Welcome to the Carers NSW NDIS Update, one of several resources developed by Carers NSW to help carers understand and engage with the National Disability Insurance Scheme (NDIS).

It takes time and effort to understand the NDIS. Many family members and friends (carers) of people with disability in NSW are finding it hard to keep up. The Carers NSW NDIS Update aims to make it easier for carers to stay up to date with NDIS news, resources and events. Click here to read this in your web browser.

Carers NSW Resources
Have Your Say

Featured Resources
Upcoming Events
Further information

Carers NSW Resources


New NDIS resources for carers!

Carers NSW recently updated our NDIS web pages to ensure that carers in NSW have access to the most current and accessible information on the NDIS.

Visit to find out more about how the NDIS works and how it will impact you and the person you care for. You will also find:
  • Information about how the NDIS works for young children and for people living with a mental illness
  • Information about what to do if you have a challenging experience with the NDIS
  • Personal stories about carers' experiences of the NDIS
  • Links to NDIS resources for Aboriginal and Torres Strait Islander Carers
  • Links to information about the NDIS translated into languages other than English.
Revised versions of our NDIS fact sheets for carers in NSW and dates for upcoming NDIS workshops in 2017 will be added to these pages soon.

Comments and suggestions on our NDIS resources are welcome. Please contact our Policy Team at or phone 1800 242 636.


NDIS providing positive outcomes for carers

An interim report on the official evaluation of the NDIS has been published by the National Institute of Labour Studies at Flinders University. Data from more than 1,800 carers showed that carers are generally happy with the support being provided to the person they care for under the NDIS, but they do not feel their own needs are being adequately considered. Other notable findings include:
  • Nearly one in three of the carers never had access to adequate breaks
  • Three quarters did not access any carer supports
  • The NDIS had reduced carers' anxiety about the future and reduced their financial strain, while increasing their social and economic participation and their wellbeing.
  • Nearly 40% of the carers said that the time they spent on paperwork had increased since accessing the NDIS.
Click here to view the full report.

Fears that people living with mental illness will miss out on the NDIS

An article in The Australian has claimed that government modelling shows more than 100,000 people with severe mental illness will be excluded from the NDIS. Click here for more information.

Issues facing people with intellectual disability

An article written by Michael Sullivan, Senior Advocate from the NSW Council for Intellectual Disability, has reported that families have told them:
  • A rushed planning process has resulted in poor plans
  • People's levels of disability support have been reduced
  • Many people with intellectual disability have not had genuine choice and control
  • Families are being discouraged from pursuing self-management, even when they already have experience.
Click here to read the full article.

Carer stories

  • Click here to read about the Hughes' daughter's improvements in speech as a result of the NDIS.
  • Click here to watch a video about Devi's experience going through the NDIS with her young son, or here to watch a video about Kira and her mum Chantelle.
  • Click here to read about the Eastley family (Tasmania) and here for the Geary family's story (ACT) - both have had difficulties communicating with the NDIS.

NDIS Review brought forward

An independent review of the costs and sustainability of the NDIS will take place in 2017. Results will be used to shape the full scheme, which will be rolled out in NSW from mid-2018. Click here for more information.

Local Area Coordinators not doing enough

An article by Disability Services Consulting has expressed concerns that the Information, Linkages and Capacity building (ILC) part of the NDIS does not have enough funding to function properly, and the the Local Area Coordinators (LACs) who are meant to help connect people with disability with their communities are not able to fully do their jobs. Click here for more information, including an explanation of ILC.

Official NDIS e-newsletter

You can find the latest official e-newsletter for the NDIS here or sign up for their regular updates here.

Have Your Say

Research on carers and the NDIS

Researchers from Southern Cross University are calling for carers to take part in a study measuring their wellbeing before, during and after accessing the NDIS. Click here to participate in the survey.

Did the person you care for get enough funding for equipment?

Carers NSW has heard that some NDIS participants are not getting adequate funding for assistive technology and equipment in their NDIS plans, placing a financial burden on carers. Is this your experience? Let us know either way by contacting the Policy Team at or on 1800 242 636.

Share your thoughts about the NDIS and psychosocial disability

The Joint Standing Committee on the NDIS is currently running an inquiry into the provision of services under the NDIS for people with psychosocial disabilities related to a mental health condition. Submissions close on 27 February 2017. Click here for more information or to provide a submission.

Featured Resources

Where to make an NDIS related complaint

The NSW and Commonwealth Ombudsmans have partnered with NSW Fair Trading to create a simple diagram explaining who to talk to when you have different kinds of complaints about the NDIS. Click here to view the diagram.

New NDIS planning resources

The National Disability Insurance Agency (NDIA) has produced a range of new resources to help you prepare for your planning conversation. Click here to view videos, fact sheets and a checklist that explain the process.

New NDIS information for carers

Carers Australia has published a range of new resources for carers on the NDIS, including a sample Carer's Statement. You can view all these resources at

Upcoming Events

Click on the links for events in your area

Sydney region (including Nepean Blue Mountains)
Northern NSW (including Central Coast)
Western NSW (including Far West)
Southern NSW (including Illawarra)

Sydney region

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.

Northern NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.

Western NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.

Southern NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Getting Prepared for the NDIS: Information & Pre-planning sessions for culturally & linguistically diverse people in Southern NSW. 6 & 7 Feb 2017, Catalina; 10 Feb 2017, Goulburn; 1 & 3 Feb 2017, Queanbeyan. Contact Leigh at or (02) 9569 1288.
Some of the events promoted in these updates are run by organisations that are registered providers for the NDIS. Attending their event does not mean you have to choose them as your NDIS provider. Participants and their families can choose the providers they want.

Further Information


For more information and resources about the NDIS:

This update is not endorsed by the National Disability Insurance Agency (NDIA). It has been developed by Carers NSW based on publicly available information. Every effort has been made to ensure that all information is correct and up to date. However, it should be used as a guide only. All information should be verified with the NDIA.
Copyright © 2017 Carers NSW, All rights reserved.

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