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Welcome to the 
August 2014 eBulletin


The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Shining a light on carers - a Carers NSW event

World-renowned pianist David Helfgott and his wife and carer Gillian will be joined by reporter, presenter and TV personality Chris Bath, to raise awareness of carer issues at an exclusive event An Afternoon with the Helfgotts: Shining a Light on Carers, hosted by Carers NSW. On Sunday 17 August ticket holders will partake in a conversation about carers, their role in the community and the workplace, have a delicious afternoon tea and be treated to an intimate, 20 minute piano recital by David. Tickets on sale now at http://carersnsw.eventbrite.com.au.

Carers Week 2014 grant applications

National Carers Week will take place from Sunday 12 – Saturday 18 October this year and National Carers Day Out will be held on Tuesday 14 October. Applications for grants of up to $250 are now being accepted from carer support groups or organisations for events held for carers during Carers Week. Click here for more information.

UK Carers receive greater recognition

The (Care Act 2014) (UK), passed in May 2014, has given carers their strongest rights yet in the UK. Click here for the UK Government fact sheet and here for a briefing by Carers UK.

Carers NSW counselling groups

Talk-Link for male carers in NSW, Mondays from 18 August 2014. Contact 1800 242 636 or nccp.admin@carersnsw.org.au

Running or setting up a carer support group?

Carers NSW is offering free workshops to carer support group coordinators and facilitators. Click here for details or contact the Education & Training Team on (02) 9280 4744 or education@carersnsw.org.au.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Disability
Employment, finances and housing
Health

Aboriginal and Torres Strait Islander carers

Report on impact of Federal Budget for Indigenous programs

The Menzies Centre for Health Policy at the University of Sydney has analysed the Indigenous provisions in the Federal Budget in their report Impact of the 2014-15 Federal Budget on Indigenous Programs and Services. Click here for more information.

CALD carers

Report on aged care in CALD communities

The Australian Institute of Health and Welfare (AIHW) has produced the report Cultural and linguistic diversity measures in aged care to raise awareness that research and data collection methods should accurately reflect the cultural diversity of those from Culturally and Linguistically Diverse (CALD) communities in the aged care data. Click here for more information.

Children, youth and young carers

Young Carer e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or here to subscribe.

Chronic conditions and illnesses

Course for dementia carers helps reduce anxiety

Research presented at the Alzheimer's Association International Conference (AAIC) in the UK has shown the START (STrAtegies for RelaTives) programme reduced caregiver's anxiety and depression for at least two years. The eight-week programme is delivered by psychology graduates and is a cost-effective way to improve the mental health and well-being of carers. Click here for more information.

New resource help for dementia carers

A new resource put together by Care UK helps carers communicate with people with dementia. Listen, talk, connect recognises the need for meaningful conversations that family members and carers should have with anyone living with dementia. Click here for more information.

Disability

Support for families with special needs

Parents and caregivers of a child with a disability or developmental delay aged 2 to 10 years, and professionals working with families are invited to share their story in a survey by the Stepping Stones Triple P Project. Click here for more information and here to access the survey.

Feedback on ADHC behaviour support policy

The Centre for Disability Studies (CDS) invites stakeholders to provide feedback in relation to a person-centred review of the ADHC Behaviour Support Policy and Practice Manual. The manual recognises the importance of the carers role and has referenced it in various aspects. More information and the survey for providing feedback are available here. Submissions are due Wednesday 6 August 2014.

Videos to help access the health system

The NSW Agency for Clinical Innovation (ACI) has produced video resources that can help health professionals improve care for people with intellectual disability. Among other topics, they refer to the importance of communicating with carers. Click here for more information.

Running or setting up a carer support group?

The together program provides opportunities for carer support groups to link with each other and a Regional Assisting Organisation to receive assistance, including some potential small grants to assist in the running cost of the group. Click here for more information.

Employment, finances and housing

McClure review to impact carers

A number of media reports have reflected on the potential impacts of the proposed welfare changes recommended in the McClure review for carers. Click here to view an ABC report and here to read an article in The Conversation.

Focus groups about Powers of Attorney

Researchers from the University of Western Sydney and the Council on the Ageing are looking to investigate any issues experienced with Power of Attorney documents or Financial Management Orders and how these issues could be improved. Click here for more information and here for the Expressions of Interest form.

Inquiry into the social housing tenancy management

The NSW Parliament Public Accounts Committee has begun an inquiry into the current tenancy management for NSW social housing assessing the range and effectiveness of support services provided to tenants of social housing. Submissions are open till Friday 8 August 2014. Click here to read the media release.

Home fire safety audit

The NSW Fire Brigade has launched the online Home Fire Safety Audit to help reduce the occurrence and impact of fire emergency incidents in the community. The audit is interactive and customised for each user in helping them identify fire risks and provides recommendations to minimise these risks. Click here for more information.

LGBTI carers

Research into LGBTI older people with depression

Older LGBTI Australians who have experienced depression and/or anxiety are invited to participate in confidential interviews as part of a project to educate service providers to better understand their strategies for managing depression and anxiety. Click here for more information.

Mental health

Online forum for mental health carers

SANE Australia has launched a video offering carers of people with a mental illness an opportunity to participate in an online community. Click here to watch the video.

New national website launch

Our National Voice is the new website created by Mental Health Carers ARAFMI Australia, giving mental health carers an opportunity to share their personal stories and in the process help other carers on their caring journey. Click here for more information.

New college opens

The NSW Recovery College has opened at the WentWest Learning Centre in Blacktown offering courses for individuals, carers and families living with a mental illness, delivered by Peer Facilitators. Click here for more information.

Resources to support people who have attempted suicide

beyondblue and the Hunter Institute of Mental Health have created new resources to support people who have attempted suicide. They include stories from people who have attempted suicide as well as people who have supported loved ones. The resources also contain suggestions for family and friend carers. Click here to read the media release.

NDIS

Progress report on the implementation of the NDIS released

The Joint Standing Committee on the NDIS has released its first progress report. The report considers the evidence that the committee has gathered from public hearings in the trial sites including the Hunter in April and May 2014. This evidence has provided the committee with a range of views on the Scheme's achievements and challenges in its first nine months of operation. Click here for the full report.

NDIS interim report released

KPMG has released its interim report Review of the optimal approach to transition to the full NDIS. The report examines key issues that have emerged in the NDIS trial sites and the implications of these for the full rollout. Click here for the media release and here for the full report.

NDIS support for people with disability

The NDIS has implemented programs to help Indigenous people with disability and their carers understand and use individual packages effectively. Programs have also been implemented to help people with severe and persistent mental illness and their families and carers understand the choices available to them through the NDIS and build their capacity to participate in planning and manage their support. Click here for more information.

Older people

Home support program changes may affect carers

The Australian Ageing Agenda has raised concerns that carers may be overlooked in the proposed changes to the Commonwealth Support Program (CHSP). As the proposed changes will only deliver basic-level respite, clients with high care needs and their carers will be transitioned out of the system. Click here for more information.

Grants available to support ageing rural Australians

The annual Caring for Ageing Australians (CARA) grants are open to support older people living in rural, regional and remote communities. Click here for more information. Applications close midnight 15 August 2014.

New website helps navigate the aged care system

UnitingCare lifeAssist has launched a new website which helps anyone looking for support within the aged care or disability sectors find out about all options relevant to the individual and their personal circumstances. Click here to view the website.

Technology

Technology helps reduce social isolation

The Australian Ageing Agenda has reported that the use of internet-enabled technologies by aged care providers will allow aged care clients to have greater social interactions with their carers and families. Click here for more information.

Accessible bathrooms 

The National Public Toilet Map, as part of the National Continence Program, has been created to improve quality of life by providing details of toilet facilities across Australia. Click here for more information and here to download the free app. Information about the Master Locksmith Access Key (MLAK), a system that enables people with disability and their carers to access public toilets 24/7, is also available here on the
Spinal Cord Injuries Australia (SCIA) website.

Conferences and forums

International Conference on End of Life: Law, Ethics, Policy and Practice 13-15 Aug 2014, Brisbane.

15th International Mental Health Conference 25-27 Aug 2014, Gold Coast.

23rd National Conference on Incontinence 10-13 Sep 2014, Cairns.

Living My Way: Being Prepared Conference 1-2 Oct 2014, Hobart.

Shaping our future - Respite and Community Care Conference 2014 23-24 Oct 2014, Sydney.

Australian National Carer Conference 16-18 Nov 2014, Gold Coast.

Training and events

Mindfulness Art Therapy Group for Carers, 6 Aug 2014, Katoomba, (02) 4782 5133

Expo-Options for people with a disability and their carers, 14 Aug 2014, Shoalhaven, Bomaderry, (02) 4429 3411

Living a Good Life, 16 Aug 2014, Redfern, 0423 986 386, michelle.donelly@scu.edu.au 

Keys to Developing Meaningful Lives: Developing Community Connections, 20 Aug 2014, West Ryde, 1800 774 764, info@resourcingfamilies.org.au

A New Intervention for Families and Carers, Staying Connected When Emotions Run High 26 Aug 2014, Arncliffe, jgoodman@sesml.org.au

Getting the Best from the NDIS 28-29 Aug 2014, Newcastle, info@nswcid.org.au

Alzheimer's Australia training for family and friends Various dates 2014, various locations, (02) 9805 0100 for Sydney, (02) 4962 7000 for Hunter, education@alzheimers.org.au.

An introduction to Working With Individuals Who have Self-Destructive Behaviour Various dates 2014, various locations, safeinoz@wideband.net.au

Cooking Group for Male Carers, Various dates 2014, Warilla, (02) 4232 0138, gabriela.martinez@sesiahs.health.nsw.gov.au

Early Days workshops for parents of children with Autism Various dates 2014, various locations, (02) 8977 8377, customerservice@autismspectrum.org.au.

Family and Carer Mental Health Program - Training and Education Various dates 2014, Northern Sydney, Western Sydney, Nepean-Blue Mountains, South-Western Sydney, Southern NSW and Murrumbidgee, Hunter New England, (02) 4322 1855.

Learning Links Various dates 2014, various locations, (02) 8568 8200

Healthy Steps, Alzheimer’s Australia NSW events for carers Various dates 2014, various locations in Sutherland and St George area, (02) 9531 1928, stgeorgesutherland@alzheimers.org.au

My Choice Matters - 'Getting Ready' and 'Get More Skills' workshops on individualised funding Various dates 2014, various locations, (02) 9211 2605, info@mychoicematters.org.au.

Paraquad public courses on caring for someone with a spinal injury Various dates 2014, various locations, (02) 8741 5662, training@paraquad.org.au.

Pathways to Leadership Various dates, Cromer, www.jeder.com.au
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