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Welcome to the 
March 2014 eBulletin


The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Running or setting up a carer support group?

Carers NSW is offering free workshops to carer support group coordinators and facilitators across NSW in 2014. For further information, click here or contact the Education & Training Team on (02) 9280 4744 or education@carersnsw.org.au.

Talk-Link counselling groups Apr-May 2014

Carers NSW Talk-Link groups provide carers with the opportunity to explore the emotional impact of caring, identify ways of managing everyday life and share experiences with people who are in similar situations. For further information, click here or contact 1800 242 636 or nccp.admin@carersnsw.org.au.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Disability
Employment, finances and housing
Health

Aboriginal and Torres Strait Islander carers

Review of early childhood programs for Indigenous families

The Closing the Gap Clearinghouse has published an issues paper reviewing parenting, education and health intervention programs for Indigenous children and families in Australia. Click here to read the paper.

CALD carers

Briefing on CALD mental health

The National Mental Health Consumer & Carer Forum has produced an advocacy briefing on the mental health of people from culturally and linguistically diverse (CALD) backgrounds. Click here to read the briefing.

Mind matters for young people from diverse cultural backgrounds

The Centre for Multicultural Youth (CMY) has published a report on the mental health of young people from CALD backgrounds, covering policy, research, service barriers and risk factors. Click here to read the report.

Nominations open for excellence in CALD aged care

The Centre for Cultural Diversity in Ageing is now taking nominations for community organisations, aged care providers and individuals who have demonstrated excellence in supporting older people of CALD backgrounds. Click here for more information.

Online continence resources for speakers of diverse languages

The Continence Foundation of Australia has set up 27 new web pages exhibiting information about continence in different languages. Click here for more information.

Children, youth and young carers

Young Carer Leadership Program

The Carers NSW Young Carer Leadership Program aims to give young carers a stronger voice in the community. Selected applicants will be invited to Sydney for a 2 day workshop in April 2014 to learn leadership, media and presentation skills and meet other young carers. Click here or call 1800 242 636 for more information.

Giving a voice to young carers of people with dementia

Researchers from the University of Sydney are conducting a study on young people caring for someone with dementia. Click here to read about their findings so far.

Young Carers e-Newsletter

Click here to read the latest edition of Carers NSW Young Carers e-News or to subscribe.

Chronic conditions and illnesses

Report on end of life care for people with dementia

Alzheimer's Australia has published the final report on a survey of family carers and care professionals caring for people with dementia. The report identifies barriers to accessing appropriate end of life care. Click here to read the report.

Best practice guide to carer inclusion in dementia care

A consortium of UK organisations has produced the guide The Triangle of Care - Carers Included: A guide to best practice for dementia care. Click here to read the guide.

Participants sought for research on proxy decision makers

Researchers at La Trobe University are examining how proxies make decisions on behalf of people with dementia. The study aims to identify strategies and assistance that may support them. Click here for more information.

Participants sought for research on protecting people with dementia from financial abuse

Alzheimer's Australia NSW is conducting a study the financial abuse of people with dementia and is seeking people with dementia and their carers to share their experiences. For more information, contact Kylie Sait on 8875 4641 or kylie.sait@alzheimers.org.au.

Disability

Greater availability of individualised funding arrangements

In preparation for the roll out of the National Disability Insurance Scheme (NDIS), the NSW Government is expanding the availability of individualised funding arrangements in NSW. Click here for more information.

Parenting support for carers of children with disability

The University of Sydney has recently launched a project offering free parenting support to parents and caregivers of children with a disability in NSW. Click here for more information.

Moving forward workshops for families accessing Better Start

Carers NSW is running Moving Forward workshops for parents and guardians whose child is preparing for, or has recently entered, primary school and who are looking at how to best support their child after their Better Start funding concludes. For more information, click here or contact 1800 242 636 or betterstart@carersnsw.org.au for more information.

Parents of children with a hearing impairment share their stories

Deaf Children Australia has published a collection of real life stories written by parents of children who are deaf and hard of hearing to show parents of newly diagnosed children they are not alone. Click here to download the stories.

Families and service providers working together

This occasional paper by the Victorian Disability Services Commissioner proposes principles and strategies to support families of adults with a disability and disability service providers to work together more effectively. Click here for more information.

Participants sought for research on parents of children with a genetic condition

Researchers at the University of Newcastle are conducting a study on carers of children with a genetic condition, how they disclose this condition to their child, their psychological wellbeing and the support they access. Click here for more information.

Employment, finances and housing

Housing help for seniors

In July 2014 the Department of Human Services (DHS) will launch a pilot program that provides an income and assets test exemption for pensioners (include those receiving the Carer Payment) over age pension age who 'downsize' their home. Click here for more information.

Accessibility needs in strata dwellings

The City Futures Research Centre at the University of New South Wales (UNSW) has released its final report on a study examining the accessibility needs of people living in strata dwellings and the challenges that can be faced by strata residents in having home modifications undertaken in their properties. Click here to download the report.

Innovation fund for older parent carers

The Queensland Government has partnered with a community finance lender to launch the Elderly Parent Carer Innovation Fund. The fund will provide innovative accommodation options for people with disability once their elderly parents are unable to look after them at home. Click here to read the media release.

Health

Survey on the health and wellbeing of rural carers

A researcher at the University of New England is seeking carers to participate in a study on the health and wellbeing of rural carers. Click here for more information.

LGBTI carers

Webinars on LGBTI health and mental health

The National LGBTI Health Alliance is hosting a series of webinars on mental health and suicide prevention in the LGBTI community. Click here for more information.

Mental health

Events for carers of someone with a mental illness

Carers NSW Mental Health Respite: Carer Support team is holding consulations with carers of people with a mental illness who live in the Randwick or Botany Bay areas to hear about how we can best support them. The next event is on Friday 28 March, 10-12:30pm in Mascot. A film festival event will also be held on Saturday 22 March. For more information, please call the Carer Line on 1800 242 636 or email lisal@carersnsw.org.au.

Carers invited to share their stories

The Association of Relatives and Friends of the Mentally Ill (ARAFMI) invites carers of people with a mental illness to share their stories online for a new awareness raising project. Click here for more information.

Online education for carers of people with an eating disorder

The Butterfly Foundation invites carers of people with an eating disorder to participate in a free interactive webinar series. Click here for more information.

Guide to caring for a person with anxiety or depression

beyondblue has produced a new guide for carers of people with anxiety and/or depression. It is based on carers' real experiences and offers advice and tips on caring for others and oneself. Click here to view the guide.

Wanted: carer representative

Eastern Sydney Medicare Local (ESML) is seeking a carer with experience caring for a person with anxiety or depression, or who has experienced mental health issues themselves, and has been referred by a GP to primary mental health services such as ATAPS or Better Access. The carer representative will sit on the ATAPS Program reference group. For more information, please contact Trish Goodlet on 9020 7007.
 

NDIS

Official update on NDIS trials

The second quarterly report for the NDIS was released in February 2014 and provides data about the rollout of the Scheme in the trial sites. Click here to view the report.

Joint Standing Committee on the NDIS

A Joint Standing Committee on the NDIS was established in December 2013. The committee will review the implementation, administration and expenditure of the NDIS, among other matters. Click here for more information.

First hand experiences of the NDIS

Life Matters on the ABC broadcast interviews with two mothers whose children are NDIS participants in the trial sites. Click here to hear their stories.

Survey of parents of children with additional needs

Researchers at the University of Western Sydney are conducting a study into the information needs of families regarding the NDIS. Click here to complete the survey.

Older people

Consumer perspectives on aged care quality

Alzheimer's Australia has published a report on the concerns about the quality of care in a minority of residential aged care facilties and puts forward strategies to address them. Click here to read the report.

Working with nominated and legally appointed representatives

The Department of Health has published a report on working with nominated and legally appointed representatives for aged care providers and aged care workers. Click here for more information or to access the resource.

Technology

New Companion Card website

A new website with information on the Companion Card has been launched. Click here to view the new website.

Free online training for carers

Carers Victoria has developed a series of free interactive online workshops to help carers understand the benefits of taking a break, explore the barriers and think about how to best use their time off from caring. Click here for more information.

Blog for carers of people with a spinal injury

The mother of a young woman with a spinal cord injury has started a blog to help carers with little time or who are socially isolated to access information. Click here to view the blog.

Conferences and forums

5th Annual National Disability Summit 2014 17-18 Mar 2014, Melbourne.

Child Aware Approaches conference 31 Mar-1 Apr 2014, Melbourne.

Dementia and Disability: The facts, strategies and implications 7 Apr 2014, Sydney.

Linking Up for Kids 14-15 Apr 2014, Sydney.

Men's Health and Wellbeing Conference 1-2 May, Penrith.

Applied Disability Research and Evaluation Conference 26 May 2014, Sydney.

Cultural Diversity in Ageing Conference 12-13 Jun 2014, Melbourne.

MindOUT! LGBTI Mental Health Conference 26-27 Jun 2014, Sydney.

Australian Institute of Family Studies Conference 30 Jul-1 Aug 2014, Melbourne.

International Conference on End of Life: Law, Ethics, Policy and Practice 13-15 Aug 2014, Brisbane.

15th International Mental Health Conference 25-27 Aug 2014, Gold Coast.

Australian National Carer Conference 16-18 Nov 2014, Gold Coast.

Training and events

Working with Young People from Multicultural Backgrounds 17 Mar 2014, Parramatta, 0435 146 979, andrew@myannsw.org.au.

Mental Health First Aid (Arabic) 19 & 26 Mar 2014, Parramatta, (02) 8842 8289.

My Time for Grandparents - Information session 2 Apr 2014, (02) 4227 1079, info@interchangeillawarra.org.

Spinal Cord Injuries Ausralia Independence Expo 5 Apr 2014, Sydney, (02) 9661 8855, office@scia.org.au.

Alzheimer's Australia training for family and friends Various dates 2014, various locations, (02) 9805 0100 for Sydney, (02) 4962 7000 for Hunter, education@alzheimers.org.au.

Early Days workshops for parents of children with Autism Various dates 2014, various locations, (02) 8977 8377, customerservice@autismspectrum.org.au.

Families and Carers Mental Health Program - Training and Education Various dates 2014, Northern Sydney, Western Sydney/Nepean-Blue Mountains, South-Western Sydney, Southern NSW and Murrumbidgee, Hunter New England, (02) 4322 1855.

Getting Ready workshops for people with physical disability Various dates 2014, various locations, (02) 9552 1606, admin@pdcnsw.org.au.

Mental health carers workshops, Inner West Various dates 2014, Ashfield, (02) 9641 7081.

My Choice Matters - 'Getting Ready' and 'Get More Skills' workshops on individualised funding Various dates 2014, various locations, (02) 9211 2605, info@mychoicematters.org.au.

Paraquad public courses on caring for someone with a spinal injury Various dates 2014, various locations, (02) 8741 5662, training@paraquad.org.au.

Southern Highlands Carer Roadshow Various dates 2014, various locations, 1800 242 636.

Yaraandoo respite retreats for mental health carers Various dates 2014, Northern NSW, (02) 6655 6223.
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