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Welcome to the 
October 2013 eBulletin


The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer-related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

If you are having trouble viewing the eBulletin in this format, click here to read it in your web browser.

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Carers Week 2013


National Carers Week will take place from Sunday 13 to Saturday 19 October 2013. Carers Week gives us an opportunity to recognise the amazing contribution that carers make to our community.

To find out more, to register an event, or to order resources, visit the Carers NSW and Carers Australia websites.

Carers Day Out, 15 October

Take a break and join us in celebrating Carers Day Out on Tuesday 15 October from 8 am to 2 pm in Martin Place, Sydney. It is a FREE event for carers and the general public, and registration is not required.

Carers Day Out will feature:
  • free health and wellbeing workshops,
  • free pampering,
  • live on-stage performances,
  • information stalls with resources, and
  • a free sausage sizzle!
Click here to find out more.

Other events throughout NSW

The NSW Department of Family and Community Services and Carers NSW have provided a donation to 400 carer groups throughout NSW to host events during Carers Week.

Click here to search for events by region or download the full calendar.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Disability
DisabilityCare Australia / NDIS

Aboriginal and Torres Strait Islander carers

Aboriginal carers discuss access to disability services

A recent article in the journal Health Services Research explores the perspectives of carers and service providers on access to services for Aboriginal children with disability. Click here to read the article.

New mental health app for young Indigenous Australians

The Black Dog Institute has designed the app iBobbly to address suicidal thinking, depression, distress and impulsivity in Indigenous communities. Click here to find out more.

CALD carers

Carers Australia fact sheets available in multiple languages

The following Carers Australia fact sheets are now available in multiple community languages. Click on the languages below to view the fact sheets.

Are you a young carer?
English  Arabic  Farsi  Greek  Italian  Macedonian  Serbian  Simplified Chinese  Traditional Chinese  Spanish  Turkish  Vietnamese

Carer Advisory Service
English  Arabic  Croatian  Dinka  Greek  Hindi  Khmer  Simplified Chinese  Traditional Chinese  Spanish  Tagalog  Vietnamese

Mental Health Month initiatives for CALD communities

October is Mental Health Month, and the Mental Health Association of NSW is partnering with the Transcultural Mental Health Centre to coordinate a number of initiatives targeting culturally and linguistically diverse communities. Click here for more information.

Dementia Awareness Week videos available in community languages

Videos from Dementia Awareness Week, 16-22 September 2013, are now available online in 16 different languages. Click here to view the videos on the Alzheimer's Australia YouTube channel.

Children, youth and young carers

Become a Young Carer Champion!

As part of Carers Week 2013, the Carers NSW Young Carer program is running the Who Cares? We Do! campaign. Teachers, service providers, family members and young carers are invited to become Young Carer Champions by displaying free young carer resources where they work or learn. Click here to find out more, or follow the steps below:
1. Order a free Young Carers Pack - yc@carersnsw.org.au 1800 242 636.

2. Set up a Young Carer Display Area in your school, uni or organisation.

3. Send a photo to yc@carersnsw.org.au to put on our website and Facebook.

Moderated chat room for sibling carers

Starlight Children's Foundation has developed a fully moderated chat room for young people aged 10-20 years living with a serious illness, chronic health condition or disability, and their siblings. Click here to read the flyer, or here to go directly to the website.

Research on young adult carers in higher education

A PhD candidate at Griffith University is seeking carers studying at Australian universities to participate in research on the impact of caring on their educational aspirations and future life prospects. Click here to participate or find out more.

Survey for children of parents with a mental illness

Researchers from Monash University are seeking children aged 8-17 who are caring for a parent with a mental illness to complete an online survey. Click here to participate or find out more.

Chronic conditions and illnesses

Research demonstrates personal growth among stroke recovery carers

Research in the UK has found that, after the initial shock of a family member experiencing a stroke, carers can experience personal growth that adds value to their lives. Click here for more information.

New Stroke Recovery Carer's Handbook

The Stroke Recovery Carer's Handbook was written by the husband of a stroke survivor and provides practical information and advice for carers. Click here for more information.

UK report highlights inadequate support for dementia carers

A report commissioned by the Carers Trust has found that carers of people with dementia in the UK do not receive adequate information and advice. Click here for more information.

Stronger carers: supporting carers of people living with dementia

Stronger Carers is a free 6-10 week in-home course designed to empower carers of people living with dementia. Click here for more information.

Research on cancer and fertility

Researchers at the University of Western Sydney (UWS) are conducting a study on people's experiences and views about fertility following a cancer diagnosis. Click here for more information or contact 1800 192 002 or cancerandfertility@uws.edu.au.

Disability

Free minor maintenance service for carers of children with disability

Ryde/Hunters Hill Home Modification & Maintenance Service is promoting an offer of free minor maintenance service to carers of children aged 0-18 with disability living in Ryde or Hunters Hill LGA. Click here to read the flyer and here to access the referral form.

School issues toolkit for parents of children with disability

Disability Advocacy NSW has published A Parent's Toolkit: School issues for students with disabilities. It explores enrolment options, issues such as bullying and discipline, and self-advocacy strategies for parents. Click here to download the toolkit.

Online resource on therapy for children with Autism Spectrum Disorder

TherapyConnect is a website that aims to help families understand therapy options for their children with Austism Spectrum Disorder (ASD). Click here to view the resource.

New books recount carers' stories about brain injuries and disorders

Two new books present the personal stories of carers and raise awareness about the impacts of brain injuries and disorders on carers.
  • The Battle for the Injured Brain by Ted Freeman explores the experiences of young Australians with catastrophic brain injuries and their carers in the medical system. Click here to download a free copy.
     
  • Eyes of Silence by Doug Spahn recounts the author's journey to raise awareness about brain diseases and their impacts on families. Click here for more information.

DisabilityCare / NDIS

Name changed back to NDIS

The Coalition Government has officially changed the name of DisabilityCare back to the National Disability Insurance Scheme (NDIS), with the agency to be referred to as the National Disability Insurance Agency (NDIA). Click here for more information.

Report on families, information and decision making and the NDIS

Researchers at the University of Western Sydney (UWS) have published findings on carer information needs and decision making on individualised funding in preparation for the NDIS. Click here to read the report.

External review mechanism for the NDIS

If participants disagree with a decision made in an internal review by the National Disability Insurance Agency (NDIA), they can now apply to the Administrative Appeals Tribunal (AAT) for an independent external review. Click here for more information.

NDIS News, September 2013

Click here to read the latest edition of the renamed NDIS news.

Employment, finances and housing

Engaging men in flexible working arrangements

The right to request flexible working arrangements was made available to carers on 1 July 2013. This report by the Workplace Gender Equality Agency discusses the low general uptake of flexible working arrangements by men, and encourages workplaces to facilitate greater engagement from male employees. Click here to read the paper.

Improving the affordability of energy for people on low incomes

This report by the Australian Council of Social Service (ACOSS) examines the effects of rising energy costs on people on low incomes, related barriers to energy efficiency and possible policy solutions. Click here to read the report.

Rent increase for public housing occupants not eligible for subsidy

People living in public housing who are not eligible for rent subsidy due to their income may now be required to pay market rent for their property, which may result in significant increases in rent for some households. Click here to read the media release.

Health

Inquest highlights the important role carers can play in the health system

An inquest into the death of an 89 year old NSW woman from complications relating to an undiagnosed broken hip has found that the absence of family members to advocate for her may have contributed to the poor outcome. Click here to read the article.

Framework for Women's Health in NSW

The Framework for Women's Health 2013 highlights women's health needs, including the health needs of women with caring responsibilities, and puts forward evidence for cross-sector collaboration to deliver appropriate services. Click here to read the Framework.

Research study on the health and wellbeing of carers

The University of New England is conducting a study on the impact of caregiving and health and wellbeing of carers in rural and regional areas. Click here for more information.

LGBTI carers

Survey of LGBTI older people in NSW

People aged 50 years and over who identify as lesbian, gay, bisexual, trans or intersex (LGBTI) living in NSW are invited to participate in a survey about ageing, health and wellbeing. Click here for more information.

Research on the mental health needs of young people

From blues to rainbows is a national research project on the mental health needs of gender diverse, trans and intersex young people. The research team are seeking participants in an online survey. Click here for more information.

Mental health

Suicide prevention and recovery guide

Sane Australia has published a guide on suicide prevention and recovery aimed at mental health professionals which includes a section on working cooperatively with family and friends. Click here to read the guide.

Website helps parents to protect children's mental health

Parenting Strategies provides free advice for parents to help them reduce the impact of depression and anxiety on teenagers. Click here to view the website.

World Mental Health Day - 10 October

Thursday 10 October 2013 is World Mental Health Day. This year's theme is mental health and older people. Click here to download the report published by the World Federation for Mental Health, or click here to go to the Australian website for World Mental Health Day.

Older people

Innovative housing solutions for older parent carers

Five organisations in Queensland are trialling innovative living arrangements for people with disability and their older parent carers. Click here to read the media release.

Paper on respite in the Commonwealth Home Support Program

The National Aged Care Alliance (NACA) has published a discussion paper on the Provision of respite in the Commonwealth Home Support Program. It recommends a flexible, responsive respite and carer support system. Click here to read the paper.

Recognising grandparent carers

Researchers at the Social Policy Research Centre (SPRC) have published a report on recognising, respecting and rewarding grandparent carers. Click here to read the report.

Conferences and forums

Succeeding with adult ADHD annual conference 12 Oct 2013, Sydney.

International Conference of the World Federation of the Deaf 16-18 Oct 2013, Sydney.

Families and the management of older people's assets 17 Oct 2013, Melbourne and national webinar.

Physical Disability Council of NSW Community Consulation, 18 Oct 2013, Katoomba; 25 Nov 2013, Penrith.

Australian Men's Shed Association National Conference 27-29 Oct 2013, Ballarat.

National Disability Advocacy Conference 31 Oct-1 Nov 2013, Brisbane.

Transcultural Mental Health & Australasian Refugee Health Conference 31 Oct-1 Nov 2013, Perth.

Australian Society for Intellectual Disability Conference: 'Our time' 6-8 Nov 2013, Sydney.

Federation of Ethnic Communities' Councils of Australia (FECCA) Conference 7-8 Nov 2013, Gold Coast.

Living well longer - research in ageing in the Illawarra 8 Nov 2013, Wollongong.

World Hearing Voices Congress 20-22 Nov 2013, Melbourne.

Linking Up for Kids 14-15 Apr 2014, Sydney.

Helping Families Change Conference 19-21 February 2014, Sydney.

Joint World Conference on Social Work, Education and Social Development 9-12 July 2014, Melbourne.

Australian Institute of Family Studies Conference 30 Jul-1 Aug 2014, Melbourne.

Training and events

Talk-Link group counselling for carers, 1800 242 636 or nccp.admin@carersnsw.org.au:
* Carer Wellbeing Groups:
    - all carers, weekly from 29 Oct 2013
    - carers of people with acquired brain injury, weekly from 29 Oct 2013
* Grief and Loss Group - former carers, weekly from 31 Oct 2013

Creative Mindfulness Group for carers in Sydney, weekly from 31 Oct 2013, 1800 242 636 or nccp.admin@carersnsw.org.au.

Carer Anxiety Management Group Various dates 2013, Penshurst, (02) 9580 0688.

Caring for Carers free information forums Various dates 2013, Concord, (02) 9911 6210.

Family and carers mental health program Various dates 2013, Nepean, Blue Mountains and Western Sydney, (02) 8842 8289.

Family carer dementia education Various dates 2013, various locations, (02) 9805 0100, nsw.education@alzheimers.org.au.

My Choice Matters 'Getting started' workshops Various dates 2013, various locations, 1800 144 653, info@mychoicematters.org.au.

Yaraandoo respite retreats for mental health carers Various dates 2013, Northern NSW, (02) 6655 6223.

Workshop on improving the health and wellbeing of Aboriginal children, youth and families 10 Oct 2013, Sydney.

Free expo for carers 10 Oct 2013, Newcastle, (02) 4921 4895,
Educare-Admin@hnehealth.nsw.gov.au.

Establishing a user led Disability Support Organisation 16 Oct 2013, Glebe, (02) 9552 1606, admin@pdcnsw.org.au.

Transition for carers forum and expo 18 Oct 2013, Westmead, (02) 9845 3590, carersupport@chw.edu.au.

Girls and women with Asperger's syndrome workshop 19 Oct 2013, Campbelltown, (07) 3844 9466.

Mental Health First Aid course in Arabic 30 & 31 Oct 2013, North Parramatta, (02) 8842 8289, yamam.abuzinadah@ucmh.org.au.

SibsMattters workshop for siblings of children with special needs 2 Nov 2013, Wollongong, (02) 4254 9332 or kath.walsh@catholiccare.woll.catholic.org.au

Partners in Depression course 7 Nov-12 Dec 2013, Lithgow, (02) 8842 8289.

Setting boundaries and teaching cooperation for children demonstrating challenging behaviour 12 Nov 2013, Ashfield, (02) 9797 0406, info@abinsw.org.au.

Challenging behaviours collaboratively workshops 6 Feb-27 Mar 2014, Wollondilly, (02) 4683 2776.
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