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Welcome to the 
May 2015 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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NSW Carers Awards 2015

Nominations for the NSW Carers Awards open on 18 May 2015. Nominating a carer is a great way to show that you recognise the value of their contribution. Groups and organisations can also be nominated. Click here for more information.

Survey on understanding the needs and experiences of older LGBTI carers

La Trobe University and Carers Australia are conducting an online survey and confidential interviews on Understanding the needs and experiences of older LGBTI carers and carers of older LGBTI people in Australia. Click here for more information and here to access the survey.

Carer as a Persona Study

Persona Studies a new academic journal, has published The Carer Persona: Masking Individual Identities, exploring the complex nature of carers' in their caring roles and as individual identities with associated needs. Click here for more information.

Lecture looks at women's caring role

The ABC RN radio broadcast a lecture on 'The Economics of Dignity' by NZ academic Marilyn Waring, that looks at caring as a human right and considers ways to make women's lives easier, safer and freer. Click here to listen to the lecture.

Carers NSW Survey Factsheets

Carers NSW has published the following Factsheets based on findings of the Carer Survey:

Carers NSW telephone counselling groups

LGBTI Wellbeing Carer Group is taking Expressions of Interest. Please contact 1800 242 636 for further information.

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Report on Aboriginal Community Controlled Health Services

The Australian Institute of Health and Welfare (AIHW) has produced the Healthy Futures Aboriginal Community Controlled Health Services Report Card which indicates that Aboriginal community-controlled health services are a model of good practice in primary health care. Click here to read the media release and here to read the report.

Australian Indigenous health status

Australian Indigenous Health Infonet have produced the Overview of Australian Indigenous health status 2014 providing comprehensive information about the current health status of the Aboriginal and Torres Strait Islander populations. Click here for more information.

CALD carers

Resources to support CALD carers

Positive Partnerships has produced resources to support children with diverse learning needs and their families from the Culturally and Linguistically Diverse (CALD) backgrounds. Click here for more information.

Children, youth and young carers

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

Choice to stay at home and end of life care for people with dementia

Researchers from the University of Sydney and Southern Cross University are seeking feedback about the end of life care issues from relatives or friends who have experienced the loss of a family member with dementia in the last two years. Click here for more information.


Support for families with special needs

Parents and caregivers of a child with a disability or developmental delay aged 2 to 10 years, and professionals working with families are eligible to receive two years of parenting support from the Stepping Stones Triple P Project. Click here for more information.

Survey participation

  • Spinal Cord Injuries Australia (SCIA) is seeking carers’ experiences of discrimination and barriers in everyday life as a result of disability for a policy and advocacy survey. Click here to access the survey.
  • The Commonwealth Senate is seeking submissions to its inquiry on violence, abuse and neglect against people with disability in institutional and residential settings. Submissions are due by 29 May 2015 and can be made at here.

Carers NSW together RAO Forum

The together program is conducting the RAO Forum on Thursday 18 June 2015. Click here for more information.

Running or setting up a support group for carers of people with disability?

The together program provides opportunities for disability carer support groups to link with each other, Carers NSW and a Regional Assisting Organisation to receive support. Support can include education and training and small grants to assist in the running costs of the group. Click here for more information.

Employment, finances and housing

Age discrimination in the workplace

The Australian Human Rights Commission (AHRC) is looking at different types of age discrimination in the workplace:
  • The Inquiry Willing to Work: A National Inquiry into Employment Discrimination against Older Australians and Australians with Disability aims to consult widely, including with carers and families of older Australians and Australians with disability as their employment rates continue to be very low. Click here for more information.
  • The report National Prevalence Survey of age discrimination in the workplace, has revealed that the age discrimination faced by older people keeps them out of the workforce and many give up looking for a job. Click here for the media release and here for the report.

Childcare subsidies extended to nannies

The ABC website has reported that the Federal Government's new childcare package would provide subsidised care to nannies is also likely to benefit families with special needs children. Click here to read the article.


Strategies for carers of people with stroke

The National Stroke Foundation has published various strategies for carers to help them look after their loved ones and themselves. Click here for more information.

LGBTI carers

Retirement homes cater to an aging LGBT community

An article in The Guardian has reported that property developers establishing Australia's first LGBT residential village in country Victoria aim to cater to an aging LGBT community wanting to grow old among friends. Click here to read the article.

Mental health

The experience of parenting a child with a mental health disorder

Researchers at the University of Newcastle are looking for participants in conducting a study on the real world experience of parenting a child with a mental disorder. If you would like to participate, or would like any more information, please click here or contact Anthony Lamotte (; 02 4921 6757).

Mental health programmes and services report

The National Mental Health Commission has released its plans for modernising and reforming Australia's mental health system. Click here for the media release and here for the report.

Guide to help save lives of young people at risk of suicide

beyondblue has published The Family Guide for Youth Suicide Prevention guide to support parents and family members reach out to young people at risk of suicide. Click here for the media release and here to access the guide.

New data shines light on mental health carers

The Australian Bureau of Statistics (ABS) has released new Mental Health Statistics that may provide useful insights into carers of people with a psychological disability, including mental illness. The article uses data from the 2012 Survey of Disability and Carers (SDAC). Click here for more information.

Mental health graduates urged to be advocates for change

The Mental Health Commissioner has used a recent graduation speech of the NSW Institute of Psychiatry to encourage its graduates to speak up for the rights of people with mental illness, their families and carers. Click here for more information.


Carers NSW NDIS e-Newsletter

Click here for the latest edition of Carers NSW NDIS Update, or click here to subscribe.

Older people

Seeking carer feedback about CDC and changes to aged care

With so many changes happening across aged care, Carers NSW wants to hear how carers have been affected. This includes positive and negative experiences, as well as suggestions about how things could be improved, to inform our systemic advocacy. Do you have experience with CDC and individualised budgets, and have you found things work better this way? If you’re interested in sharing your experiences please contact Louise Bradley on (02) 9280 4744 or email Please note Carers NSW is unable to provide individual advocacy.

COTA (NSW) Consumer survey

COTA (NSW) are inviting participants over 50 years of age to complete their Consumer Survey 2015 to help them gain greater insights into the planning of communities. Click here for more information.

Changes to aged care

From 1 July 2015, Australia's aged care system will officially introduce a consumer directed care (CDC) model of service, which should give older people greater choice in planning and receiving services in their homes. A national survey of aged care service providers found that despite the potential upheaval to their operations, most identified a range of benefits for consumers. Click here for the media release.

Resources for consumer directed care

  • Home Care Today is a national service that aims to support both consumers and home care providers to work together to implement consumer directed care in home care packages. Click here for the website and here for the newsletter.
  • Information for older people and carers is available in the consumer booklet Your Guide to New Choices in Home Care (translated versions also available), via email or call (03) 9909 7910 for a copy.


Access to computers and internet training

The Federal Government will continue to provide funding to enable older Australians have free access to computers and internet training. Click here for more information.

Conferences and forums

The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.
At Home with Eating Disorders Conference (for carers), 29-30 May 2015, Melbourne.
International Mental Health Conference, 12-14 Aug 2015, Surfers Paradise.
Australian Social Policy Conference: Rights and entitlements in times of austerity, 28-30 Sep 2015, Sydney.
NDS Disability & Diversity national conference, 8-9 Oct. 2015, Sydney.

Training and events

Planning to be ready for the NDIS, Various dates, various locations,

Free iPad Training, Various dates, Blue Mountains, (02) 4732 6366.

Ideas for Self Directing Supports, Webinar series from 2 Jun 2015, (02) 9869 7753,

Carers NSW together RAO Forum, 18 Jun 2015,

Live.Love.Be. 12-29 Jun 2015,

Carer Information Sessions, Various dates 2015, Kogarah, (02) 9113 2494.

Connecting with Carers Education Groups, MH carers, Various dates 2015, Wollongong, (02) 4229 7254.

Family and Carer Mental Health Program - Training and Education Various dates 2015, Western Sydney (02) 8599 4880, North Sydney (02) 9481 0177, Central Coast (02) 4322 1855, South Western Sydney (02) 9757 4293.

Professional Dementia Courses, Various dates 2015, North Ryde, (02) 9805 0100,

Early Days workshops for parents of children with Autism. Various dates 2015, various locations, (02) 8977 8377,

Pathways to Leadership, Various dates 2015, Cromer,
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