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OCTOBER 2016

Welcome to the Carers NSW NDIS Update, one of several resources developed by Carers NSW to help carers understand and engage with the National Disability Insurance Scheme (NDIS).

It takes time and effort to understand the NDIS. Many family members and friends (carers) of people with disability in NSW are finding it hard to keep up. The Carers NSW NDIS Update aims to make it easier for carers to stay up to date with NDIS news, resources and events. Click here to read this in your web browser.

Carers NSW Resources
NDIS News
Have Your Say

Featured Resources
Upcoming Events
Further information

Carers NSW Resources

 

Want to learn more about preparing for the NDIS?

As the peak organisation for carers in NSW, we want to help carers get the best outcomes possible from the NDIS for themselves and the people they care for. The Carers NSW NDIS web page www.carersnsw.org.au/NDIS contains:
  • Fact sheets on the NDIS, how it works and how to prepare
  • And NDIS checklist for carers
  • A glossary explaining NDIS words and phrases
  • Links to important resources
  • Information about our NDIS workshops for carers

Workshops for carers on the NDIS

Carers and the NDIS is a half-day workshop for carers of people with disability. It aims to provide carers with a general introduction to the NDIS, help carers support the person they care for to access the NDIS, and prepare carers to communicate their own needs in relation to the NDIS.

Upcoming workshops:

  • North Sydney, 18 November 2016
  • North Sydney, 25 November 2016
  • North Sydney, 1 December 2016

Click here to register, or to express your interest in future workshops email education@carersnsw.org.au.

NDIS News

Carers still need a break!

One of the ongoing concerns carers have had about the NDIS is the reluctance to use the word 'respite' and fund breaks for carers based on their needs. Carers NSW recently conducted a national survey on behalf of the National Network of Carers Associations to find out about carers' respite needs and experiences.

The survey, which received 1,803 complete responses from carers across Australia, showed that many carers do not use respite, but mainly because it's difficult to find and access services that meet their needs, not because they don't need it. Respondents also indicated that they believed the main purpose of respite was to give carers a break and sustain their wellbeing, despite the shift in focus with the NDIS on respite as an activity primarily to benefit the person with disability. Click here to read the full report.
 

Self-managing carers face out-of-pocket charges

From 1 July 2016, the National Disability Insurance Agency (NDIA) stopped giving people self-managing their NDIS plans a month's payment in advance to enable them to pay for services without being out of pocket. Now self-managing participants and their families are expected to pay for supports in their plan upfront, which has caused great concern among advocacy groups, as this can amount to a lot of money that many families simply do not have. Click here for more information.

NDIS 'reaches capacity' in the ACT

It was recently announced that the NDIS had reached its capacity in the ACT, prompting huge concern from the community and is currently being addressed by the ACT and Commonwealth governments.
 

Concerns over new NDIS Board

Commentators have criticised revisions to the membership of the NDIS Board due to a lack of members with a lived experience of disability. Click here for more information.
 

NDIS has room to grow when it comes to diversity

An article by Every Australian Counts has highlighted the importance of better including people from culturally diverse backgrounds in the NDIS. Click here to read the article.
 

Carer stories

There were a number of carer stories reported in the news in the past month.
  • Click here to read about Grace Fava's challenging time caring for two growing boys with autism, and how the NDIS can help.
  • Click here to read about Tiffney French and her daughter Axel's hopes for the NDIS rollout.
  • Click here to hear Alisa talk about the impact of the NDIS on her and her son's life.

Official NDIS e-newsletter

You can find the latest official e-newsletter for the NDIS here or sign up for their regular updates here.
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Have Your Say

Tell us about your experiences of the NDIS

Unfortunately, our planned Penrith focus group was not able to go ahead due to lack of numbers. If you live in or around the Penrith area and would be interested in attending a focus group on another date in the evening, please contact us using the information below.

Carers NSW Policy Team wants to hear about carers' experiences of the NDIS. If you live in NSW and are caring for an NDIS participant, you can share your story with us in any of the following ways:

If in doubt, speak up!

Carers NSW has heard that some carers are receiving confusing letters and phone calls about the NDIS. We want to remind carers that they can always:
  • insist on having a face-to-face planning session rather than going through the planning process over the phone
  • contact the NDIA to ask a question or make an appeal if there is something they don't agree with
  • explain to the person they talk to if they are not comfortable with something or don't understand
  • approach their local Member of Parliament if they do not feel an issue is being addressed
For more tips on how to speak up, read our fact sheet Tips from Carers on the NDIS, available online here.
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Featured Resources

Share your experiences with other carers

The NDIS Grassroots Discussion is a Facebook group that carers and people with disability who have a Facebook profile can join to hear from others about their experiences of the NDIS. Members can also post questions for the group to respond to. For more information, type 'NDIS Grassroots Discussion' into your Facebook search bar.
 

Comprehensive NDIS guidebook

The Endeavour Foundation has updated their booklet, Discover: A resource for people planning for the future, which comprehensively explains in relatively simple language what to expect from the NDIS. Carers NSW has a copy in our Tom Fink Library, which Carers NSW members can borrow by calling 1800 242 636, or you can download or order your own copy by clicking here or calling 1800 112 112.
 

Multi-language poster for families of children with disability

FACS, NDIA and EarlyEd have published a poster in multiple languages encouraging multicultural communities to contact the NDIS for support for children with disability. Click here to view the poster.

 

NDIS words explained simply

The NSW Government has published an easy-read fact sheet that explains NDIS key words. Click here to view the fact sheet.
 

Webinar for mental health carers

On 21 October 2016, Carers Australia, the NDIA and Mental Health Australia ran a webinar for mental health carers on the NDIS. Click here to watch the recorded webcast.
 

Learn about the NDIS from someone like you

Carers Australia's Peer Conversation Partners Project puts carers of people applying for the NDIS in touch with carers whose loved one is already accessing the NDIS. These trained carers are available to share their experiences and tips in approaching the NDIS planning process. Click here for more information or contact (02) 6122 9900 or carers.ndis@carersaustralia.com.au.
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Upcoming Events

Click on the links for events in your area

Sydney region (including Nepean Blue Mountains)
Northern NSW (including Central Coast)
Western NSW (including Far West)
Southern NSW (including Illawarra)
 

Sydney region

  • Carers and the NDIS workshop run by Carers NSW. Various dates 2016, North Sydney. Click here to register or email education@carersnsw.org.au for more information.
  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters. Various dates and locations 2016. Click here for more information or call 1800 144 653.
  • November Planning Cafes run by Community Disability Alliance Hunter. 16 November 2016, Maitland; 24 November 2016, Charlestown. Click here to register or call 0490 053 454 for more information.
  • NDIS Pre-planning Café run by Ability Options. 14 November, 2016, Wentworthville. Click here for more information or call 1300 422 454
  • Getting Prepared for the NDIS information sessions in community languages run by Ethnic Community Services Co-operative. Arabic Speaking Community - 4 November 2016, Rockdale; Tongan Speaking Community - 18 November 2016, Rockdale. Urdu Speaking Community - 14 November 2016, Mount Druitt. Turkish Speaking Community, 7 November 2016, Eastlakes; Greek Speaking Community, 21 November 2016, Eastlakes. Call (02) 9569 1288 for more information.

Northern NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters. Various dates and locations 2016. Click here for more information or call 1800 144 653.

Western NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters. Various dates and locations 2016. Click here for more information or call 1800 144 653.

Southern NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters. Various dates and locations 2016. Click here for more information or call 1800 144 653.
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Some of the events promoted in these updates are run by organisations that are registered providers for the NDIS. Attending their event does not mean you have to choose them as your NDIS provider. Participants and their families can choose the providers they want.
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Further Information

 

For more information and resources about the NDIS:

  • Visit the Carers NSW NDIS web page: www.carersnsw.org.au/NDIS.
  • Visit the NDIS website www.ndis.gov.au or contact the National Disability Insurance Agency (NDIA) on 1800 800 110 or at engagement@ndis.gov.au.

This update is not endorsed by the National Disability Insurance Agency (NDIA). It has been developed by Carers NSW based on publicly available information. Every effort has been made to ensure that all information is correct and up to date. However, it should be used as a guide only. All information should be verified with the NDIA.
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Copyright © 2016 Carers NSW, All rights reserved.


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