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Welcome to the September 2013 eBulletin!

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer-related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see this month's Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
DisabilityCare Australia / NDIS
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Aboriginal and Torres Strait Islander health plan helps 'close the gap'

The National Aboriginal and Torres Strait Islander Health Plan 2013-2023 has been developed as part of the Council of Australian Governments' (COAG) commitment to Closing the Gap. Click here to read the plan.

Healing children and young people from intergenerational trauma

Growing our Children Up Strong and Deadly explores the cumulative effects of historical and intergenerational trauma for Aboriginal and Torres Strait Islander children and young people. Click here to read the paper.

CALD carers

Challenges for CALD clients accessing Government services

Multicultural Access and Equity: Strengthening connections between communities and services by the Federation of Ethnic Communities' Councils of Australia (FECCA) reports on consultations with CALD communities about barriers to accessing Government services. Click here to read the report.

Multicultural carers activities in South Western Sydney

Carers Club runs a number of multicultural weekly activities for carers in South Western Sydney, including computer groups, English classes, tai chi and ballroom dancing. Activities cater for speakers of community languages. Click here for more information.

Children, youth and young carers

Most school children with a disability attend regular classes

Statistical profiles released by the Australian Bureau of Statistics (ABS) show that most children with a disability attend regular classes in mainstream schools. Click here to read the media release.

Resources for engaging children and young people

The NSW Commission for Children and Young People are promoting a resource called Citizen Me! which is aimed at helping organisations meaningfully and effectively involve children and young people in their decision making. Click here for more information.

Young Carer E-News

Carers NSW Young Carer E-News is a great way of keeping up to date with events and resources for young carers. Click here to view the August edition or click here to subscribe.

Chronic conditions and illnesses

Stronger carers: supporting carers of people living with dementia

Stronger Carers is a free 6-10 week course designed to empower carers of people living with dementia that will run between October 2013 and March 2015. Coaches will deliver the training in carers' own homes. Click here for more information.

Opportunity to participate in chronic illness research

Griffith University's Chronic Illness Project is seeking participants with onoing health conditions from the Northern Rivers region of NSW for a phone survey on community pharmacies. Click here for more information.

Survey on Alzheimer's carers and online support

Masters students at the University of Technology, Sydney (UTS) want to hear from people caring for someone with Alzheimer's to help them develop a website and online community for carers. Click here to participate in the survey.


Ability Links to roll out across NSW by 1 July 2014

The new Minister for Disability Services, John Ajaka, has announced the roll out of Ability Links, which will provide coordinators across the state to link people with disability to support in their communities. Click here to read the media release.

Study finds communication issues between people with TBI and carers

Results of a study on traumatic brain injury (TBI) show that carers face a number of barriers to effective communication with the person they care for, leading to strained relationships and a sense of isolation for the person with TBI. Click here to find out more.

Communication training program for people with a TBI and their carers

TBI Express is an online training program for people with a traumatic brain injury (TBI), their families, friends and carers. It aims to improve communication and interaction. Click here for more information.

MyTime support groups benefit carers of children with disabilities

An evaluation by ORIMA Research of the MyTime Peer Support Groups for Parents and Carers of Children with Disability or Chronic Medical Condition Program (MyTime) has shown the groups to hold a number of benefits for carers. Click here to read the report.

Survey for users of EnableNSW

EnableNSW provides equipment, aids and appliances to people with a long term disability in NSW. The Physical Disability Council of NSW (PDCN) is running a survey on the experiences of users of EnableNSW to inform its work. Click here to complete the survey.

DisabilityCare / NDIS

Next roll out locations for NSW announced

The Minister for Disability Reform, Jenny Macklin, has announced the next NSW locations in which DisabilityCare Australia would be rolled out if the Labor Government is re-elected. Click here to read the media release.

Carer checklist for DisabilityCare assessment

Carers Australia has developed a checklist that carers can use to help DisabilityCare Australia assessors understand their caring role, so that the support package allocated to the person they care for also meets their needs. Click here to read the checklist.

NDIS Engagement Project roundtable reports available

The National Disability and Carer Alliance has published reports from a series of roundtable meetings investigating how DisabilityCare Australia should cater for CALD, rural and remote, and Aboriginal and Torres Strait Islander communities as well as people with mental health issues, and people with mild intellectual disability, acquired brain injury and mild autism. Click here to download the reports.

Latest DisabilityCare e-news

Click here to read the most recent edition of DisabilityCare e-news, which contains information on the Practical Design Fund and the progress of the roll out.

Employment, finances and housing

Workplace flexibility required to enable elder care

An article in the UK has highlighted the importance of workplace flexibility to help people care for their ageing parents. Click here to read the article.

Older women vulnerable to homelessness

An ABC report has highlighted the vulnerability of older women to homelessness. It includes the story of carer whose personal circumstances left her without affordable housing. Click here to read the article and radio transcript.

Article raises risks of informal family accommodation arrangements

An article from The Conversation has highlighted the risks older people may face in entering into informal family accommodation arrangements. Click here to read the article.


Report examines welfare of Australian carers

The Australian Institute of Health and Welfare's (AIHW) 11th biennial report on Australia's welfare has been released. The report refers extensively to informal carers, including a chapter dedicated to the subject. Click here to read the report.

UK report recognises the importance of carers in health care

A report on patient safety in English hospitals has recommended that carers be more involved in decision making of health care organisations and the monitoring of care quality and safety. Click here to read the report.

After hours GP helpline

The After Hours GP Helpline provides reassurance and practical medical advice to people with an urgent health concern overnight or over the weekend who are not sure what to do. Click here to view the website.

LGBTI carers

Understanding anxiety and depression in LGBTI people

Rainbow Blues is an e-learning resource intended to raise awareness about depression and anxiety experienced by lesbian, gay, bisexual, transgender and intersex (LGBTI) people. Click here to view the resource.

Survey of LGBTI older people in NSW

People aged 50 years and over who identify as lesbian, gay, bisexual, trans or intersex (LGBTI) living in NSW are invited to participate in a survey about ageing, health and wellbeing. Click here for more information.

Research on the mental health needs of young people

From blues to rainbows is a national research project on the mental health needs of gender diverse, trans and intersex young people. The research team are seeking participants in an online survey. Click here for more information.

Mental health

Mental health carers have difficulty accessing income support

Carers Victoria has released a research report, Invisible Care, which looks at the relationship between caring for a person with mental illness and access to Centrelink payments. Click here for more information.

Resources on suicide awareness for veterans and their families

Operation Life is new website that aims to educate veterans, serving Defence personnel and their families about dealing with and preventing suicide. Click here to view the website.

Have your say on the Strategic Plan for Mental Health

The Mental Health Commission of NSW is developing a Strategic Plan for Mental Health in NSW. People of all ages and backgrounds who are mental health consumers or carers are invited to have their say. Click here to register your interest.

Drop-in hub for mental health carers on the Central Coast

The Hub is a one-stop-shop for mental health information and referral on the Central Coast. Services are available to mental health carers and consumers. Click here for more information.

Older people

Making organisations accessible to older people with disability

A new practical handbook, This is our space: Ageing with Disability, provides information to assist organisations to better support the involvement of older people with disability in their activities. Click here to read the handbook.

Grief and bereavement resources available online

The Australian Centre for Grief and Bereavement has published a range of information sheets on grief for the general public. Click here to view the resources.


Smart apps for special needs

The website Smart apps for special needs reviews a number of mobile phone and tablet applications (apps) that can assist children with special needs and their carers. Click here to view the website.

Website facilitates innovative respite arrangements

CareCloud is a website that connects students in healthcare, therapy and education to families of children with disabilities to facilitate casual care and flexible respite arrangements. Click here to view the website.

Information on suitable devices for people with disability

The Australian Communications Consumer Action Network (ACCAN) has developed information on a range of accessible products and services to help people with disability and their carers decide which phone, tablet or disability-specific equipment is right for them. Click here for more information.

Conferences and forums

Building and supporting the mental fitness of young people - Youth Health Forum 11 Sept 2013, Westmead, (02) 9526 1221,

National Borderline Personality Disorder Awareness Day Conference 3-4 Oct 2013, Sydney.

Angelman Syndrome Conference 4-6 Oct 2013, Coogee.

International Conference of the World Federation of the Deaf 16-18 Oct 2013, Sydney.

Physical Disability Council of NSW Community Consulation, 18 Oct 2013, Katoomba; 25 Nov 2013, Penrith.

Australian Men's Shed Association National Conference 27-29 Oct 2013, Ballarat.

National Disability Advocacy Conference 31 Oct-1 Nov 2013, Brisbane.

WA Transcultural Mental Health & Australasian Refugee Health Conference 31 Oct-1 Nov 2013, Perth.

Australian Society for Intellectual Disability Conference: 'Our time' 6-8 Nov 2013, Sydney.

Federation of Ethnic Communities' Councils of Australia (FECCA) Conference 7-8 Nov 2013, Gold Coast.

Australasian Fetal Alcohol Spectrum Disorders Conference 19-20 Nov 2013, Brisbane.

World Hearing Voices Congress 20-22 Nov 2013, Melbourne.

Training and events

Talk-Link group counselling for carers, 1800 242 636 or
* Carer Wellbeing Groups:
    - male carers, weekly from 3 Sept 2013
    - all carers, weekly from 29 Oct 2013
    - ABI carers, weekly from 29 Oct 2013
* Grief and Loss Group - former carers, weekly from 31 Oct 2013

Southern Highlands Carer Roadshow, 1800 242 636:
* Goulburn, 4 Sept 2013
* Yass, 1 Oct 2013

ABI workshops for parents and professionals Various dates 2013, Ashfield, (02) 9797 0406,

Advocacy skills sessions for families of people with disability Various dates 2013, various locations, 1800 620 588.

ASPECT Early Years workshops Various dates 2013, Camperdown, (02) 9114 4104,

Carer Anxiety Management Group Various dates 2013, Penshurst, (02) 9580 0688.

Caring for Carers free information forums Various dates, Concord, (02) 9911 6210.

Family and carers mental health program Various dates 2013, Nepean, Blue Mountains and Western Sydney, (02) 8842 8289.

Individualised funding in NSW - what could it mean for you? Various dates, various locations, 1800 620 588

My Choice Matters 'Getting started' workshops Various dates 2013 and various locations, 1800 144 653,

Yaraandoo respite retreats for mental health carers Various dates 2013, Northern NSW, (02) 6655 6223.

Consent for treatment - what do patients and carers need to know? 11 Sept 2013, webinar.

Mental Health Carer Support Workers Forum 12 Sept 2013, Parramatta, (02) 9332 0700,

Fragile X Syndrome Family and Community Day for families and professionals 25 Sept 2013, Sydney, (02) 9976 2396 or

Carers Day Out, 15 Oct 2013, Sydney, 1800 242 636,

Establishing a user led Disability Support Organisation 16 Oct 2013, Glebe, (02) 9552 1606.

Pole Depot carers' weekend away 25-27 Oct 2013, Mittagong, (02) 9580 0688.

Partners in Depression course, 7 Nov-12 Dec 2013, Lithgow, (02) 8842 8289.
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