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ANN June Newsletter
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ANN Newsletter | June 2015

MDA/ANN Conference 2015

Thank you to all those who attended the MDA/ANN Conference in April. We were most grateful for the MDA and our New Zealand ANN members for their wonderful hosting and hospitality.

The conference kicked off with a bang with the Pre-conference Workshop: Exome Sequencing For Clinicians. With thanks to our session Chair, Nigel Laing and our speakers Mark Davis, Gina O'Grady, Macarena Cabrera and Lyndal Douglas, the session was recorded to be shared as an educational resource for all ANN members. Stay tuned for details!

We had the valuable opportunity to hear from our Early Career Researchers (ECR) and students at the conference during the program. Feedback from one of our presenters highlighted the benefits of including researchers early in their careers: "It was a fabulous experience and a big step in my research career. The opportunity to present my research amongst friends and peers was very much appreciated. The experience of standing up and delivering my first oral presentation, whilst a nerve wracking challenge was also an invaluable lesson for me.
I was chuffed to be asked several questions following my presentation and informally afterwards. Thank you for providing a warm and encouraging “first” experience of presenting research at a conference."  Rachel Kennedy [M.Phil candidate, Physiotherapist, The University of Melbourne].

We congratulate our ECR prize winners:
Gina O'Grady, Children’s Hospital at Westmead for her oral presentation "Improved Diagnosis Of Congenital Muscular Dystrophy Through Next Generation Sequencing".

Macarena Cabrera, Harry Perkins Institute of Medical Research for her poster on "Genetic Defects in Patients with Rhabdomyolysis".
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Update 

During the MDA/ANN Conference, we were fortunate to meet with AHNA members to discuss our progress and future directions. We learned from the careers of Josh Burns, Kristy Rose, Paula Bray and Zoe Davidson. We also had the opportunity to be briefed on the development of Best Practice Guidelines for Duchenne muscular dystrophy. Please stay tuned for the Delphi process that will seek your feedback on the draft guidelines!

Welcome to our newest AHNA Members!
Following the meeting, we welcomed 10 additional members to the Alliance. We now have 54 members included in AHNA and look forward to working closely with our newest team members!

Weight management for DMD blog released
A recent blog has been released by one of our AHNA members in dietetics, Zoe Davidson. The blog is a great resource for clinicians, researchers and the community alike regarding the importance of weight management for boys with Duchenne muscular dystrophy. Click here to view the blog and well done Zoe!

Upcoming conference: ANZCNS Scientific Meeting

The 4th Annual Scientific Meeting of the Australia and New Zealand Child Neurology Society will be held in Melbourne at the Woodward Conference Centre, University of Melbourne. 
There are two international keynote speakers - Dr Adeline Vanderver from Washington who will discuss her research into leukodystrophies and Professor Mary Reilly from London who will talk about Charcot-Marie-Tooth disease. 

This year’s themes include stroke, movement disorders, cerebral palsy and acquired brain injuries, epilepsy and neuroimaging. A large proportion of ANZCNS members are expected to attend, along with paediatricians and delegates from other allied specialties. We also have a number of platform presentations to focus on local researchers. 

Dates: 26th - 28th August 2015
Venue: Woodward Conference Centre, University of Melbourne
Registration: Follow this link to register - early registration closes 10th July!
Thanks again for another successful ANN Meeting this year! We look forward to sharing more of our news and achievements with you soon. Until our next newsletter, please keep up to date and in touch with us by following our new Twitter page!

Kind regards,
ANN Coordination Team
Copyright © 2015 Australasian Neuromuscular Network, All rights reserved.

Our mailing address is:
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Level 5, The Royal Children’s Hospital
Flemington Road Parkville Victoria 3052 Australia

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