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AUGUST 2016

Welcome to the Carers NSW NDIS Update, one of several resources developed by Carers NSW to help carers understand and engage with the National Disability Insurance Scheme (NDIS).

It takes time and effort to understand the NDIS. Many family members and friends (carers) of people with disability in NSW are finding it hard to keep up. The Carers NSW NDIS Update aims to make it easier for carers to stay up to date with NDIS news, resources and events. Click here to read this in your web browser.

Carers NSW Resources
NDIS News
Have Your Say

Featured Resources
Upcoming Events
Further information

Carers NSW Resources


Your new-look Carers NSW NDIS Update

Over the last few weeks you may have seen updated branding across all Carers Associations in Australia, including new newsletters, resources and merchandise. The refreshed branding will provide a consistent look across all associations, building strong brand awareness and recognition. There will be no change to the services and supports offered by Carers NSW and the Carers Associations.
 

Want to learn more about preparing for the NDIS?

As the peak organisation for carers in NSW, we want to help carers get the best outcomes possible from the NDIS for themselves and the people they care for. The Carers NSW NDIS web page www.carersnsw.org.au/NDIS contains:
  • Fact sheets on the NDIS, how it works and how to prepare
  • And NDIS checklist for carers
  • A glossary explaining NDIS words and phrases
  • Links to important resources
  • Information about our NDIS workshops for carers

Tell us what you think about respite

Carers NSW is conducting a survey on behalf of the National Network of Carers Associations about carers’ respite needs and experiences of using respite. Results will be used to advocate for appropriate respite services for carers across Australia, and a summary of findings will be made publicly available. The survey will close on 23 September 2016. Click here for more information or to complete the survey.
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NDIS News

Self-management hiccups

Many carers tell us that self-managing an NDIS plan gives them more choice and control. However, some recent hiccups have made self-managing difficult for families new to the NDIS.
  • Teething problems with the new online portal have left many participants, carers and providers waiting for weeks for payments to be processed, leading to huge out of pocket costs and delays in plans being approved. Click here for more information.
  • Before 1 July 2016, people self-managing their NDIS funds were given a 'float', or one month's advanced payment, to purchase their supports so that they weren't left out of pocket when waiting to be reimbursed. This will no longer be the case. Click here for more information.

Have you heard of the Carer Statement?

Carers are entitled to make a Carer Statement as part of the NDIS planning process. However, many carers don't know about this opportunity and miss out. There is no special form or template, but we enourage carers to make a written Carer Statement if they can. In a speech made in November 2014, Chairman of the NDIS Board, Bruce Bonyhady, said that the aim of the Carer Statement is to capture the carer's goals which impact on their provision of care, and the sustainability of their caring situation.

Click here to watch a video about the Carer Statement and how it works. Click here to use the Carers NSW NDIS checklist, a tool that can help you think through what you need to include in your Carer Statement.

What to expect in your first plan

As of 1 July 2016, NDIS participants in NSW will complete a first plan based on what they need right now. During the next 12 months they will get support to prepare some longer term goals. This is different to what happened previously in NSW.

People currently using Ageing, Disability and Home Care (ADHC) services will be contacted by letter and then by phone and be notified of a time when a planner will meet with them. Click here for more information.

What will disability housing look like under the NDIS?

An article by Disability Services Consulting has outlined what is happening with the 'next generation' of disability housing, which does not look 'specialist', is designed for independence and is separate from support. Click here to read the article.
 

Carer stories

  • Click here to read about the positive impact the NDIS has had on 19 year old Jacinta and her family in Tasmania.
  • Click here to read about Dion and his guardian Joie, self-managing an NDIS plan in the Northern Territory.
  • Click here to read about the Ingrams, anxiously awaiting NDIS support in South West Sydney.

Official NDIS e-newsletter

You can find the latest official e-newsletter for the NDIS here or sign up for their regular updates here.
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Have Your Say

Tell us about your experiences of the NDIS

Carers NSW Policy Team want to hear about carers' experiences of the NDIS. If you live in NSW and are caring for an NDIS participant, you can share your story with us in any of the following ways:
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Featured Resources

Information in languages other than English

The NDIS website now has a page dedicated to information published in ten languages other than English: Arabic, Chinese (Simplified and Traditional), Tagalog, Greek, Hindi, Italian, Macedonian, Samoan and Vietnamese. Click here for more information.
 

Communicating with the NDIS

A new video from the National Disability Insurance Agency (NDIA) explains the many ways in which NDIA staff can work with people with disability who have difficulty communicating. Click here to watch the video.
 

Making a complaint

The Disability Advocacy Resource Unit (DARU) provides simplified information and resources on the NDIS review and appeals process. Click here to view the resources.
 

How do you define a 'good life'?

As families transition into the NDIS and plan for the future, it will be important for them to consider what they need to have a good life. My Choice Matters has recently revised its Good Life workbooks to help people with disability, their families and carers consider this question. Click here to access the workbooks.
 

How can we manage our plan?

The NDIS allows people with disability and their families and carers to self-manage their NDIS plan and supports if they wish, meaning that they can take control over spending, hiring, etc. While many carers are excited at the increased choice and control self-management will bring, some have expressed anxiety about having to take on new responsibilities. The good news is, there are options, and each person can choose the arrangement that best suits their circumstances.

Options for managing NDIS funding
When the person you care for transitions to the NDIS they will go through a planning process and be issued with an NDIS plan and some funding to support this plan. The plan will be specifically tailored to the needs of the person you care for and will have various items identified in the plan with amounts of funding attached. The person you care for and their chosen supporters will have complete choice over who provides their support services, where and when, as well as how their funding is managed. There are four options:

Option 1: Leaving the funding with the National Disability Insurance Agency (NDIA).

The NDIA will pay all the providers that the person you care for selects directly and will manage the funding on their behalf. If they select this option they will:
  • Be able to choose all their own providers and how supports should be delivered. However, they will only be able to select providers who are registered with the NDIA.
  • Need to go through the process of setting up Service Agreements with each provider of supports, and negotiating support delivery i.e. how, when and where
Option 2: Self-Management

This means that you or the person you care for pay all the invoices for the supports they receive, and then claim reimbursement from the NDIA. Those who select this option will be able to choose providers of support who are not registered with the NDIA, which means more options in terms of support provision. In addition, they may be able to directly employ their own staff (excluding family members in most circumstances)

People wanting to self-manage will need to:
  • Set up Service Agreements with each provider of supports
  • Ensure all relevant invoices are paid on time
  • Keep all receipts and invoices for claiming reimbursement from the NDIA (for 5 years).
  • Report to the NDIA on the amount used and funds spent on items in the NDIS plan
Option 3: Selecting a Plan Manager

Like Self-Management, with a Plan Manager, a person has the flexibility to choose providers who are not registered with the NDIA, but without needing to manage the administrative functions – the Plan Manager will complete all the administrative functions on the person’s behalf. In addition, a Plan Manager can set up Service Agreements with suppliers on their behalf and source service providers if required, which is an advantage over NDIA managed funding.

If the person chooses to use a Plan Manager, the NDIA will allocate funding in their Plan to pay for the Plan Manager, so there is no additional cost to the person. Those who select this option will need to:
  • Request Plan Management from your Planner at the time your Plan is being developed with the NDIA
  • Select a Plan Manager
  • Liaise with your Plan Manager to explain to them when, where and by whom you would like your support delivered so they can set up the arrangements on your behalf. If you do not know who your provider should be, you should explain to them how you would like to be supported, so they can source the best provider.
Thank you to Cherie Cordina at Plan Management Partners for contributing to this section
 

Learn about the NDIS from someone like you

Carers Australia's Peer Conversation Partners Project puts carers of people applying for the NDIS in touch with carers whose loved one is already accessing the NDIS. These trained carers are available to share their experiences and tips in approaching the NDIS planning process. Click here for more information or contact (02) 6122 9900 or carers.ndis@carersaustralia.com.au.
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Upcoming Events

Click on the links for events in your area

Sydney region (including Nepean Blue Mountains)
Northern NSW (including Central Coast)
Western NSW (including Far West)
Southern NSW (including Illawarra)
 

Sydney region

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.
  • Pathways to a good life: Preparing for the NDIS by Jeder Institute. Campbelltown, 7 & 14 October 2016. Click here for more information.

Northern NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.
  • Pathways to a good life: Preparing for the NDIS by Jeder Institute. Various dates and locations 2016. Click here for more information.
  • Get ready - be prepared. Help is on its way! clinics run by Booroongen Djugan Ltd, Kempsey Regional Support & Northcott. Various dates and locations 2016 & 2017. Click here for more information or call (02) 6562 8431.

Western NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.

Southern NSW

  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.
  • Families getting NDIS ready run by Family Advocacy. Various dates and locations September 2016. Click here for more information or call 1800 620 588.
  • Pathways to a good life: Preparing for the NDIS by Jeder Institute. Dapto, 2 & 9 September 2016. Click here for more information.
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Some of the events promoted in these updates are run by organisations that are registered providers for the NDIS. Attending their event does not mean you have to choose them as your NDIS provider. Participants and their families can choose the providers they want.

Further Information

 

For more information and resources about the NDIS:

  • Visit the NDIS website www.ndis.gov.au or contact the National Disability Insurance Agency (NDIA) on 1800 800 110 or at engagement@ndis.gov.au.

This update is not endorsed by the National Disability Insurance Agency (NDIA). It has been developed by Carers NSW based on publicly available information. Every effort has been made to ensure that all information is correct and up to date. However, it should be used as a guide only. All information should be verified with the NDIA.
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Copyright © 2016 Carers NSW, All rights reserved.


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