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Welcome to the 
December 2013 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer-related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Carers Masterclass: Tamworth and Coffs Harbour

Carers NSW is running Carers Masterclasses in Tamworth and Coffs Harbour with cooking demonstrations from well-known chefs and education on healthly living and self-care. Click on the links below or call 1800 242 636 for more information.

Tamworth Carers Masterclass - 18 Dec 2013, Tamworth Community Centre.

Coffs Harbour Carers Masterclass - 14 Jan 2014, Coffs Harbour Showground.

Carers NSW counselling groups for 2014 

A number of new carer counselling groups are already taking registrations for 2014. For more information or to register contact 1800 242 636 or

Carer Wellbeing: Talk-Link
Talk-Link is a six-week therapeutic group program facilitated over the telephone by a professional counsellor. The following Talk-Link groups are currently taking registrations:
* Talk-Link for carers in NSW, Tuesdays from 7 Jan 2014.
* Talk-Link for carers of someone with dementia, Thursdays from 9 Jan 2014.
* Talk-Link for carers of someone with a mental illness, Thursdays from 9 Jan 2014.
* Talk-Link for male carers in NSW, Tuesdays from 21 Jan 2014.
Carer Wellbeing Group, Sydney
A six-week therapeutic group program with experienced carer counsellors, Tuesdays from 7 Jan 2014, Sydney.

'Journaling' the Journey, Sydney
A six-week group journal program, Thursdays from 9 Jan 2014, Sydney.

Eight Stage Healing Process for carers of someone with mental illness, Coffs Harbour
A nine-week carer support course, Tuesdays from 28 Jan 2014, Coffs Harbour.

Carers NSW pre-budget submission 2014-15

The Carers NSW pre-budget submission for 2014-15 entitled Stronger Carers, Stronger Communities is now published on our website. It makes 23 recommendations to the NSW Government regarding the NSW Carers Strategy, person centred approaches, young carers, working carers, health services and transport. Click here to read the submission.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Preparing Aboriginal and Torres Strait Islander Australians with ABI for the NDIS

Researchers from James Cook University and The Cairns Institute have published a report on engaging and assessing Aboriginal and Torres Strait Islander persons with acquired brain injury (ABI) to aid their transition to the NDIS. Click here to download the report.

What works to overcome Indigenous disadvantage

The Closing the Gap Clearinghouse has released a report outlining key learnings and gaps in the evidence around Indigenous disadvantage. Click here to read the report.

CALD carers

Healthy ageing in diverse Australia

The Federation of Ethnic Communities' Councils of Australia (FECCA) has released a new issue of Australian Mosaic exploring the theme of Healthy Ageing in Diverse Australia. Click here to download the publication or read it online.

Survey on CALD access to government services

FECCA is conducting their annual survey on access and equity in relation to government services among CALD populations. Click here to complete the survey.

Greek caring journeys project report

This longitudinal study of elderly Greek carers was conducted by University of Western Sydney, University of New South Wales, South Eastern Sydney Local Health District and the St George Migrant Resource Centre. Click here for more information.

Children, youth and young carers

Support for young mothers with a mental illness

The NSW Minister for Mental Health has announced additional support for young mothers with a mental illness to enable their children to stay with them while they receive treatment in the community. Click here to read the media release.

Counselling for young cancer carers

CanTeen has received additional funding to expand its free counselling service to more young people who are living with cancer or whose family member has received a cancer diagnosis. Click here to read the media release.

Young Carer e-Newsletter

Click here to read the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

A better future for people living with Alzheimer's

Alzheimer's Australia ran a roundtable in May 2013 on collaborating for a better future for Australians living with Alzheimer's. The report has recently been published and includes a section on the carer experience. Click here to read the report.

Living with dementia in regional NSW: discussion paper

Alzheimer's Australia has published a discussion paper on the challenges faced by people with dementia, carers and service providers in regional and rural NSW. Click here to read the report.

A person centred approach to dementia care

A new book by Helen Sanderson Associates provides a practical guide on delivering personalised services and support to people with dementia. Click here for more information.

Support for carers of people with incontinence

Congratulations to Jane McCartan on being awarded the Continence Foundation of Australia's Carer of the Year award for 2013. Click here to read about Jane's experiences as a carer. The Continence Foundation offers a number of supports to carers looking after someone with incontinence including a national hotline and an online forum. Click here for more information.

Planning ahead tools for families and carers

The NSW Government campaign Get it in black & white provides information and tools for families and carers on planning ahead for legal, health and financial decisions. Click here to view the website.


The next phase in person centred disability reform

Ageing, Disability and Home Care (ADHC) has announced Ready Together, the continuation of the Stronger Together 2 reforms for people with disability, their families and carers in NSW. Click here for more information.

Review of disability and Commonwealth laws

The Australian Law Reform Commission is seeking submissions on its issues paper Equality, Capacity and Disability in Commonwealth Laws. Click here to read the issues paper and for information on making a submission.

Report on maximising life choices of people with a spinal cord injury

Spinal Cord Injuries Australia and the Social Policy Research Centre at the University of New South Wales have produced a report entitled Research into Maximising Life Choices of People with a Spinal Cord Injury. The importance of carers was highlighted in the research. Click here to download the report.

Website for carers of children with disabilities is a website run by carers for carers and provides an opportunity to share information about caring for a child with disability. Click here to view the website.

Employment, finances and housing

Carers and poverty in Australia

The Australian Council of Social Service (ACOSS) has published the third edition of its Poverty in Australia 2012 report. It includes findings on the experiences of people receiving Carer Payment. Click here to read the report.

Female carers have lower labour force participation

The COAG Reform Council report Tracking equity: Comparing outcomes for women and girls across Australia has a chapter on caring responsibilities which reports, among other findings, on the labour force participation of female carers. Click here to read the report.

Hard to get a break in the Australian workforce

A new paper by the Australia Institute explores the struggles Australian workers have in achieving a healthy work-life balance in relation to hours, leave and barriers to re-entering the workforce. Click here to download the report.

UK report on supporting carers to work

A recent report from the UK outlines the findings and recommendations of the Employers for Carers and Department of Health Task and Finish Group, which was set up to explore how to support carers to combine work and caring responsibilities. Click here to read the final report.


Health in Australia: a quick guide

This guide by the Parliamentary Library provides a simple summary of how the health system works in Australia. Click here to read the document.

New alliance to address complex needs

The newly formed National Complex Needs Alliance draws together representatives from health and community sector organisations to tackle service issues faced by people with complex needs. Click here for more information.

New online health resource

The Mid North Coast Local Health District has developed Your Health Link, a new website with information about health that includes pages specifically for carers. Click here to view the website.

Innovative health literacy project in Victoria

OPtimising HEalth LIterAcy, or Ophelia, is an innovative Victorian project that uses a questionnaire to measure a patient's ability to engage in their health care. Click here for more information.

LGBTI carers

New resource for families of young same-sex attracted, bisexual or gender diverse people

beyondblue has developed a free e-book offering practical advice and guidance to families on how to support young same-sex attracted, bisexual or gender diverse family members. Click here to view the resource.

Mental health

New program for carers of people with a mental illness

Carers NSW has a new program for carers of people with a mental illness in the Hunter area and Randwick / Botany Bay. Mental Health Respite: Carer Support provides carers of people with a mental illness with one on one support and access to counselling, education, respite and opportunities to take a break. Call 1800 242 636 for more information.

Generational change for Australia's mental health system

beyondblue and Medibank Health Solutions convened a workshop in August 2013 to discuss reform in the mental health system. The recently published report highlights the importance of choice and control for individuals, their families and carers. Click here to read the report.

2013 National Report Card on mental health

The National Mental Health Commission has published A Contributing Life: the 2013 National Report Card on Mental Health and Suicide Prevention, which includes a number of carer stories. Click here to download the report.

Call for mental health leaders

The National Mental Health Commission is seeking nominations of Australians with lived experience of mental health issues, including as a primary family member or other significant support person, to work with the Commission as mental health leaders. Click here for more information.

Online anxiety resource for women

Jean Hailes for Women's Health and the MLC Community Foundation have developed an extensive online tool to help women in different life stages and conditions to understand and manage their anxiety. Click here to view the website.

NDIS / DisabilityCare

Information on the transition of NSW disability services to the NDIS

Ageing, Disability and Home Care (ADHC) have published a number of policy statements outlining how the transition to the NDIS in the Hunter launch site will affect existing programs. Responses to questions posed to the Minister at a recent forum in Newcastle are also published on the ADHC website. Click here to view the policy statements and here for the questions and answers from the Newcastle forum.

NDIS information survey results

The National Disability and Carer Alliance has reported on key findings from its survey of 500 people with disability, family members, service providers and members of the wider community on the NDIS. Click here for more information.

Getting prepared for the NDIS

The NSW Government has funded eight capacity building projects to help people with disability, families and carers across NSW participate confidently in individualised funding arrangements and prepare for the NDIS. Click here for more information.

Personal stories from the NDIS launch sites

The NDIS website contains a number of videos, quotes, cameos and stories illustrating how the Scheme is helping people with disability, their families, carers and service providers in the launch sites. Click here to view these resources.

Older people

Growing older, staying well

Sane Australia has published a report entitled Growing older, staying well on mental health care for older Australians. Click here to read the report.

Preparing for an ageing Australia

The Productivity Commission has published a paper on Australia's ageing population and the implications for the labour market and economy. Click here to read the paper.

Conferences and forums

Helping Families Change Conference 19-21 February 2014, Sydney.

Child Aware Approaches conference 31 Mar-1 Apr 2014, Melbourne.

Joint World Conference on Social Work, Education and Social Development 9-12 July 2014, Melbourne.

Australian Institute of Family Studies Conference 30 Jul-1 Aug 2014, Melbourne.

Training and events

Information session and lunch for carers of people with a mental illness, 16 Dec 2013, Randwick, (02) 9280 4744,

Simplifying Mental Illness plus Life Enhancement Skills (SMILES) for 8-12 year old children in Randwick and Botany Bay who have a family member with a mental health problem, 22-24 Jan 2014, Eastlakes, (02) 9280 4744,

Challenging behaviours collaboratively workshops 6 Feb-27 Mar 2014, Wollondilly, (02) 4683 2776.

Addressing elder abuse in CALD Communities, Western Sydney Forum 11 Feb 2014, Pemulwuy, (02) 8838 2173,

Alzheimer's Australia training for family and friends Various dates 2014, various locations, (02) 9805 0100 for Sydney, (02) 4962 7000 for Hunter,

Getting Ready workshops for people with physical disability Various dates 2014, various locations, (02) 9552 1606,

Yaraandoo respite retreats for mental health carers Various dates 2014, Northern NSW, (02) 6655 6223.
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