Carers NSW NDIS Update, April 2016                                                           View this email in your browser

Carers NSW NDIS Update
April 2016

Welcome to the Carers NSW NDIS Update, one of several resources developed by Carers NSW to help carers understand and engage with the National Disability Insurance Scheme (NDIS).

It takes time and effort to understand the NDIS. Many family members and friends (carers) of people with disability in NSW are finding it hard to keep up. The Carers NSW NDIS Update aims to make it easier for carers to stay up to date with NDIS news, resources and events.

Carers NSW resources
NDIS news
Have your say

Featured resources
Upcoming events
Further information

Carers NSW Resources

Carers of NDIS participants - tell us your story!
Carers NSW would like to hear from carers of NDIS participants in the Nepean Blue Mountains and Hunter NDIS sites. If you would like to share your experiences of the NDIS as a carer in a group discussion please express your interest to the Policy Team on (02) 9280 4744 or at Participants will be provided with an incentive for taking part.

Want to learn more about the NDIS?
Carers NSW has a webpage dedicated to resources for carers on the NDIS. Visit to access a series of fact sheets, links and other information about the NDIS, especially designed for carers.

Workshops for carers on the NDIS
Carers NSW has developed a half-day workshop for carers called Carers and the NDIS. The workshop aims to provide carers with a general introduction to the NDIS, help carers support the person they care for to access the NDIS, and prepare carers to communicate their own needs in relation to the NDIS.

"I've been to five of these workshops and this was easily the most informative." - Workshop participant

We are currently taking registrations for the following workshops:
  • Parramatta, 7 June 2016; 8 June 2016
  • Manly, 10 June 2016; 17 June 2016
  • Blacktown, 14 June 2016; 15 June 2016
  • Penrith, 21 June 2016
  • Ryde, 22 June 2016
  • Cessnock, 23 June 2016
Click here for more information. To register, contact our Education and Training team at or (02) 9280 4744.


 NSW disability sector risks losing good workers
A Sydney Morning Herald article has reported that disability specialists such as speech pathologists, physiotherapists, occupational therapists and case managers risk being forced out of the sector as the NDIS rolls out due to government services being transferred to the lower-paid, less stable non-government sector. Click here to read the article.

Criticism that NDIS is leaving out people with communication difficulties
A Herald Sun article has reported concerns from Victoria that people with difficulty communicating due to their disability or cultural background are being disadvantaged in the NDIS. Click here to read the article.

Carers NSW attends NDIS hearing in the Hunter
On 7 March 2016, the Joint Standing Committee on the NDIS held a hearing in Newcastle for service providers, people with disability, families and carers. Carers NSW attended this hearing and raised issues relating to carers and the NDIS. Click here to read the full Hansard transcript of the hearing.
Plans for funding NDIS housing
An article by Disability Services consulting has reported that around 28,000 NDIS participants with the highest needs will have housing funding included in their NDIS plans. 12,000 of these do not currently have an appropriate home. NDIS housing payments range from $14,500 to $101,336 per person per year, depending on the type of housing and level of accessibility they need. It is expected that between 500 and 900 new properties will be built each year for the next 10 years to meet this need. Click here to read the article.
Queensland family share their experiences
The first family in Queensland to get NDIS funding have shared their experiences in an ABC News Article. Deborah Dooley has four children with disabilities, one of whom has autism and has an NDIS package. She recommends having clear goals when going through the planning process. Click here to read the article.

Confusion over definition of psychosocial disability
A survey conducted by the ACT Mental Health Consumer Network has found that a lot of people with a mental illness are not familiar with the term 'psychosocial disability', which is used by the NDIS for participants who are accessing support on the basis of a mental illness. Click here to read an ABC News article on the survey.

Changes to the NDIS Board - do they matter?
Disability Loop has published an article explaining recent changes to the NDIS Board and what they could mean for people with disability, their families and carers. Click here to read the article.

Carers NSW advocacy on the NDIS and carers
The Carers NSW Policy Team takes every opportunity to tell governments and the National Disability Insurance Agency (NDIA) what carers want and need from the NDIS. As part of this we attend a number of forums and committees and regularly produce written submissions. In the past few months, we have completed NDIS related submissions on the following: Click here to find out more about the work we do and how you can contribute.

Official NDIS e-newsletter 
You can find the latest official e-newsletter for the NDIS here or sign up for their regular updates here.

Have Your Say

Your feedback on the NDIA's communication
The NDIA is seeking feedback about how they communicate with people with disability, their families and carers via their website, newsletter, webinars and social media. Click here to complete the survey.

Tell us about your experiences of the NDIS
Carers NSW Policy Team want to hear about carers' experiences of the NDIS. If you live in NSW and are caring for an NDIS participant, you can share your story with us in any of the following ways: Carers NSW 2016 Carer Survey now live!
Every two years Carers NSW surveys carers across the state about a range of issues to help us identify and advocate for what carers want and need. We want to hear from as many carers as possible, especially carers of NDIS participants. The survey closes on 30 April 2016. Click here to complete the survey online.

Featured Resources

New NDIS events calendar
The NSW Government NDIS website - - now has a comprehensive calendar of NDIS related events in NSW. Click here to find out what events are on near you.

What is the Intellectual Disability Reference Group?
In 2015 an Intellectual Disability Reference Group was started. The group aims to give advice to the Independent Advisory Council on the NDIS on how to better engage with people with intellectual disability, their families and carers, and help them achieve their goals. It was started in response to criticism that the NDIS was not doing enough to understand and meet the needs of people with intellectual disability. Click here to watch a video about the Intellectual Disability Reference Group.

What does a 'good life' mean for people with disability?
The University of New South Wales is running a free online course called Disability and a Good Life: Thinking through Disability. The course starts on 16 May 2016 and anyone can participate. Click here for more information.

New NDIS search engines
Many new tools for finding service providers are being launched as the NDIS rolls out. Two recent examples are below:
  •, which lists over 2,300 NDIS providers Australia-wide.
  • Clickability, a disability service directory that features ratings and reviews from service users.
Learn about the NDIS from someone like you
Carers Australia's Peer Conversation Partners Project puts carers of people applying for the NDIS in touch with carers whose loved one is already accessing the NDIS. These trained carers are available to share their experiences and tips in approaching the NDIS planning process. Click here for more information or contact (02) 6122 9900 or

Peer mentors available in the Hunter trial site
The Community Disability Alliance Hunter (CDAH) Peer Mentoring program provides one-to-one peer support and guidance to people with disability and their family members who have a specific goal to get the most out of the mentoring relationship so people can grow and develop in their own lives and communities. Click here for more information.

Free support to help you plan
People with disability and their families and carers receiving funding or services from the Department of Family and Community Services (FACS) / Ageing, Disability and Home Care (ADHC) may be eligible for up to 12 hours of free individual support planning to prepare for the NDIS. Click here for more information. To register your interest, contact your case worker or the ADHC intake line for your area, which you can find here.

Upcoming Events

Click on a link for more events by area:


  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • NDIS Planning Cafes and Peer2Peer meetings run by Community Disability Alliance Hunter (CDAH). Various dates 2016, Charlestown, Maitland, East Maitland, Wallsend. Click here for more information or call 0490 053 454 or
  • One of the Kids inclusive education workshop run by Family Advocacy. Various dates 2016, various locations. Click here for more information or call (02) 9869 0866.


  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • General information sessions and 'plan ready' workshops run by Community Connectors from UnitingCare Disability (RSVP only). Various dates and locations. Call 1300 883 430 for more information.
  • One of the Kids inclusive education workshop run by Family Advocacy. Various dates 2016, various locations. Click here for more information or call (02) 9869 0866.


  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.
  • Harness the possibilities: Enriching lives in changing times run by Resourcing Families. 4-5 May 2016, Dubbo. Click here for more information or call 1800 620 588.
  • NDIS information forums run by Every Australian Counts. Various dates 2016, various locations. Click here for more information or contact (02) 9256 3182 or
  • Getting ready for the NDIS: A workshop for carers run by Carers NSW. Various dates and locations 2016. Click here or contact (02) 9280 4744 or for more information.
  • Supported Decision Making workshops for young people with disability aged 14-18 years and their families and carers run by Carers NSW. Various dates and locations 2016. Click here for more information and here for a full schedule of dates, or contact (02) 9280 4744 or
  • Building Kinnections II run by the Disability Information Group (DIG). 25 and 26 May 2016, Dubbo. Click here for more information or contact 1300 134 450 or
  • One of the Kids inclusive education workshop run by Family Advocacy. Various dates 2016, various locations. Click here for more information or call (02) 9869 0866.
  • Free NDIS information sessions run by the Cerebral Palsy Alliance. Various dates 2016, various locations. Click here for more information.
  • Future Planning run by Family Advocacy. 9 May 2016, Coffs Harbour; 29 June 2016, Dubbo. Call 1800 620 588 for more information.
  • MDS NDIS Forum run by Macarthur Disability Services. 3 May 2016, Macarthur. Click here or call (02) 4621 8400 for more information.
Some of the events promoted in these updates are run by organisations that are registered providers for the NDIS. Attending their event does not mean you have to choose them as your NDIS provider. Participants and their families can choose the providers they want.

Further Information

For more information and resources about the NDIS: This update is not endorsed by the National Disability Insurance Agency (NDIA). It has been developed by Carers NSW based on publicly available information. Every effort has been made to ensure that all information is correct and up to date. However, it should be used as a guide only. All information should be verified with the NDIA.
Copyright © 2016 Carers NSW, All rights reserved.

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