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$20m CF research funding, 65 Roses, new CF Talk video and more!
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$20m CF Research Funding

Amazing cystic fibrosis (CF) research news from right here in WA!

Telethon Kids Institute (TKI) spin-off company Respirion has been awarded $20 million in funding to develop a new treatment that looks very promising for people living with CF. Initial trials of the treatment have shown a significant lung function improvement in patients.

Read more about this exciting news at the TKI website.

Thank you also to CFWA members the Donaldsons, for sharing your story with the media during the week to promote this great news!

OUR SUPPORT

We provide a range of services to individuals and families affected by cystic fibrosis.
Home & Hospital Care
Subsidies & Equipment
Education & Training
Resources

GET INVOLVED

Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
Give Now
Shop
Events
Host a fundraiser

65 Roses at Work or School

We need your help to paint WA with roses for cystic fibrosis (CF) this 65 Roses Day, Friday 24 May.

Every year, generous supporters from all around WA support people with CF by selling fresh colourful roses in their community, workplace and schools.

Here’s how it works
1. Pre-order fresh roses for 65 Roses Day
2. We’ll deliver them to you on the morning
3. Sell your roses and deposit the funds you raise to Cystic Fibrosis WA!

These funds will help us continue our vital support services and research funding for people living with CF. Visit our website for plenty of free resources and to get involved.

New CF Talk Episode - Careers and Future Planning

Part 4 of our CF Talk video series is now live!

In this episode, our participants share how they've juggled work, building a career, aspirations and future planning.

Click here to watch now and visit our website to see the other episodes in the series.

5 Feet Apart Film Discussion

You may have heard of a new film being released, 5 Feet Apart, that follows the story of two young adults living with cystic fibrosis (CF).

While there are positives in raising awareness of CF and the risks of cross infection through the film, we understand that it may raise concerns for some people.

We believe it shows an American “Hollywood” approach to CF, which sensationalises aspects of the condition not necessarily accurate to our Australian audience.

Visit our website to read our movie FAQs and discussion on some of the issues raised.

Parents & Carers Group Fitness Training

Calling all parents and carers of people with CF!

Would you be interested in heavily subsidised group training sessions? We are exploring the possibility of this new service to members and want to hear your ideas.

Please fill out this quick survey here and let us know!

Parents and Carers Mag Coming Soon

Have you seen CF Talk, our new interactive magazine for young people? This first edition we share stories from people with CF about landing your dream job, taking medication at school and much more!

We are also releasing an edition for parents and carers very soon, so watch this space!

CFWA AGM

All CFWA members are invited to attend our Annual General Meeting and Elections Evening.

Date: Wednesday 17 April 2019
Time: 7:00pm for 7:30pm start
Venue: The Niche Conference Room, 11 Aberdare Rd Nedlands WA 6009
Guest Speaker: TBC

Refreshments will be served following the AGM. Please RSVP for catering purposes by Friday 12 April to info@cfwa.org.au or on 08 6457 7333.

Conquer Cystic Fibrosis Ball


Tickets for the 2019 Capel Vale Conquer Cystic Fibrosis Grand Ball will go on sale Monday, March 25.

Date: 18 May 2019
Time: 7:00pm - 1am
Venue: Grand Ballroom, Crown Perth
Tickets: $210 pp. Corporate sponsorships are also available

The event has been organised by the committee of volunteers behind Conquer Cystic Fibrosis, which is focused on raising funds for research to improve and extend the lives of the 3,300 Australians with cystic fibrosis.

For more information and to book your tickets click here.

Albany Regional Outreach

Some of the CFWA team are hitting the road and heading to Albany next week, to provide health professional education and catch up with members in the area.

We'll be providing CF education to Albany Hospital nursing staff with a special guest appearance from one of our mums. We'll also be visiting local GP surgeries to deliver health professional CF resources and information.

There are still spaces left for the outreach dinner for members in the area.

Venue: White Star Hotel, 72 Stirling Tce, Albany
Date: Thursday 28 March 2019
Time: 6.30pm

To RSVP please contact Kathryn at servicesmanger@cfwa.org.au or on 08 6457 7333. Please note, this is an 18+ event and our infection control guidelines apply. For more information visit our website.

Dept of Health "Rare Bake Off"

Thursday 28 February was Rare Diseases Day and the communications team at the Department of Health held a “Rare Bake Off” morning tea in their office.

They baked a selection of cakes and asked taste testers to vote with a donation for their favourite cake. All the funds raised through voting, an awesome $218, went towards their chosen charity, Cystic Fibrosis WA!

Thank you to the bakers and the taste testers for putting together this creative cake community fundraiser for cystic fibrosis.

Entertainment Books Pre-Order Now!


The 2019/2020 Entertainment Book is coming soon.

Pre-order your book or online membership now to access hundreds of great deals and help support people living with cystic fibrosis at the same time!

Click here to order now.

Razzamatazz Tickets


Cystic Fibrosis WA members are invited to a FREE Razzamataz comedy and variety show.

Date: Saturday 11 May
Time (3 sessions): 11:00am, 1:30pm, 4:00pm
Venue: Perth Convention & Exhibition Centre

For more information and to RSVP please click here.
Copyright © 2019 Cystic Fibrosis Western Australia, All rights reserved.


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