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Welcome to the July 2013 eBulletin!

The Carers NSW eBulletin is an electronic newsletter for professionals interested in carer-related issues. It features research, policy and best practice, plus news, publications and conferences, training and events. From now on, the eBulletin will be sent out monthly rather than bimonthly.

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In this edition...

CALD carers
Children, youth and young carers
Chronic conditions and illnesses
Disability
DisabilityCare Australia / NDIS
Employment, finances and housing
GLBTI carers

CALD carers

Better care for older Australians from CALD backgrounds

The Federal Government has announced funding for 16 organisations to support older Australians from culturally and linguistically diverse backgrounds in aged care. Click here to read the media release.

Changes to free interpreting services

A number of initiatives have been announced to improve service delivery under the Free Interpreting Service, which assists NGOs to communicate with non-English speaking citizens and permanent residents. Click here for more information on the changes.

Consensus on a mental health agenda for people of refugee background

This report presents the results of a study on the need to develop a research agenda on the mental health of people of refugee background. Click here to download the report.

Children, youth and young carers

New counselling services for young carers of people with mental illness

Carers Australia has received a $250,000 funding boost to train around 100 counsellors to better support young carers of people with mental illness. Click here to read the media release.

Young carers need more support

A recent ABC news article has reported on the challenges faced by young carers of people with a mental illness. Click here to read the article.

Resources for people who have attempted suicide and their families

BeyondBlue has contracted the Hunter Institute of Mental Health to develop resources for people who have attempted suicide and their family and friends. Click here to read the media release.

Better support for students of special schools

More than 350 special schools across Australia will benefit from $76 million to better support children with multiple and complex disability and their teachers and carers. Click here to read the media release.

Better support for children with a disability in rural and remote areas

The Federal Government has announced $450,000 to increase the coverage of early intervention services through the Better Start for Children with Disability and Helping Children with Autism programs in rural and remote areas. Click here to read the media release.

Chronic conditions and illnesses

Men's sheds: making a difference to dementia carers

A new short film reflects on the impact of men’s sheds in the Hunter region on the social isolation felt by men caring for someone with dementia. Click here to view the film on YouTube.

More funding for people with dementia

The Federal Government has announced more funding to support people living with dementia through a number of project grants. Click here to read the media release.

Discussion paper on death and dementia care

Alzheimer’s Australia has released a discussion paper aimed at generating discussion about how people with dementia and their carers are supported with regard to end-of-life care. Click here to download the paper.

Incontinence in Australia

The Australian Institute of Health and Welfare has published a report on the prevalence, experiences and cost of incontinence in Australia. Click here to download the report.

New resources on epilepsy management

The Epilepsy Foundation of Victoria has launched a suite of resources to aimed at providing people with a disability living with epilepsy, their carers and disability services with tools to better understand and manage epilepsy. Click here to view the resources.

Research participation - chronic disease

Researchers at Griffith University are exploring the perspectives of health consumers on the burden of chronic illness and multiple treatment regimes. Health consumers and their carers from the Northern Rivers region of NSW are invited to participate. Click here or contact 1800 600 687 or chronicillness@griffith.edu.au for more information.

Research participation - manual handling and carers

Researchers from the University of Newcastle and Carers NSW are conducting research on carers and manual handling. Primary carers of individuals with a chronic illness or disability are invited to participate in an online survey. Click here for more information.

Disability

Supported Living Fund round 3 open for applications

The third and final round of the Supported Living Fund (SLF) is now open for applications from people with disability and their carers. The application deadline is Friday 30 August 2013. Click here to read further details on the ADHC website.

Fact sheets on managing person centred funding

Carers NSW has developed a set of ‘easy read’ fact sheets for people with a disability and their carers who are accessing individualised funding packages. Click here to view the list of topics.

'together': support groups for carers of people with a disability

The together program provides opportunities for new and existing support groups for carers of people with a disability to be linked in with each other and receive information, education, training and some financial assistance. Click here to view the website.

Briefing paper on Autism Spectrum Disorder

The NSW Parliamentary Research Service has published a briefing paper on Autism Spectrum Disorder (ASD), covering its impacts, the effectiveness of various types of early intervention programs and current policy initiatives and reforms. Click here to download the paper.

Creating community connections for people with an Autism Spectrum Disorder

Creating Community Connections is a free program provided by Autism Spectrum Australia which offers support for adolescents and adults and their carers to plan for active community involvement and rewarding personal relationships. Click here to see the flyer or contact slundback@autismspectrum.org.au or (02) 8977 8348 for more information.

Research participation - stress in parents of children on the Autism spectrum

Parents who have at least one child diagnosed with an Autism Spectrum Disorder are invited to participate in a survey on personal growth and experiences of stress following the diagnosis of their child. Click here or contact Shannon Morrison at 716144@swansea.ac.uk for more information.

Burwood Council survey of people with a disability and their carers

Burwood Council is conducting a survey to assist with an update of their Disability Action Plan. The survey is open to people with a disability, their carers and service providers in Burwood. Click here for more information about taking part.

DisabilityCare / NDIS

DisabilityCare commences in four launch sites

DisabilityCare launched on 1 July in NSW, Victoria, South Australia and Tasmania. Click here to read the media release. Click here for details about the launch sites.

New DisabilityCare website

The new DisabilityCare website is now the central source of information, resources and services relating to the rollout of DisabilityCare in the launch locations. You can view it at www.disabilitycareaustralia.gov.au. The website includes the following new information:
  • a list of published resources helping individuals and organisations to transition to DisabilityCare (click here)
  • links to the recently released NDIS Rules (click here)
  • a standard price list for common supports (click here)

Employment, finances and housing

More flexibility for working carers

Changes to the Fair Work Act took effect on 1 July, giving workers with caring responsibilities the right to request flexible workplace arrangements. Click here for more information.

Low workforce participation of people with a disability and their carers

This article by the Australian Network on Disability reports on the low employment rates of people with a disability and their carers. Click here to read the article on their website.

Research participation - workforce vulnerabilities for over-40s

Researchers in Melbourne are conducting a study into workforce vulnerabilities from mid-life onwards. People living in South Western Sydney having difficulty finding any or enough work are invited to participate. Click here or contact Dr Michael McGann on (03) 9483 1395 or mmcgann@unimelb.edu.au for more information.

Help to pay your power bills

This article by the Public Interest Advocacy Centre (PIAC) provides information about rebates and financial assistance that may be available to you to help you pay your energy bills. Click here to read the article.

Fewer housing options for people with disability and their carers

A report released by Urbis Property Consultants has found that people with disability and their carers often live in regional, rural and outer suburban areas because of barriers to workforce participation experienced by both groups. Click here to read the report.

Scholarships for young people in social housing

Applications are open for the 2014 round of the Housing NSW Youth Scholarship program, which will assist 200 young people living in social housing or on the NSW housing register to complete their HSC or TAFE equivalent. Click here for more information.

GLBTI carers

Better care for older LGBTI Australians

The Federal Government has announced new funding to improve the responsiveness of the aged care system to the needs of LGBTI Australians. Click here to read the media release.

Substance support service for the gay, lesbian, bisexual and transgender community

Make Your Move is a support service for individuals who want to better manage, cut down or quit their drug or alcohol use and their partners, families and friends. Click here for more information.

Health

New website and extra funding for Medicare Locals

Medicare Locals coordinate and deliver after-hours GP services, immunisation, mental health support, targeted and tailored services for those in need, and eHealth. A new website has been set up and extra funding provided to improve services. Click here for more information.

Dental services inquiry report

This report on the Parliamentary inquiry into dental services in Australia refers to barriers experienced by older people, people with disability and other people on low incomes in accessing appropriate dental care and maintaining dental health. Click here to download the report.

Koori carers

Short film raises awareness of depression in Aboriginal communities

A short film produced by BeyondBlue highlights the importance of support from family, community and health services when dealing with depression and anxiety. Click here for more information or to view the film.

You're not alone: film discussing dementia for carers in Aboriginal communities

This short film has been produced to help carers of people with dementia in the Aboriginal community, and features Birpai Elder Uncle Bill O’Brien discussing his experiences of caring for his mother. Click here to view the film.

Mental health

Support for carers of people with mental illness

The Federal Government has announced that it will invest more than $3.1 million over three years to trial initiatives supporting carers of people with mental illness with their training and employment goals. Click here to read the media release.

Towards a strategic plan for mental health in NSW

The Mental Health Commission of NSW is developing a draft Strategic Plan reflecting the views and experiences of people who experience mental illness, their family members, carers and the wider community. This feedback will inform a new direction for mental health care and support in NSW. Click here or call (02) 9859 5200 for more information or to register to participate.

Research into support needs of people affected by suicide

BeyondBlue has announced a new project investigating the support needs of people who have attempted suicide and their families, friends and carers. Click here for more information.

Improved support for people with eating disorders

As part of mental health funding announced for the 2013-14 Budget, the NSW Government is committing $1.6 million to improve access to treatment for people with eating disorders. Click here to read the media release.

Partnerships in Recovery inititative to better link services across sectors

Partnerships in Recovery will improve links across sectors, services and supports to better meet the needs of Australians with severe and persistent mental illness. Click here to read the media release.

Older people

More respite for carers of older Australians

The Federal Government has announced greater access to support for carers of frail older people through 55 respite services as part of the Living Longer Living Better aged care reforms. Click here to read the media release.

Aged care reforms passsed, including My Aged Care gateway

Legislation implementing key reforms to aged care have now passed through both houses of Parliament. The reforms include the rolling out of Consumer Directed Care and a ‘one stop shop’ for accessing aged care services. Click here to read the media release. Click here to access the new My Aged Care gateway or call 1800 200 422.

Mistreatment of older people: is it time to legislate against abuse?

The neglect of 88 year-old Cynthia Thorensen by her daughter and carer in Queensland made the news headlines in May and has prompted discussion about whether elder abuse should be criminalised. Click here to read the news article.

NSW Elder Abuse Helpline and Resource Unit

The NSW Elder Abuse Helpline and Resource Unit provides information, advice and referrals to prevent and stop the abuse of older people. For more information, or to report a case of abuse, call 1800 628 221.

Guide to family law for grandparent primary caregivers

The Family Law Reform Association has released the fifth edition of their Grandparents’ Family Law Information Guide. The guide contains useful information for grandparents who are primary caregivers of their grandchildren. Click here to download the guide.

Research participation - carers of older people

A PhD candidate from the University of Queensland is researching the impact of caring on roles at work and home and on carers' health and wellbeing. Carers of older people from across Australia are invited to participate. Click here to find out more, or contact Claire Greaves at c.greaves@uq.edu.au

Technology

Standards for live television captioning for the hearing impaired

A new legislative instrument has been introduced to govern the quality of television captioning services for deaf and hearing impaired viewers. Click here to read the legislation.

Online depression support with 'dNet'

dNet is an information resource and peer support tool for people living with depression and their families and friends. Click here to visit the website.

Conferences and forums

Younger Onset Dementia Conference 11-12 July, Sydney.

Children, families & parental mental illness evaluation and research symposium 12 July, Sydney.

COTA Australia National Policy Forum 23 July, Canberra.

National Suicide Prevention Conference 24-26 July, Melbourne.

International Mental Health Conference 5-7 August, Surfers Paradise.

Belonging Matters Conference: One person at a time 13-14 August, Blackburn VIC.

Australian Palliative Care Conference 3-6 September, Canberra.

NDS Employment Forum: What works 8-10 October, Gold Coast.

Australian Men's Shed Association National Conference 27-29 October, Ballarat VIC.

Australian Society for Intellectual Disability Conference: 'Our time' 6-8 November, Sydney.

World Hearing Voices Congress 20-22 November, Melbourne.

Training and events

Carers Week grant applications now open Applications close 2 August.

'Talk link' for carers of someone with an Acquired Brain Injury Tuesdays from 13 August, via telephone. Call the Carer Line on 1800 242 636 for more information.

'Talk link' for carers on grief and loss Tuesdays from 13 August, via telephone. Call the Carer Line on 1800 242 636 for more information.

Carer Wellbeing Group Tuesdays from 13 August, Sydney. Call the Carer Line on 1800 242 636 for more information.

Free courses for mental health carers Various dates and locations, (02) 9481 0177.

Understanding grief in families with a child with a disability 9 July, Miller, (02) 4628 9332.

Support meeting for fathers and grandfathers of children with an Autism Spectrum Disorder 9 July, Burwood, (02) 8977 8335.

NSW Carers (Recognition) Act obligations information sessions 16 July, Parramatta and 22 July, Campbelltown, (02) 9377 6553.

Managing challenging behaviours workshop for parents Wednesdays 17 July - 4 September, Tahmoor, (02) 4683 2776.

Independent Living Centre open day 17 July, Blacktown, (02) 9912 5820.

Social Role Valorisation Theory training 17-18 July, Burwood, 0405 071 577.

Free information sessions for carers of children or young people 23 and 30 July, 6 August, Charlestown, (02) 4921 4895.

Support group for carers of young people with mental health issues 25 July, Parramatta, (02) 8842 8289.

Positive parenting for parents of children with a developmental disability Saturdays from 27 July - 14 September, Marrickville, (02) 9572 8840.

Course for carers of a family member with dementia Mondays from 5 August - 9 September, Penshurst, (02) 9580 0688.

Person centred planning with PATH and MAPS 7-9 August, Parramatta, 0409 646 665.

Partners in Depression training program 16 August - 20 September, Marrickville, (02) 9378 1406.

Grief, loss, transition and change - working with families course 26-27 August, Burwood, (02) 9523 3567.

Eight stage healing process for carers of someone with a mental illness Thursdays from 29 August, Tweed Heads, (07) 5524 8711. 

Velocardiofacial Syndrome (VCFS) Family Camp 30 August - 1 September, Picton.

Pole Depot carers' weekend away 25-27 October, Mittagong, (02) 9580 0688.
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