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Issue 146, Get some friends together and Serve it Up for CF this September
Issue 146
August 2015

Serve it Up for CF this September


With the weather warming up soon, (hopefully!), you'll no doubt be planning on entertaining at home. Why not host an event and ask guests to donate what they would have spent on a night out? It could be anything from casual nibbles and drinks to a full banquet, it's up to you!

Everyone holding a Serve It Up event in September will receive a free apron and Masters of Menu cookbook for some inspiration!

Visit the website here for some ideas to get you started.

Lend a Hand at Upcoming Events

Can you lend a hand at some upcoming fundraising events? Take a look at the dates below and please get in touch if you are available to help. 

Deloitte Spring Rose Art Exhibition opening
Evening of Monday 14 September
Volunteers with food & beverage service experience preferred.

Great Strides Perth
Sunday 25 October
Lend a hand around the course in various roles.

Convicts for a Cause
Evening of Saturday 7 November
Volunteers with food & beverage service experience preferred.

If you can lend a hand at any of these events please get in touch with Shelley via email or on 08 9346 7339.

Country Patient Assistance Scheme

Did you know regional members are eligible for a travel subsidy of $50-$150 each clinic or hospital visit to Perth?

No retrospective payments over 30 days will be made so please get your subsidy forms in as soon as possible following travel.

You can fill out and return the subsidy form online here.

Starting School with CF Information Evening

CFWA’s annual “Starting School with CF” information evening is coming soon.
 
Date: Monday 21 September 2015 
Time: 6.30 pm
Venue: CFWA office, The Niche 11 Aberdare Road (cnr Hospital Ave), Nedlands
 
We will begin the evening with tips on pill swallowing and then share ideas on how to communicate with your child’s school about: enzymes, the CF diet, toileting, cross infection, hydration and more.
 
There will also be a variety of CF education resources available for you to take home, too. Drinks and nibbles will also be provided.
 
Please RSVP by 10.30 am Monday 21 September to Natalie Amos via  email or phone 08 9346 7337.

Siblings and Offspring Camp


The 2015 Siblings and Offspring camp will be held at Bickley Recreation Camp on 8-9 October. The camp is designed especially for children aged 8 to 16 years with a sibling or parent with CF. Activities include canoeing, vertical challenge, mountain bike riding, flying fox, search and rescue, team building games and group workshops.
 
Registration packs were sent out earlier this week so if you have a child who is eligible to attend and did not receive an invite, please contact Gillian via email or on 08 9347 3339.
 
Thank you to the Commonwealth Bank Staff Community Fund for supporting this important event.

Steve Waugh Foundation Grant


The Steve Waugh Foundation provides grants to individuals/families to support children and young adults aged 0-25 years who have a rare disease.

The Foundation will consider supporting individuals with funding for the following:
  • Medicines
  • Treatment
  • Equipment
  • Some, but not all, minor house renovations or items that improve the quality of life for the applicant and their family
Click here for more information about the funding guidelines.

Good Luck City to Surf Runners!


Good luck to our runners in the City to Surf supporting CF this weekend. We hope you have a great one!

Together the "Rose Runners" for CF have raised over $4,000 and counting!

Bunbury Coffee Morning

A number of parents, including some new members to our community, enjoyed morning tea and the opportunity to network, share ideas and support with others including some members from the services team.

The services team are also able to provide regional education to day care, schools and hospital staff.  Regional support is possible due to the generous support of Telethon and our wider community.

Wall of Roses

15-25 September
There's still time to help complete our "Wall of Roses" for the Deloitte Spring Rose Art Exhibition.

Both adults and children are invited to take part. We will provide a small canvas to paint.

If you'd like to paint a canvas please contact Shelley via email or on 08 9346 7339.

PEPTalk Online


PEPTalk is an online space for people aged 13-25 who are impacted by cystic fibrosis (CF) in some way.

PEPTalk is a safe and supportive space to chat, share ideas and get support. It is also a place where you can talk about things that have helped and give insights as to what worked for you and hear what has worked for others.

Join the PEPTalk closed Facebook group here.
Confirmation of your acceptance into the group may take a day or two and moderators may have some questions so please check your Inbox (or “other” folder) in case you get a message back from a moderator. 

PEPTalk is a closed Facebook group managed by a group of trained moderators who will make sure that it continues to be a safe space for all users.

PEPTalk was previously known as Connecting Up Adolescents and was run as a dedicated forum. This forum has now been replaced by the PEPTalk closed Facebook group.

In This Issue

Serve it Up this September
Volunteers Needed
Country Patient Assistance
Starting School with CF Info
Sibs Camp
Steve Waugh Grant
City to Surf Runners
Bunbury Coffee Morning
Wall of Roses
PEPTalk Online

Upcoming Events


Spring Rose Art Exhibition
15-25 September, Woodside Foyer Area
More info

Serve it Up for CF
September
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