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Welcome to the 
April 2015 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Special General Meeting of Carers NSW Incorporated to be held at Sydney Masonic Centre on Monday 27 April 2015 at 2pm

On 27 April 2015 Carers NSW will be holding a Special General Meeting. Members will be asked to consider and approve a special resolution to change the legal status of Carers NSW from an incorporated association under the Associations Incorporation Act 2009 (NSW) to a company limited by guarantee under the Corporations Act 2001 (Cth).
Members will have received papers with their recent Carers News.

Carers NSW Biennial Conference

Chris Bath, host of Seven Network’s public affairs juggernaut Sunday Night and Seven News anchor, has been confirmed to facilitate a panel of carers at the Carers NSW 2015 Biennial Conference ‘Let’s revolutionise caring: inclusion, innovation, diversity’.
Chris, who has become a household name as a TV personality and reporter, has also had a close experience of the caring role. The carer panel will feature carers of diverse backgrounds and caring experiences providing their insights and perspectives on ‘Starting the revolution….’
NSW Minister for Ageing and Disability Services, The Hon John Ajaka MLC, to officially open the Carers NSW 2015 Biennial Conference on Thursday 21 May 2015.
For Registration Information click here.

Carers NSW telephone counselling groups

Running or setting up a carer support group?

Carers NSW is offering free workshops for Click above for details or contact the Education & Training Team on (02) 9280 4744 or

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here and here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

NDIS launch in Western Sydney

Aboriginal Disability Network NSW (ADNNSW) has welcomed the launch of the National Disability Insurance Scheme (NDIS) for children in the Western Sydney region as it will offer more choice and control for people with disability. Click here for more information.

FPDN welcomes the NDIS

The First Peoples Disability Network (FPDN) has welcomed the implementation of the National Disability Insurance Scheme (NDIS) in providing Aboriginal and Torres Strait Islander people greater access to disability support. Click here for more information.

CALD carers

FECCA 2015 Access and Equity Survey

The Federation of Ethnic Communities’ Councils of Australia (FECCA) is the peak body representing people from culturally and linguistically diverse backgrounds in Australia, including migrants, refugees and international students. Each year, FECCA undertakes a survey to learn about the experiences of migrants, refugees and international students in accessing and using Australian government programs and services. Your feedback through this survey will help FECCA to understand what areas of service delivery need to be improved, and what recommendations can be given to government to make this happen. Click here for the survey.

FECCA report on older people from CALD backgrounds

FECCA has produced the report Review of Australian Research on Older People from Culturally and Linguistically Diverse Backgrounds aiming to improve aged care practices for older people from CALD (Culturally and Linguistically Diverse) backgrounds. Click here to read the report.

Children, youth and young carers

Bursaries to help young carers

The Federal Government has announced it will provide an additional 150 bursaries as part of their Young Carer Bursary Programme. Click here to read the media release.

COPMI national initiative

A national initiative by Children of Parents with a Mental Illness (COPMI) has published a letter by a young carer offering great insights about the impact a parent's illness can have on a child, including ideas about what can help a child through difficult times. Click here to read the letter.

Young carers share their caring experiences

  • A former young carer shares how caring for her father alone has left feeling sad and angry. Click here to read her story.
  • A recent story published in the Daily Life (USA) looks at how a young carer helped look after her sister. Click here to read her story.

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

Focus on dementia carers (UK)

An article recently published in The Telegraph (UK) has reported the UK Government has pledged to give carers of people with dementia much more support including respite and emotional and psychological support. Click here to read the article.

Videos to help health professionals

The Agency for Clinical Innovation (ACI) with the Aged Health Network have produced video resources that can help health professionals support carers of people with dementia or delirium in hospitals. Click here and here to view the videos.


Stepping Stones Triple P Project

The Stepping Stones Triple P Project is in the final planning stages for the roll-out of free parenting support for parents of children aged 2 to 12. Click here for more information.

Survey on education experiences

Children with Disability (CDA) is conducting a survey about the present education experiences of students with disability and their families. Click here for the survey.

New trolleys make shopping easier

A major supermarket has introduced new trolleys for kids with disability to help parents and carers of children place all their groceries in the trolley whilst having their child seated safely. Click here for more information.

SCIA seeks volunteers

Spinal Cord Injuries Australia (SCIA) is updating the National Public Toilet Map and is seeking volunteers to help update the map with accessible toilets across NSW. Click here for more information.

Parenting a child with autism

April is Autism Awareness month and a recent article published on The Drum ABC highlights the challenges of parenting a child with autism. Click here to read the article.

ALNSW releases evaluation reports

Ability Links NSW (ALNSW) has recently released the following evaluation reports:
  • Ability Links NSW Cost Benefit Analysis Report.
  • Evaluation of Ability Links NSW and Early Links NSW: Thematic Analysis.
 It includes several references to carers. Click here for more information. 

Running or setting up a support group for carers of people with disability?

The together program provides opportunities for disability carer support groups to link with each other, Carers NSW and a Regional Assisting Organisation to receive support. Support can include education and training and small grants to assist in the running costs of the group. Click here for more information.

Employment, finances and housing

Carers need to have a say about retirement incomes

An article published in The Conversation has drawn attention to the need for carers to be part of the retirement incomes debate. Click here to read the article.


Campaign launch

Tell someone who cares is a national campaign to be launched by the Continence Foundation of Australia aiming to draw attention to the challenges of carers of people with incontinence. Click here for more information.

LGBTI carers

Report advocates stronger community participation

A new report A Closer Look at Private Lives 2 published by beyondblue and The Movember Foundation explores psychological distress and drug use among lesbian, gay, bisexual and transgender (LGBT) Australians, and advocates for greater community participation to reduce the risk of poor mental health conditions of LGBT Australians. Click here for more information.

Mental health

Evaluation of Partners in Recovery

The Partners in Recovery (PIR) initiative is currently being evaluated and there is an online survey for consumers and carers to fill out. Click here for more information and here to access the survey.

Report on family intervention programs

Children of Parents with a Mental Illness (COPMI) has published their latest Gateways to Evidence that Matters (GEMS) related to their Family Psycho-Educational (FPE) interventions. Click here for more information.

Grieve Writing Competition 2015

Carers are invited to send in entries to the Hunters Writers Centre for their Grieve Writing Competition 2015. Click here for more information.


NDIS Quality and Safeguarding framework

The NDIS is welcoming submissions on their draft Quality and Safeguarding framework. Click here for more information.

Carers NSW NDIS e-Newsletter

Click here for the latest edition of Carers NSW NDIS Update, or click here to subscribe.

Older people

Expression of interest opportunity for pilot project 

CommunityWest Inc. and COTA (Australia) are seeking expressions of interest for organisations to be involved in co-producing consumer focused aged care services. Click here for more information.

Support plan to help choose service providers

Home Care Today has put together various checklists to help in choosing the appropriate services. Click here for more information.


New online resource for people with disability

The Federal Government has launched the NDAP Provider Finder, an online resource to help people with disability, their carers and families find the right person to help them access the supports they need. Click here for more details.

Conferences and forums

Cultivating Inclusive Communities in Consumer Directed Care Markets, 4 May 2015, Sydney.
The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.
At Home with Eating Disorders Conference (for carers), 29-30 May 2015, Melbourne.
International Mental Health Conference, 12-14 Aug 2015, Surfers Paradise.
Australian Social Policy Conference: Rights and entitlements in times of austerity, 28-30 Sep 2015, Sydney.
NDS Disability & Diversity national conference, 8-9 Oct. 2015, Sydney.

Training and events

Planning to be ready for the NDIS, Various dates, various locations,

NDIS webinar: Tips for families and carers, 29 Apr 2015, 1800 800 110

Is it Behaviour OR is it Communication? 29 Apr 2015, Sydney, 1800 620 588.

Inner West NDIS Forum 29 Apr 2015, Marrickville, 0428 984 569.

NDIS Information session, 30 Apr 2015, Coffs Harbour, (02) 6648 4078.

Invitation to Consultations about a Quality and Safeguarding System for the NDIS, Various dates, various locations.

Carers Gala Dinner, 1 May 2015, Sydney, 1800 052 222.

Carers' Big Day Out 2015, 20 May 2015, Sydney, (02) 8405 4444

Live.Love.Be. 12-29 Jun 2015,

Carer Information Sessions, Various dates 2015, Kogarah, (02) 9113 2494.

Connecting with Carers Education Groups, MH carers, Various dates 2015, Wollongong, (02) 4229 7254.

Family Carer Education, dementia carers, Various dates 2015, North Ryde, (02) 9805 0100,

Family and Carer Mental Health Program - Training and Education Various dates 2015, Western Sydney (02) 8599 4880, North Sydney (02) 9481 0177, Central Coast (02) 4322 1855, South Western Sydney (02) 9757 4293.

Professional Dementia Courses, Various dates 2015, North Ryde, (02) 9805 0100,

Early Days workshops for parents of children with Autism. Various dates 2015, various locations, (02) 8977 8377,

Pathways to Leadership, Various dates 2015, Cromer,
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