Carers NSW NDIS Update, May 2016                                                           View this email in your browser

Carers NSW NDIS Update
May 2016

Welcome to the Carers NSW NDIS Update, one of several resources developed by Carers NSW to help carers understand and engage with the National Disability Insurance Scheme (NDIS).

It takes time and effort to understand the NDIS. Many family members and friends (carers) of people with disability in NSW are finding it hard to keep up. The Carers NSW NDIS Update aims to make it easier for carers to stay up to date with NDIS news, resources and events.

Carers NSW resources
NDIS news
Have your say

Featured resources
Upcoming events
Further information

Carers NSW Resources

Grants for activities during National Carers Week
The NSW Department of Family and Community Services (FACS) funds Carers NSW to provide grants of $250 to carer support groups and organisations to plan events and activities for carers during National Carers Week, which this year will run from Sunday 16 to Saturday 22 October 2016. Grant applications can be made online here or via a printed form requested from Click here for more information.

Want to learn more about the NDIS?
Carers NSW has a webpage dedicated to resources for carers on the NDIS. Visit to access a series of fact sheets, links and other information about the NDIS, especially designed for carers.

Workshops for carers on the NDIS
Carers NSW has developed a half-day workshop for carers called Carers and the NDIS. The workshop aims to provide carers with a general introduction to the NDIS, help carers support the person they care for to access the NDIS, and prepare carers to communicate their own needs in relation to the NDIS.

"I've been to five of these workshops and this was easily the most informative." - Workshop participant

We are currently taking registrations for the following workshops:
  • Parramatta, 8 June 2016
  • Manly, 17 June 2016
  • Blacktown, 15 June 2016
  • Penrith, 21 June 2016
  • Ryde, 22 June 2016
Click here for more information. To register, contact our Education and Training team at or (02) 9280 4744.


 More funding to help families get NDIS ready
NSW Minister for Disability Services John Ajaka has announced an additional $3 million to help families prepare for the NDIS. The funding will enable My Choice Matters, the NSW Consumer Development Fund, to continue delivering workshops, resources and e-Learning tools until June 2018. Click here for more information.

Carers critical to accommodation access
The Parliament of Australia Joint Standing Committee on the NDIS has published a report on accommodation for people with disabilities and the NDIS. The report contains a section on the important role of family carers, quoting a submission made by Carers NSW (pages 38 and 39). Click here to read the report.

Concerns about transfer of ADHC
The NSW Council for Intellectual Disability has released a Joint Position Statement (in partnership with Family Advocacy, Carers NSW and the NSW Council of Social Service) on the transfer of NSW Government disability services to the non-government sector. Click here to read the position statement.
NDIS in the Federal Budget
Minister for Social Services Christian Porter has reported that the Australian Government will meet the future costs of the NDIS through $2.1 billion of Budget savings in a new Special Account. The savings come from Budget cuts including the scrapping of a national ad campaign for the NDIS and minor adjustments to the Carer Allowance. Disability advocates are concerned that scrapping the campaign may affect community awareness about the NDIS at a critical time and do not think the NDIS should be funded by welfare cuts. Click here or here for more information.
NDIS supports over 7,000 NSW residents
The latest NDIS quarterly report (as at 31 March 2016) showed the NDIS was supporting 7,593 participants in NSW. It also included the following findings for NSW:
  • Participants who identify as Aboriginal or Torres Strait Islander - 6.5% (Hunter), 1.7% (Nepean Blue Mountains)
  • Participants with an culturally or linguistically diverse background - 8.7% (Hunter), 3.3% (Nepean Blue Mountains)
  • Most common primary diagnosis - Autism and related disorders (NSW overall)
  • Plans approved within 90 days of access request - 48% (Hunter), 74% (Nepean Blue Mountains)
  • Receipt of support within 180 days of access request - 79% (Hunter), 74% (Nepean Blue Mountains)
  • Self managed plans - 2% (Hunter), 12% (Nepean Blue Mountains)
  • Ineligible applicants - 9.8% (Hunter), 3.6% (Nepean Blue Mountains)
  • Participant / family / carer satisfaction with NDIS - 99% (NSW overall)
Click here to read the full report.

Families fall through gaps ahead of NDIS rollout
Radio station 2GB broadcast an interview with a carer about challenges her family experienced accessing respite due to unexpected funding gaps created ahead of the rollout of the NDIS. Click here to listen to the interview.

Official NDIS e-newsletter 
You can find the latest official e-newsletter for the NDIS here or sign up for their regular updates here.

Have Your Say

Have your say on the future of carer support
The Australian Government is looking at developing an Integrated Carer Support Service to better support and sustain the work of unpaid carers. They are seeking feedback about the types of services that could be delivered in the Integrated Carer Support Service. 

We encourage as many carers as possible to have a say on the future of carer support alongside the NDIS. The deadline for written submissions has been extended to 16 June 2016. Further consultation is planned for later in the year. Click here to read the discussion paper or here to make a submission.

Do you know someone aged 16-25 caring for a family member with a severe injury?
Carers NSW wants to talk to them about what types of support might make a meaningful difference for them and other young people in similar situations. This study will give young people caring for a family member a rare opportunity to express their ideas and concerns. Participants will be given a gift voucher as a thank-you for participating. Click here for more information, or email

Tell us about your experiences of the NDIS
Carers NSW Policy Team want to hear about carers' experiences of the NDIS. If you live in NSW and are caring for an NDIS participant, you can share your story with us in any of the following ways:

Featured Resources

Carers and the NDIS
In April 2016 a blog article from Carers NSW CEO Elena Katrakis was published on the NSW Government's NDIS website, highlighting the impacts of the NDIS on carers in NSW. Click here to read the blog in full.

Maintaining family relationships under the NDIS
Disability Services Consulting have published a brief article about the scope of NDIS funding to cover services to help participants maintain family relationships. Click here to read the article.

Community resources on NDIS preparation
Community Disability Alliance Hunter (CDAH) runs monthly planning cafes to support people with disability and their carers in engaging with the NDIS. They publish notes from each event on their website. Click here to read their tips about making service agreements, or here to read about setting up circles of support and microboards.
Are we NDIS ready?
International expert Dr Simon Duffy was recently interviewed by ABC Radio about how he thinks the NDIS will work and what we can learn from similar programs in other countries. Click here to listen to the interview.
Learn about the NDIS from someone like you
Carers Australia's Peer Conversation Partners Project puts carers of people applying for the NDIS in touch with carers whose loved one is already accessing the NDIS. These trained carers are available to share their experiences and tips in approaching the NDIS planning process. Click here for more information or contact (02) 6122 9900 or

Peer mentors available in the Hunter trial site
The Community Disability Alliance Hunter (CDAH) Peer Mentoring program provides one-to-one peer support and guidance to people with disability and their family members who have a specific goal to get the most out of the mentoring relationship so people can grow and develop in their own lives and communities. Click here for more information.

Free support to help you plan
People with disability and their families and carers receiving funding or services from the Department of Family and Community Services (FACS) / Ageing, Disability and Home Care (ADHC) may be eligible for up to 12 hours of free individual support planning to prepare for the NDIS. Click here for more information. To register your interest, contact your case worker or the ADHC intake line for your area, which you can find here.

Upcoming Events

Click on a link for more events by area:


  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • NDIS Planning Cafes and Peer2Peer meetings run by Community Disability Alliance Hunter (CDAH). Various dates 2016, Charlestown, Maitland, East Maitland, Wallsend. Click here for more information or call 0490 053 454 or


  • Official NDIS information sessions and workshops run by the NDIA. Various dates and locations 2016. Click here for more information or call (02) 4942 9200.
  • General information sessions and 'plan ready' workshops run by Community Connectors from UnitingCare Disability (RSVP only). Various dates and locations. Call 1300 883 430 for more information.


  • Get More Skills workshops run by My Choice Matters, various dates and locations 2016. Click here for more information or call 1800 144 653.
  • Getting ready for the NDIS: A workshop for carers run by Carers NSW. Various dates and locations 2016. Click here or contact (02) 9280 4744 or for more information.
  • Supported Decision Making workshops for young people with disability aged 14-18 years and their families and carers run by Carers NSW. Various dates and locations 2016. Click here for more information and here for a full schedule of dates, or contact (02) 9280 4744 or
  • Future Planning run by Family Advocacy. 29 June 2016, Dubbo. Call 1800 620 588 for more information.
  • Futureability Project CALD community education sessions run by Settlement Services International. Various dates and locations 2016. Click here for more information.
Some of the events promoted in these updates are run by organisations that are registered providers for the NDIS. Attending their event does not mean you have to choose them as your NDIS provider. Participants and their families can choose the providers they want.

Further Information

For more information and resources about the NDIS: This update is not endorsed by the National Disability Insurance Agency (NDIA). It has been developed by Carers NSW based on publicly available information. Every effort has been made to ensure that all information is correct and up to date. However, it should be used as a guide only. All information should be verified with the NDIA.
Copyright © 2016 Carers NSW, All rights reserved.

Want to change how you receive these emails?
You can
update your preferences or unsubscribe from this list