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Welcome to the 
November 2014 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Forum for facilitators of Carer Support Groups

The Carers NSW together team is running a Facilitator Forum for Carer Support Group facilitators. Click here for more information.

Be self-care aware workshops

As part of the Federal Government’s Drought Assistance Package funding, Carers NSW along with Back Track, Black Dog Institute and Rural Fit will be delivering a series of free ‘Be self-care aware’ workshops across the New England region throughout November and December 2014. Click here for the media release and here for the website.

Running or setting up a carer support group?

Carers NSW is offering free workshops to carer support group coordinators and facilitators. Click here for details or contact the Education & Training Team on (02) 9280 4744 or

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

Care for a carer

A new community awareness campaign Care for a carer launched by the NSW Family & Community Services urges people to make a greater effort to look after carers. Click here for more information.

NSW Carer of the year

Anne Funke has been announced as the 2014 NSW Carer of the Year. Click here for the media release.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Report on Aboriginal and Torres Strait Islander people and dementia

Alzheimer's Australia has produced a report studying the health and lifestyle risk factors associated with prevalence of dementia in Aboriginal and Torres Strait Islander communities. The paper includes recommendations to promote awareness, information and appropriate support services. Click here to read the report.

Living My Way finds further changes needed with the NDIS

ABC's PM program has reported on the first conference for Aboriginal people with disabilities Living My Way with Indigenous advocates saying that though the NDIS has great potential, a lot more work needs to be done, as it is important to get the NDIS right. Click here to view the report.

CALD carers

CALD carers efforts to break down taboos

A recent news article on SBS looks into the challenges faced by CALD carers as they care for their loved ones with a mental illness. Click here for more information.

Children, youth and young carers

New Young Carer website

The Carers NSW Young Carer Program is delighted to announce the unveiling of a new Young Carer website. The website contains helpful information for young carers, contact details for state-wide support services, an online young carer community, a designated section for parents and professionals and much more! Visit the website at

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

New guide for drivers with dementia

NRMA and Alzheimer's Australia has released a free guide Staying on the move with dementia to help people with dementia and their carers make the right decisions about independent mobility and safety. Click here for more information.


Research on developing online resources about the DSE

University of Canberra is developing online resources about the Disability Standards for Education (DSE) and they are seeking feedback about disability awareness from parents, carers, educators and community members in completing an online survey. Click here for more information.

Grants for families touched by Down Syndrome

The Right Start Foundation is offering grants for families with a child over 7 years old to meet therapy expenses associated with Down Syndrome. Click here for more information.

My Choice Matters recognised at awards ceremony

The NSW Disability Industry Innovations Awards has  awarded the People's Choice and the Minister's Award to the My Choice Matters program that helps people with disability, their families and carers develop skills and capacity to take more control in their lives. Click here for more information.

Running or setting up a carer support group?

The together program provides opportunities for carer support groups to link with each other and a Regional Assisting Organisation to receive assistance, including some potential small grants to assist in the running cost of the group. Click here for more information.

Employment, finances and housing

Gold Opal cards now available

The Minister for Transport, Gladys Berejiklian, has announced that seniors and pensioners can now order a Gold Opal card. Fares are capped at $2.50 a day, and Pensioner Excursion Tickets (PETs) available for those who prefer paper tickets. Click here for more information.

Report on economic impacts of caregiving in New Zealand

The economic value and impacts of informal care in New Zealand is a new report prepared for Carers NZ and the NZ Carers Alliance looking into the economic contribution and economic impacts of caring on workforce participation and household finances. Click here for the summary and here to read the report.


CanTeen website for young people

CanTeen has launched a new online support platform for young people aged 12-24 with cancer, or who have a parent, brother or sister with cancer. The website provides information, advice and online counselling. Click here to view the website.

New ACI website launch

The Agency for Clinical Innovation (ACI) has restructured their website making access to information easier, more intuitive and mobile-friendly. Click here to view the website.

Launch of the Lymphoedema Action Alliance

The Lymphoedema Action Alliance has been launched to campaign for equitable access to services for people with lymphoedema. Click here for more information.

Report on end of life in Australia

The Grattan Institute has published Dying Well, a report about how, where and with whom Australians die. Click here to read the summary and here to read the report.

Mental health

NSW Mental Health Commission reports

  • Living Well: Putting People at the Centre of Mental Health Reform in NSW: A Report sets about a clear vision and direction for mental health reform in NSW by focussing on people and families. The report includes carer stories. Click here for the report.
  • Support in tough times: Encouraging young people to seek help for their friends report recognises that friends play an important role in noticing mental health problems that their peers might be experiencing. Click here to read the report.

beyondblue guide for carers

In a timely reminder to family, friends and carers to look after themselves, beyondblue has released an updated version of The beyondblue guide for carers: Supporting and caring for a person with anxiety and depression. Click here for more information.

Mental health glove box guide

The Rural Adversity Mental Health Program and The Land have launched the new Glove Box Guide to Mental Health aiming to educate rural and regional areas in NSW about mental health and where and how to seek help. Click here for more information.


NDIS Annual Report

The release of the first annual report of the NDIS has shown that the NDIS is working effectively and has transformed the lives of many people with disability by providing them support required to lead an ordinary life. Click here to read the annual report.

Older people

Research into ageing parent carers

Anglicare has published Caring into Old Age: the wellbeing and support needs of parent carers of people with disabilities report about the impacts of the caring role of ageing parents carers and their own personal wellbeing. Click here to read the report.

Mental health care for carers

An article in the Australian Ageing Agenda has focussed on the importance of promoting good mental health for carers. Click here to read the article.

Planning tool-kits for councils

The Integrated Age-Friendly Planning Toolkit for Local Government in NSW has been released including references to the NSW Carers (Recognition Act) 2010 and the NSW Carers Strategy 2014-2019. Click here for more information.


App for parents

The Raising Children Network has produced a new app for parents of children with ASD and disability. The app includes a services map tool, information on funding and support and videos from parents, among other useful functions. The app can be downloaded for free from iTunes for iOS and Google Play for Android.

Conferences and forums

Australian National Carer Conference 16-18 Nov 2014, Gold Coast.

Integrating Mental Health into the NDIS, 27-28 Nov 2014, Sydney.

The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.

Training and events

Connecting for Successful Ageing, 12 Nov 2014, Kingsford, (02) 9382 3753,

Information Day for people with a disability and their carers, 13 Nov 2014, Cabramatta, (02) 9821 7793,

Courage to Care retreat for caregivers, 13-16 Nov 2014, Bungendore, 0488 402 210,

Supporting the Ongoing Loss and Grief with Disabilities, 14 Nov 2014, Castle Hill, 1300 131 665,

PossABLE IDEAS EXPO, 14-15 Nov 2014, Maitland Show Ground, 1800 029 904.

50+ Report launch, 18 Nov 2014, Sydney, Eventbrite.

Carers' Days - A chance to take a break, Various Sundays Nov 2014 - Mar 2015, Sydney, (02) 8079 5997.

Seniors Soundscapes - Make a noise for wellbeing and feel good! 17 Nov-12 Dec 2014, (02) 9562 1862.

Cooking Group for Male Carers. Various dates 2014, Warilla, (02) 4232 0138,

Community Support Skills, Rural Adversity Mental Health Program, Various locations, (02) 6767 7974.

Early Days workshops for parents of children with Autism. Various dates 2014, various locations, (02) 8977 8377,

Family and Carer Mental Health Program - Training and Education. Various dates 2014, Northern Sydney, Western Sydney, Nepean-Blue Mountains, South-Western Sydney, Southern NSW and Murrumbidgee, Hunter New England, (02) 4322 1855.

Learning Links. Various dates 2014, various locations, (02) 8568 8200.

Healthy Steps, Alzheimer’s Australia NSW events for carers, various dates 2014, various locations in Sutherland and St George area, (02) 9531 1928,

My Choice Matters - 'Getting Ready' and 'Get More Skills' workshops on individualised funding. Various dates 2014, various locations, (02) 9211 2605,

Paraquad public courses on caring for someone with a spinal injury. Various dates 2014, various locations, (02) 8741 5662,

Pathways to Leadership, Various dates 2014, Cromer,

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