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Welcome to the 
October 2014 eBulletin

The Carers NSW eBulletin is a monthly electronic newsletter for professionals interested in carer related issues. It features research, policy and best practice, plus news, publications and conferences, training and events.

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Are you a counsellor or psychologist? Do you have experience running therapeutic groups? Carers NSW would like to hear from you....

Do you have experience running therapeutic groups on the phone, face-to-face or online, specifically for CALD, ATSI or GLBTQI client groups?
We are interested in linking in with individuals and organisations that would be interested in working in partnership with us in order to develop carer specific therapeutic groups.
Carers NSW supports carers through our range of specialised programs and services. We provide education and training to carers and service providers, counselling services, access to early intervention funding, referrals, information and resources.
If you think you would be interested please contact Claudia on 02 9289 4293 or via

Report on Women in NSW

Women in NSW 2014, the third annual report on women’s progress towards equality in NSW, has been released. It includes data on carers from the survey of Disability, Ageing and Carers (SDAC) 2012. Click here to read the report.

Videos about carers' movements

Carers & Human Rights has released a YouTube video featuring delegates at the International Alliance of Carers' Organisation conference held in Helsinke in June 2014 speaking about the Carer's Movements in their countries. Click here to watch the video.

Running or setting up a carer support group?

Carers NSW is offering free workshops to carer support group coordinators and facilitators. Click here for details or contact the Education & Training Team on (02) 9280 4744 or

Research at Carers NSW

  • Click here to join the Carers NSW Research Community. Members will be sent invitations to participate in the latest research and be updated on relevant findings.
  • Click here to see the latest Research Snapshot. The Research Snapshot overviews recent research publications relating to carers.

In this edition...

Aboriginal and Torres Strait Islander carers
CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Employment, finances and housing

Aboriginal and Torres Strait Islander carers

Video resource for carers

italk library has produced video resources Love in the time of dementia to support Aboriginal carers of people with dementia. Click here for more information.

CALD carers

CALD awareness campaign 

Alzheimer's Australia has released a CALD awareness campaign There's a Difference on YouTube aiming to show behavioural signs of dementia. Click here for more information.

Children, youth and young carers

UK report on young carers

A report by Carers Trust (UK) has found that many young carers experience bullying at school because of their caring role. Caring duties have affected the physical and mental health of many young carers. Click here for more information.

Participants needed for student carer research

Young carers are encouraged to participate in a research studying the impacts caregiving has on the educational needs and experiences of young adult carers in Australian Higher Education. Click here for the poster and here for the flyer.

Young Carers e-Newsletter

Click here for the latest edition of Carers NSW Young Carers e-News, or click here to subscribe.

Chronic conditions and illnesses

Research into carers of people with dementia or delirium

This research project is looking at how carers can help a person who is becoming confused because they are developing dementia or delirium. You will be asked to join an expert panel and complete 3 online surveys over 6 months. For more information, click here or contact Kathryn Chalmers (

Report on improving dementia data

The Australian Institute of Health and Welfare (AIHW) has published a report providing an overview on the status of dementia data, as a supplement to Dementia in Australia (AIHW 2012a), including various references to carers. Click here to read the report.

Carer perspective on early dementia diagnosis

An early diagnosis of dementia with a timely intervention has immense benefits for the carer. Dianne Stewart understands these challenges and has provided a carers perspective in a blog. Click here to read the blog.


Down Syndrome through parents' eyes 

Now I See is a new book of parents sharing stories of life with their child with Down Syndrome. The stories are personal and poignant as parents find it an enriching journey. Click here for more information.

Website promotes inclusion for children with disability

All in! is a new website promoting inclusion for children with disabilities in everyday events and activities in the community. The website provides free basic advice and tips tailored to individual situations. Click here for more information.

Opportunity to become a member of PDCN

Physical Disability Council of NSW (PDCN) is offering individuals with physical disability an opportunity to become a member for free until June 2015. Click here for more information.

Running or setting up a carer support group?

The together program provides opportunities for carer support groups to link with each other and a Regional Assisting Organisation to receive assistance, including some potential small grants to assist in the running cost of the group. Click here for more information.

Employment, finances and housing

Creating Liveable Communities Competition

Minister for Ageing John Ajaka and Minister for Local Government Paul Toole are encouraging local councils to enter the Creating Liveable Communities Competition with innovative projects maximising the liveability of communities in NSW for carers, older people and people with disability. Click here for the media release.

Report on social housing exits

The Australian Housing and Urban Research Institute (AHURI) has published the report Social housing exits: incidence, motivations and consequences which aims to identify factors prompting or deterring tenant-initiated moves out of social housing. The study has noted that moving in with or living closer to a relative to provide or receive informal care is a common pull factor behind exits from social housing. Click here to read the report.

Report on social, public and affordable housing

The Select Committee on Social, Public and Affordable Housing Report Social, public and affordable housing has been tabled with the NSW Government. Click here for the summary of recommendations and here for the report.


Research participants for cancer carers

Are you caring for a spouse with terminal cancer? Or have you cared for a spouse or parent who died of cancer?
You are invited to participate in research about caring for a spouse or parent with terminal cancer. You will be asked to provide some brief details about your spouse or parent’s illness, but the emphasis is on how carers feel about aspects of the social and medical setting in which care is provided, and how being a carer affects wellbeing. For more information or to register your interest, please visit this website or call Katriona Smith (0417 006 556).

New web resource for health professionals

The NSW Ministry of Health has released 'End of Life Decisions, the Law, and Clinical Practice' (NSW) website providing health professionals information in planning for their patients end of life care and making treatment decisions involving a number of complex clinical, legal and ethical considerations. Click here for more information.

LGBTI carers

National LGBTI carers network

As part of the National LGBTI Ageing and Aged Care Conference, a satellite event is organised to bring together Carer Associations, state carer support networks and develop a national strategy to support LGBTI carers. Click here for more information.

Mental health

A father's role when a parent has a mental illness

Children of Parents with a Mental Illness (COPMI) has published the impact fathers have on children and the family when a parent has a mental illness. Click here for more details.


NDIS experiences of carers in NSW

Carers NSW has published an issues paper on the experiences of carers during the first year of the NSW trial of the NDIS. The NDIS one year in: Experiences of carers in the Hunter trial site summarises key themes emerging from feedback provided to Carers NSW by carers and service providers in the Hunter trial site and the rest of NSW. Click here to view the paper and here for the media release.

Reminder to register for NDIS evaluation survey

The National Institute of Labour Studies (NILS) at Flinders University is currently conducting an official evaluation of the National Disability Insurance Scheme (NDIS). If you have already received a letter and registration pack from NILS inviting you to participate, we encourage you to follow the instructions in your pack to register. The more people who respond to the survey the better! Click here for more information.

Older people

Treatment to improve wellbeing for people 65 years or over with a chronic illness

The University of Sydney and beyondblue are conducting a study that looks at how chronic illnesses (e.g., diabetes, arthritis, etc.) affect older adults’ wellbeing. Persons who report at least one chronic illness may be eligible to receive 10 free sessions of psychological therapy with a registered psychologist, or a free online course to maintain wellbeing. Anyone aged 65 years or over are invited to complete a 5 minute survey at this website. If you have any questions, please contact Lauren Roche (; (02) 9351 4257).

New policy to help reduce elder abuse

Minister for Ageing, John Ajaka has announced a new guide
Preventing and responding to abuse of older people: NSW Interagency Policy to help reduce elder abuse in the community. Click here to read the media release.

Blueprint hopes to contribute to ageing population debate

COTA Australia has welcomed the release of Blueprint for an Ageing Australia covering policy options taking into account the changing demographics of Australia. Click here to read the COTA Australia media release and here to read the report.

Conferences and forums

Shaping our future - Respite and Community Care Conference 2014 23-24 Oct 2014, Sydney.

National LGBTI Ageing and Aged Care Conference 28-29 Oct 2014, Melbourne.

Australian National Carer Conference 16-18 Nov 2014, Gold Coast.

The Carers NSW 2015 Biennial Conference, 21-22 May 2015, Sydney.

Training and events

The 4D's Forum, 10 Oct 2014, Sydney, (02) 9464 4630,

ACI NSW Agency for Clinical Innovation - Chronic Care Network Workshop, 13 Oct 2014, Parramatta, (02) 9464 4666,

Understanding Dementia Free Online Course, 13 Oct 2014,

Free Lunch for Carers, 14 Oct 2014, Cobar, (02) 6830 2100.

Family Carer Education (Dementia), 15 Oct 2014, North Ryde, (02) 9805 0100,

Transition for Carers Forum, 15 Oct 2014, Wallsend, (02) 4921 4895,

World Rural Women's Day, 15 Oct 2014, Glen Innes, (02) 6732 3443,

The Happiness Hour - Mental Health Month Event for Families and Carers, 23 Oct 2014, Willoughby, 9481 0177.

Connecting for Successful Ageing, 12 Nov 2014, Kingsford, (02) 9382 3753,

Courage to Care retreat for caregivers, 13-16 Nov 2014, Bungendore, 0488 402 210,

An introduction to Working With Individuals Who have Self-Destructive Behaviour. Various dates 2014, various locations,

Cooking Group for Male Carers. Various dates 2014, Warilla, (02) 4232 0138,

Early Days workshops for parents of children with Autism. Various dates 2014, various locations, (02) 8977 8377,

Family and Carer Mental Health Program - Training and Education. Various dates 2014, Northern Sydney, Western Sydney, Nepean-Blue Mountains, South-Western Sydney, Southern NSW and Murrumbidgee, Hunter New England, (02) 4322 1855.

Learning Links. Various dates 2014, various locations, (02) 8568 8200.

Healthy Steps, Alzheimer’s Australia NSW events for carers, various dates 2014, various locations in Sutherland and St George area, (02) 9531 1928,

My Choice Matters - 'Getting Ready' and 'Get More Skills' workshops on individualised funding. Various dates 2014, various locations, (02) 9211 2605,

Paraquad public courses on caring for someone with a spinal injury. Various dates 2014, various locations, (02) 8741 5662,

Pathways to Leadership, Various dates 2014, Cromer,

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