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Welcome to the 
January 2015 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Call for abstracts for the Carers NSW Biennial Conference

Carers NSW is now inviting authors and presenters to submit abstracts for the Biennial Conference ‘Let’s revolutionise caring: inclusion, innovation, diversity’, being held 21-22 May 2015 at the Novotel Sydney Olympic Park. For information regarding submission of abstracts please click here.

Carers NSW telephone counselling groups

Carer Wellbeing: Talk-Link Mixed Group is a six-week therapeutic group program for adult carers in NSW, Mondays from 9 February 2015. Contact Rob on (07) 5524 8711 or 1800 242 636.
Carer Wellbeing Talk-Link for carers of a person with Motor Neurone Disease (MND), Mondays from 16 February 2015. Contact 1800 242 636.
Eight Stage Healing Process for carers of a person with a mental illness, Tuesdays from 24 March 2015. Contact 1800 242 636.
Grief and Loss: Talk-Link for former carers of someone with MND, Tuesdays from 21 April 2015. Contact 1800 242 636.

Report from the forum for facilitators of together program disability Carer Support Groups

The Carers NSW together team conducted a Forum for Facilitation of together disability Carer Support Group facilitators in November 2014. Click here for the full report.

Be self-care aware workshops report

As part of the Federal Government’s Drought Assistance Package funding, Carers NSW delivered a series of free ‘Be self-care aware’ workshops across the New England region throughout November and December 2014. Click here for the report.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Report on Indigenous wellbeing

The Productivity Commission has published Overcoming Indigenous Disadvantage: Key Indicators 2014, a paper measuring the wellbeing of Australia's Indigenous peoples. It includes various references to the role of carers. Click here for the report.

Report on Aboriginal and Torres Strait Islander people with a disability

The Australian Bureau of Statistics (ABS) has reported that Aboriginal and Torres Strait Islander people of all ages are more likely to be living with a disability than non-Indigenous Australians. The article uses data from the 2012 Survey of Disability and Carers (SDAC). Click here for the media release and here for the ABS report.

Strategies to strengthen mental health and wellbeing

The Closing the Gap Clearinghouse has released a report aimed at more effectively addressing Indigenous people's mental health and social and emotional wellbeing by drawing on their cultural perspectives and theoretical understandings. Click here to read the report.

Children, youth and young carers

Focus on young carers (UK)

The Guardian(UK) has recently published two articles on young carers.
Click here to read about how Councils in the UK are supporting young carers.
Click here to read an interview with a young carer.

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

Dementia story highlights impacts on family members

A recent story on ABC Open Do You Remember has highlighted the impacts of dementia on family members and carers. Click here to read the story.


Video on inclusive high school education

Inclusive High School Education: Jacob's Story produced by Family Advocacy showcases one student's journey from primary school to high school, and is a valuable resource for families to understand and embrace the opportunities available. Click here to watch the video.

Young people with disability and advocacy

A new Children with Disability (CDA) publication, Strengthening Participation of Children and Young People with Disability in Advocacy, looks at the different ways in which participation by children and young people with disability can improve and foster positive changes in their lives and influence others' lives as well. Click here for more information.

Running or setting up a support group for carers of people with disability?

The together program provides opportunities for disability carer support groups to link with each other, Carers NSW and a Regional Assisting Organisation to receive support, including education and training and some potential small grants to assist in the running costs of the group. Click here for more information.

Employment, finances and housing

Costs of caregiving

An article recently published in The Conversation looks at the various factors affecting the costs of providing care to family members. Click here to read the article.

UK report on the impact of caring on careers

Research from the University of Huddersfield in the UK has looked into how caring for elderly relatives can have serious impacts on the careers of working women. Click here for more information and here for the report.

Home fire safety

The NSW Smoke Alarm Subsidy Scheme (SASS) is offering subsidised smoke alarms that include a strobe light and pillow shaker to NSW residents who have a severe to profound hearing loss. Click here for more information.

Survey on Social Housing in NSW

NSW Family & Community Services (FACS) is inviting the community to provide innovative ideas to reform social housing in NSW. Click here for more information.

Online Hardship Portal launch

The Australian Communications Consumer Action Network (ACCAN) has launched an online Hardship Portal designed to help people experiencing financial hardship. Click here for more information.


Report on hospital patient perspectives

Patient Perspectives: Exploring aspects of integration for hospital patients, the latest publication from the Bureau of Health Information (BHI) examines the NSW public healthcare system with a particular focus on integration. It includes measures relating to carers. Click here to read the report.

Report on identification and support for carers of someone with cancer

Do you care? Helping healthcare professionals to identify and support carers has been produced by the Macmillan Cancer Support (UK) for hidden carers, people caring for someone with cancer in the health system who are unaware of the support services that may be available to them. Click here to read the report.

Survey: Quality of life for people with intellectual disability and terminal illness

The University of New England are conducting a survey into the experiences of people and their families with intellectual disabilities who have passed away. The results will be used to improve the care facilities available. Click here for more information.

Report on healthy life expectancy in Australia

The Australian Institute of Health and Welfare (AIHW) has published the report Healthy life expectancy in Australia: patterns and trends 1998 to 2012, exploring the term ‘health expectancy’, and examining the years spent in various health states, including years with disability. Click here for the report.

Release of a Regional Mapping Tool

The Australian National University (ANU) has released GRAPHC Regional Mapping Tool, an online mapping tool which allows visualisation of data relevant to primary health research and strategic planning to help plan visits to the local doctor in remote and regional Australia. Click here for more information.

Mental health

Loneliness as a major mental health risk

beyondblue has published The Men’s Social Connectedness report which looks at how social isolation and loneliness are greater risk factors for depression and anxiety for many men in their middle years (ages 30-65). Click here for the media release and here for the report.

Mental health peer work initiative

The National Mental Health Commission (NMHC) has initiated the Champions of Mental Health Peer Work Initiative to grow and streamline the delivery of a national network of peer workers. Click here for more information.

Mental health resources

The Transcultural Mental Health Centre has put together their archived resources available for free download from their website. Click here for more information.


Carers and the NDIS

An article by Ara Cresswell, CEO, Carers Australia on the Every Australian Counts website helps clarify and address concerns about the role of carers and the associations representing carers. Click here to read the article.

Indigenous Australians and the NDIS

As the Aboriginal and Torres Strait Islander population may have a higher incidence of disability than the Australian population more generally, Indigenous Australians and the National Disability Insurance Scheme from the Australian National University (ANU) will be an important paper for policy makers, researchers and service providers working in this important policy area. Click here for more information.

NDIS in the media

  • Two carers from the NSW NDIS trial site have done a radio interview on ABC Brisbane talking about their and their sons’ experiences. Click here to listen to the interview.
  • ABC Newcastle has recently interviewed parents who have been caring for their child with a disability for 32 years to understand the challenges of caring. Click here to read the article.

Older people

CHSP transition

The Federal Government has announced further details of their Commonwealth Home Support Programme (CHSP) which begins from 1 July 2015. Click here for more information.

Consumer directed care: a mindset shift

An article in the Australian Ageing Agenda has reported that Consumer Directed Care (CDC) is more than just a new set of rules, and requires age services to shift their culture and mindset. Click here for more information.

2015 Seniors Card Directory

NSW Minister for Ageing John Ajaka has announced the release of the 2015 Seniors Discount Card Directory and urged all eligible seniors to apply for a Seniors Card and enjoy the benefits. Click here for more information.

Conferences and forums

The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.
Australian Social Policy Conference: Rights and entitlements in times of austerity, 28-30 Sep 2015, Sydney.

Training and events

Understanding Bipolar Disorder, 28 Jan 2015, Sydney, (02) 9919 0506,

Anxiety Management Workshop, 29 Jan 2015, Penshurst, (02) 9580 0688.

Carers' Days - A chance to take a break, Various Sundays 2015, Sydney, (02) 8079 5997.

Enriching Lives for people with disability, Various dates, various locations 2015, (02) 9869 0866,

Family Carer Education, Various dates 2015, North Ryde, (02) 9805 0100,

Professional Dementia Courses, Various dates 2015, North Ryde, (02) 9805 0100,

Volunteer Education, Various dates 2015, North Ryde, (02) 8875 4665,

Early Days workshops for parents of children with Autism. Various dates 2015, various locations, (02) 8977 8377,

Pathways to Leadership, Various dates 2015, Cromer,

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