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Welcome to the 
September 2014 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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NSW Carers Strategy

The NSW government has launched the NSW Carers Strategy 2014-2019, a five year plan plan to improve the position of carers in NSW. The commitments in the Strategy are based on practical actions and approaches that will make a difference in the lives of carers in the five focus areas of Employment and education; Carer health and wellbeing; Information and community awareness; Carer engagement and Improving the evidence base. Click here for more information.

National Carer Awards 2014

The inaugural National Carer Awards have been established to recognise the significant contribution of carers in the community. Nominations close 21 September 2014. Click here for more information.

Carers NSW telephone counselling groups

Talk-Link for carers of a person with Motor Neurone Disease (MND), Tuesdays from 23 November 2014. Contact 1800 242 636.
Eight Stage Healing Process for carers of a person with a mental illness, Mondays from 24 November 2014. Contact Rob on (07) 5524 8711 or 1800 242 636.

Running or setting up a carer support group?

Carers NSW is offering free workshops to carer support group coordinators and facilitators. Click here for details or contact the Education & Training Team on (02) 9280 4744 or

New UK research on male carers

The Carers Trust (UK) has published new research dispelling the myth that caring is solely a female issue. The report 'Husband, Dad, Son, Carer?'  looks at the experiences and needs of male carers and aims to increase awareness. Click here for more information.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Campaign aims to tackle subtle racism

A new beyondblue campaign addresses the devastating psychological effects of subtle racism on Indigenous Australians. Click here for more information.

Children, youth and young carers

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

New cookbook aims to help people with dementia

Don't give me eggs that bounce: 118 cracking recipes for people with Alzheimer's is a new cookbook that aims to cater to the wide range of dietary needs of older people, people with dementia and those with eating difficulties. A special chapter dedicated to carers offers time saving techniques and practical knowledge. Click here for more information.


New disability legislation

The NSW Disability Inclusion Act 2014 recently passed through Parliament. The Act replaces the NSW Disability Services Act 1993 and brings disability legislation in line with person centred approaches and the transition to the NDIS. Click here for more information.

Calls for research participants

  • Researchers at Deakin University are inviting carers of people with intellectual disability to take part in an interview about their experience in using health care services for the person(s) they care for. For more information click here or contact Jeretine Tan at or on (03) 9251 7292.
  • Carers of children and young adults on the autism spectrum are invited to participate in a national survey by Autism Awareness Australia in preparation for the rollout of the NDIS. Click here to complete the survey.
  • The Centre for Disability Studies is running a study involving a 6-week support group for parents of children with intellectual disability (5-12 years old) who are experiencing stress. Click here for further information.

Seeding grants for inclusion

Macarthur Early Childhood Intervention Service (MECIS) is facilitating grants to assist children with a delay in two or more areas of development or a diagnosed disability to participate in their local community in mainstream leisure, sporting and recreational activities. Click here for more information and here for the application form.

Running or setting up a carer support group?

The together program provides opportunities for carer support groups to link with each other and a Regional Assisting Organisation to receive assistance, including some potential small grants to assist in the running cost of the group. Click here for more information.

Employment, finances and housing

Carers and home modifications

Caring for the Carer: Home design and modification for carers of young people with disability reviews the literature relating to housing, home modifications and carers of people with disability. It explores the benefits that home modifications can offer carers and the carer-centred considerations home modification professionals need to take into account. Click here to read the paper.


Survey to increase health consumer engagement

Health Consumers NSW (HCNSW) are conducting a survey of consumers, health sector carer representatives and health professionals aimed at increasing consumer and carer engagement. The results will be used to develop new resources. Click here for more information.

Mental health

Living with schizophrenia

The World Federation for Mental Health (WFMH) has produced the booklet Living with Schizophrenia, also the theme for the World Mental Health Day 2014 campaign. The booklet acknowledges the importance of carers in supporting those living with schizophrenia and propose various intervention strategies. Click here to read the booklet.


NDIS resources on Carers NSW website

The Carers NSW website now has a page with a range of links to useful information and resources about the National Disability Insurance Scheme (NDIS) published by the National Disability Insurance Agency (NDIA) and NSW Government. The list is intended to link carers with information that will help them to prepare for and engage with the NDIS. Click here to view the page.

NDIS progress report

The Joint Standing Committee of the NDIS has released a progress report on the scheme based on evidence from participants, carers and service providers in the four initial trial sites, including NSW. Click here to read the report.

Older people

COTA launches campaign to protect pension

COTA Australia has launched its Hands Off the Pension campaign in response to proposed changes in the Federal Budget affecting older Australians. Click here to read the media release.

Help after hospital stay

The Australian Institute of Health and Welfare (AIHW) has released a report indicating that the Transition Care Program has helped many older people return successfully to community living. Click here for the report.


New website launch

The new NRMA Living Well Navigator website contains information about employment for older workers, transport and home care services, and includes a number of articles about caring and carers. Click here to view the website.

New mobile apps

  • A new mobile app launched by the Association for Children with a Disability (ACD) NSW helps people of all ages with disability and their families access information about venues and facilities in the City of Sydney. Click here for more information.
  • Annacares is an app that acts as a personal assistant for clients of community care service providers. Click here for more information.

Conferences and forums

23rd National Conference on Incontinence 10-13 Sep 2014, Cairns.

Living My Way: Being Prepared Conference 1-2 Oct 2014, Hobart.

Shaping our future - Respite and Community Care Conference 2014 23-24 Oct 2014, Sydney.

Australian National Carer Conference 16-18 Nov 2014, Gold Coast.

The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.

Training and events

Wesley LifeForce Suicide Prevention, 10 Sep 2014, Gilgandra, 1800 100 024.

Dementia Awareness Morning Tea, 18 Sep 2014, Riverwood, (02) 9580 0688.

Grandparents & the Law Forum, 23 Sep 2014, Sydney. COTA NSW.

The 4D's Forum, 10 Oct 2014, Sydney, (02) 9464 4630,

Family Carer Education (Dementia), 15 Oct 2014, North Ryde, (02) 9805 0100,

Courage to Care retreat for caregivers, 13-16 Nov 2014, Bungendore, 0488 402 210,

An introduction to Working With Individuals Who have Self-Destructive Behaviour. Various dates 2014, various locations,

Cooking Group for Male Carers. Various dates 2014, Warilla, (02) 4232 0138,

Early Days workshops for parents of children with Autism. Various dates 2014, various locations, (02) 8977 8377,

Family and Carer Mental Health Program - Training and Education. Various dates 2014, Northern Sydney, Western Sydney, Nepean-Blue Mountains, South-Western Sydney, Southern NSW and Murrumbidgee, Hunter New England, (02) 4322 1855.

Learning Links. Various dates 2014, various locations, (02) 8568 8200.

Healthy Steps, Alzheimer’s Australia NSW events for carers, various dates 2014, various locations in Sutherland and St George area, (02) 9531 1928,

My Choice Matters - 'Getting Ready' and 'Get More Skills' workshops on individualised funding. Various dates 2014, various locations, (02) 9211 2605,

Paraquad public courses on caring for someone with a spinal injury. Various dates 2014, various locations, (02) 8741 5662,

Pathways to Leadership. Various dates 2014, Cromer,

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