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Welcome to the August 2013 eBulletin!

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer-related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Join the Carers NSW research community

The Carers NSW Research Community is an exciting new initiative that provides an avenue for carers to engage with relevant research. Carers NSW supports research undertaken by a broad range of partners and stakeholders to advance an evidence base for carer support and programs. Members will be sent invitations to participate in the latest research and be updated on relevant findings. Click here for more information.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
DisabilityCare Australia / NDIS
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Report on school readiness for Aboriginal children with additional needs

This report evaluates a school readiness program for Aboriginal children with additional needs, assessing the benefits for children, families, communities and service providers. Click here to download the report.

Website for carers of Aboriginal and Torres Strait Islander children

The Secretariat of National Aboriginal and Islander Child Care (SNAICC) has developed a website to support carers of Aboriginal and Torres Strait Islander Children. Click here to view the website.

Paper on trauma and Indigenous Australian children

This resource sheet published by the Closing the Gap Clearinghouse looks at the effects of direct and inter-generational trauma on Indigenous children and how services can be 'trauma-informed'. Click here to download the report.

CALD carers

New multicultural carers group in Bonnyrigg

A new support group for multicultural carers has been launched in Bonnyrigg, with the support of Newleaf Communities and CatholicCare. Click here to read the media release.

Multicultural foster care service launched

Settlement Services International (SSI) has established a new service providing out-of-home care for children and young people from culturally and linguistically diverse (CALD) backgrounds. Click here to read the media release.

Survey on employment of youth from CALD backgrounds

The Federation of Ethnic Communities' Councils of Australia (FECCA) is running a survey to gain feedback from CALD young people aged 15-24 about their experiences in finding sustainable work in Australia. Click here for more information.

Children, youth and young carers

Resources on working with children who have experienced trauma

The Australian National University (ANU) has a number of resources published online about the effects of trauma on children and young people. Click here to view the resources.

Report on the long-term effects of child sexual abuse

This paper by the Australian Institute of Family Studies (AIFS) reviews research reporting on the long-term effects of child sexual abuse. Click here to download the report.

Survey on inlusion in schools

Include and Edith Cowan University are running a survey on the inclusion of students with disability in mainstream schools. For more information, contact Bob Jackson on or 0407 667 108, or click here to complete the survey.

Consultation on advocacy for children and young people

The NSW Government is looking for fresh ideas about the work of children's advocates. The comments received will help the Government improve advocacy for children and young people. Click here for more information.

Extra distress for children whose fathers have cancer

Research by CanTeen reveals that psychological distress is higher among young people with a father with cancer, compared to if their mother has cancer. Click here to read the media release.

Young Carer E-News

The July edition of the Carers NSW Young Carer E-News is now available on the Carers NSW website. Click here to read the July edition, or click here to subscribe.

Chronic conditions and illnesses

Chronic pain and carers - video and audio resources

As part of National Pain Week (22-28 July), Chronic Pain Australia developed three clips on the impacts of caring for someone with chronic pain, including tips from carers and professionals. Click here and scroll to 'Day 2 - Carers' to view the resources.

Dementia: a resource guide for carers

This booklet explains dementia, provides ideas for carers and includes information about additional resources. Click here to download the resource.

Book on caring for someone with dementia

This new book published by researchers at the University of Western Sydney (UWS) provides a practical guide for families and personal carers of people with dementia. Click here for more information about the book or to order a copy.

Resources for promoting positive interaction with people with dementia

Alzheimer's Australia has released resources aimed at promoting positive interaction with people with dementia based on the Montessori educational method. Click here to view the resource book.

Randwick City to be made 'dementia friendly'

Randwick City Council and Alzheimer's Australia have agreed to partner together on initiatives like those undertaken in the UK to better respond to the needs of people with dementia. Click here to read the media release.

Diabetes and depression - a deadly combination

Evidence suggests that one in three people with diabetes will also develop depression. A new online program is being tested to treat and prevent depression in diabetics. Click here to read the media release.


Funding for workshops for carers of children with a disability

The Federal Government has announced a $900,000 investment to provide 300 'early days' workshops for carers across the country as part of the Better Start for Children with Disability initiative. Click here to read the media release.

Disability support services report

This Australian Institute of Health and Welfare (AIHW) bulletin reports on the number and types of disability support services provided under the National Disability Agreement, as well as the number of service users with an informal carer, which has increased in the last five years. Click here to download the bulletin. 

Report on involuntary sterilisation of people with disabilities

The Senate Community Affairs References Committee has released a report on the involuntary or coerced sterilisation of people with disabilities in Australia. Click here to read the report.

New complaints management tool for disability service providers

The NSW Government has created a Feedback and Complaints Management Log (FCML) for service providers to build the capacity of the NGO sector in the transition to a more person centred system. Click here to read the media release.

Research participation - Autism Spectrum Disorders

The Brain & Mind Research Institute has established the Autism Clinic for Translational Research (ACTr) Register for people interested in participating in studies on the diagnosis and treatment of Autism Spectrum Disorders. Click here for to register your interest.

DisabilityCare / NDIS

DisabilityCare Australia e-news

The first issue of DisabilityCare Australia e-news contains information about the rollout regions, staff, website and results of the Practical Design Fund projects. Click here to read the newsletter, or click here to subscribe to the updates.

Transitioning NSW to DisabilityCare

The NSW Government has published the Living Life My Way Framework, which outlines how disability services in NSW will transition to the National Disability Insurance Scheme. Click here to read the document.

Evaluation of DisabilityCare

A consortium led by the National Institute of Labour Studies (NILS) and Flinders University has been commissoned to evaluate DisabilityCare Australia. It will monitor and evaluate the experience of participants, their families and carers, service providers and the disability sector workforce over the next three years. Click here for more information.

Resources for navigating DisabilityCare

The Endeavour Foundation has developed a suite of resources about navigating DisabilityCare, including a resource book and fact sheets for prospective participants and families and carers. Click here to view the resources.

Report on direct support personnel that are 'right for the job'

The NDIS Workforce Ready study investigated the possibility of national standards of practice in the disability sector, including the recognition and accreditation of direct support personnel who would be 'right for the job'. Click here to read the report.

Employment, finances and housing

Report on deep and persistent disadvantage in Australia

This Productivity Commission refers to carers as one group that experience particular disadvantage, including poverty, social exclusion and lowered wellbeing. Click here to read the report.

Paper on financial disadvantage of women in retirement

A new paper by the Australia Institute presents findings about the disparity between the retirement savings of men and women. One of the major contributors to this disaparity is caring responsibilities. Click here to read the report.

Report on parental joblessness and family wellbeing

The Department of Families, Housing, Community Services and Indigenous Affairs has released a report on the impacts of joblessness on the financial situation and wellbeing of parents and children. Click here to read the report.


Resource to assist carers in hospitals

A new booklet has been launched by the NSW Government to assist carers in understanding their rights within the NSW health care system and community services. It comes in multiple languages. Click here to download the resource.

Patients' and carers' experiences of heart attack

A new report by the Baker IDI Heart and Diabetes Institute presents findings on the perceptions and coping strategies of carers looking after someone who has a heart attack for the first time. Click here to read the report.

State of Preventative Health report

The newly released State of Preventative Health 2013 report provides a comprehensive overview of the health challenges facing Australians. Click here to read the report.

Feedback on rural health issues

A draft Issues Paper is available for comment until 30 September to inform the development of the NSW Rural Health Plan. The focus of the consultation is to identify key issues for rural, regional and remote health and innovative strategies to address these. Click here for more information.

After hours GP helpline

The After Hours GP Helpline provides reassurance and practical medical advice to people with an urgent health concern overnight or over the weekend who are not sure what to do. Click here to view the website.

LGBTI carers

New protections for LGBTI Australians

Recent amendments to the Sex Discrimination Act 1984 will make discrimination on the basis of sexual orientation, gender identify and intersex status unlawful. Click here for more information.

Telephone counselling service for LGBTI Australians

The Federal Government has announced new funding to provide a telephone support service for people of diverse sexual orientation, gender identity and intersex status. Click here to read the media release.

Mental health

Report on stigma and mental illness

Sane Australia has published a report on the stigma faced by people with a mental illness and their families. Click here to download the report.

Paper on reaching hidden mental health carers

This paper reports on methods used by the Mental Illness Fellowship Victoria (MIFV) to reach hidden carers. Click here to read the article.

New program eases burden on mental health services

A new program by beyondblue will enable many Australians to refer themselves to free early intervention services for depression or anxiety. Click here to read the media release.

Report on mental health and wellbeing in Australia

The Mental Health Council of Australia (MHCA) has published a strategic report containing articles from leading mental health sector professionals. Click here to download the report.

Mental health education package

Carers NSW has piloted sixteen interactive three hour Hope Education and Recovery Tools for Mental Wellness (HEaRT) workshops across NSW. The project aimed to improve the knowledge of consumers, carers and service organisations about the risks of untreated serious mental illness. Click here to find out more.

Support, training and advocacy for mental health carers

The CarerAssist website provides support, advocacy and education for carers and families of people with a mental illlness. Services are provided by Carer Advocates in certain Local Health Districts. Click here for more information.

Online OCD treatment effective

Researchers at Swinburne University of Technology have developed an online treatment for Obsessive-Compulsive Disorder (OBD). Click here to view the website.

Older people

Aged care reforms commencing 1 August

A number of changes under the Living Longer Living Better aged care reform package commence on 1 August 2013. This includes the introduction of the Home Care Packages Program, new dementia and veterans supplements and increased powers for the Aged Care Commissioner. Click here for more information.

Better practice for handling aged care complaints

The Australian Government has developed a toolkit of customisable resources designed to support better practice in complaint handling in aged care services. Click here to view the resources.

Advance planning for quality care at end of life

The NSW Government has released an Advance Care Planning Action Plan to raise awareness of the importance of planning ahead for end of life care. Click here to download the Plan.

New manual for carers of older people

This comprehensive guide to caring is endorsed by the British Medical Association, and offers advice and solutions on a range of topics from adapting living spaces to safe lifting. Click here for more information.

One-stop-shop for planning retirement

The Australian Human Rights Commission has released a new manual to help people navigate the complex decisions, services and supports that are part of planning and managing their retirement. Click here to download the resource.

Staying active and healthy - online resources

The Active and Healthy website provides information about staying active and healthy for people as they grow older. Click here to view the website.


Take-up of new techologies among older Australians

This research discusses the lower usage by older Australians of computers and the internet, and raises resulting challenges related to providing information and services to older Australians. Click here for more information.

More training for tech savvy seniors

The NSW Government has announced that it will extend its popular Tech Savvy Seniors program, focussing on rural and regional areas. Click here to read the media release.

Free online course: Understanding Dementia

The University of Tasmania has developed a free 11-week course that draws upon the expertise of neuroscientists, clinicians and dementia care professionals to enhance people's understanding of dementia. Click here for more information.

New website for youth mental health professionals have combined their websites targeted at teachers and health professionals to produce a newly developed website for professionals working to promote mental health and wellbeing among young people. Click here to view the website.

New live theatre app for blind and vision impaired Australians

A cutting-edge app will enable people with a vision impairment to enjoy live theatre. The app will provide high-quality audio descriptions of the action on stage. Click here to read the media release.

Conferences and forums

Supporting Parents with Learning Difficulties and their Children 13 Aug 2013, Sutherland Shire.

Alzheimer's Australia Planning Ahead Forums 19 Aug 2013, Silverwater; 28 Aug 2013, West Ryde.

Forum for women living with ovarian and gynaecological cancers, their families and friends 24 Aug 2013, Sydney.

Symposium for families, carers and clinicians on mental health and intellectual disability 27 Aug 2013, Rosehill.

Australian Palliative Care Conference 3-6 Sept 2013, Canberra.

National Borderline Personality Disorder Awareness Day Conference 3-4 Oct 2013, Sydney.

Angelman Syndrome Conference 4-6 Oct 2013, Coogee.

International Conference of the World Federation of the Deaf 16-18 Oct 2013, Sydney.

Physical Disability Council of NSW Community Consulation, 18 Oct 2013, Katoomba; 25 Nov 2013, Penrith.

International Mental Health Nursing Conference 22-24 Oct 2013, Perth.

Australian Men's Shed Association National Conference 27-29 Oct 2013, Ballarat.

National Disability Advocacy Conference 31 Oct-1 Nov 2013, Brisbane.

WA Transcultural Mental Health & Australasian Refugee Health Conference 31 Oct-1 Nov 2013, Perth.

Australian Society for Intellectual Disability Conference: 'Our time' 6-8 Nov 2013, Sydney.

Federation of Ethnic Communities' Councils of Australia (FECCA) Conference 7-8 Nov 2013, Gold Coast.

Australasian Fetal Alcohol Spectrum Disorders Conference 19-20 Nov 2013, Brisbane.

World Hearing Voices Congress 20-22 Nov 2013, Melbourne.

Strength to strength: Improving the care system for children and young people through participation 22-24 Nov 2013, Canberra.

Training and events

Talk-Link group counselling for former carers, ABI carers and dementia carers Various dates 2013, 1800 242 636 or

Supported Living Fund Round 3 Information Session for people with disability, their families and carers Various dates 2013 and locations, 1800 242 636.

Family and carers mental health program Various dates 2013, Western Sydney-Nepean (02) 8842 8289, North Sydney-Central Coast (02) 9481 0177.

Carer Anxiety Management Group Various dates 2013, Penshurst, (02) 9580 0688.

Black Dog Institute community education programs Various dates 2013 and locations, (02) 9382 2998.

Partners in Depression courses:
* Marrickville, 16 Aug-20 Sept 2013, (02) 9378 1406.
* Taree, 2 Sept-14 Oct 2013, (02) 6551 1200
* Lithgow, 7 Nov-12 Dec 2013, (02) 8842 8289

Let's get started...getting ready for school and life webinar 7 Aug 2013, online, (02) 9869 0866.

Relate, Motivate, Appreciate: Promoting positive interactions with people living with dementia 12 Aug 2013, Parramatta, (02) 8875 4640.

Carer Program Workshop Tuesdays 13-27 Aug 2013, (02) 4424 6386, Nowra.

Aboriginal Dementia DVD Launch for frontline workers, 14 Aug, 2013 Ingleburn, (02) 4621 8400 or

Living with voices, unusual beliefs and paranoia 14 Aug 2013, Olympic Park, 0435 348 168.

Grief, loss, transition and change - working with families course 26-27 Aug 2013, Burwood, (02) 9523 3567.

Mental Health First Aid Course in Arabic 27 Aug and 3 Sept 2013, (02) 8842 8289

Free dementia / memory loss information evening, 28 Aug, 2013 Warriewood, (02) 9979 7677 or

Eight stage healing process for carers of someone with a mental illness Thursdays from 29 Aug 2013, Tweed Heads, (07) 5524 8711. 

Free carer workshop on behaviours relating to decline in brain function 29 Aug 2013, Penrith, (02) 4731 8399.

Velocardiofacial Syndrome (VCFS) Family Camp, 30 Aug-1 Sept 2013, Picton,

Information session for Vietnamese parents and families of children with a disability (Vietnamese translation) 5 Sept 2013, Canley Vale, 0420 307 146.

Pole Depot carers' weekend away 25-27 Oct 2013, Mittagong, (02) 9580 0688.
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