Care Markets, 4 May 2015, Sydney.
The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.
At Home with Eating Disorders Conference (for carers), 29-30 May 2015, Melbourne.
International Mental Health Conference, 12-14 Aug 2015, Surfers Paradise.
Australian Social Policy Conference: Rights and entitlements in times of austerity, 28-30 Sep 2015, Sydney.

Training and events


World Bipolar Day: Celebrating Recovery 30 Mar 2015, Sydney, www.bipolaraustralia.org.au.
 
Carer Information Sessions, Various dates 2015, Kogarah, (02) 9113 2494.

Connecting with Carers Education Groups, MH carers, Various dates 2015, Wollongong, (02) 4229 7254.

Family Carer Education, dementia carers, Various dates 2015, North Ryde, (02) 9805 0100, nsw.education@alzheimers.org.au.

Family and Carer Mental Health Program - Training and Education Various dates 2015, Western Sydney (02) 8599 4880, North Sydney (02) 9481 0177, Central Coast (02) 4322 1855, South Western Sydney (02) 9757 4293.

Professional Dementia Courses, Various dates 2015, North Ryde, (02) 9805 0100, nsw.education@alzheimers.org.au.

Early Days workshops for parents of children with Autism. Various dates 2015, various locations, (02) 8977 8377, customerservice@autismspectrum.org.au.

Pathways to Leadership, Various dates 2015, Cromer, www.jeder.com.au.
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