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Exciting new CF treatment, 65 Roses, New CFWA social worker and much more!
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New Triple-Combination Therapy Announced!

Vertex Pharmaceuticals has announced a triple-combination therapy that, if approved, could vastly expand the treatment options for people living with CF.

This therapy is a combination of VX-445 (elexacaftor) and tezacaftor/ivacaftor (Symdeko®). The company is planning to submit the drug application to the U.S. Food and Drug Administration in the third quarter of this year.

This is great news for people with CF in Australia, as access to drugs like Kalydeco and Orkambi in the U.S. have historically paved the way for subsidised access to these treatments in Australia. Click here for more information.

OUR SUPPORT

We provide a range of services to individuals and families affected by cystic fibrosis.
Home & Hospital Care
Subsidies & Equipment
Education & Training
Resources

GET INVOLVED

Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
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Thanks For Helping Paint WA with Roses!

Thank you, thank you, thank you!

65 Roses Day was a huge success, thanks to an army of supporters from all over Western Australia! Thank you to our major supporters Wafex, South Metropolitan TAFE (some of the team pictured here) and Telstra for making the event possible.

Thank you to our ambassadors and community representatives for sharing your story and spreading awareness of CF in the media. Thank you to our hundreds of volunteers who helped prepare and then sell over 16,500 fresh colourful roses all over WA.

And finally, thank you to everyone who bought a rose on 65 Roses Day, to support people living with CF!

Returning funds raised and empty buckets
If you have money, left-over merchandise or empty buckets to collect, please get in touch with us at events@cfwa.org.au or on 08 6457 7333.

Pictures from the Day
If you have any pictures from the day we've love to share them! Please send any images to communications@cfwa.org.au

Welcome Haylee!

We would like to welcome Haylee to CFWA services team as our new social worker.

Haylee has a wealth of experience working with families and young people at Starship Children’s Health in New Zealand.

She will be working two days a week at CFWA and is looking forward to meeting all our families.

PCH Hospital Visits

Do you want a hospital visit from Cystic Fibrosis WA? Please call to let us know!

Unfortunately CFWA are not able to visit families at PCH to deliver hospital bags during an admission at the moment. We are working closely with PCH to try and come up with a solution to make sure nobody misses out, but in the meantime please give us a call on 08 6457 7333 if you would like us to come and see you.

Visits will occur on a Thursday so please let us know if you are in. We will still be leaving bags with PCH staff to deliver to all inpatients.

VAULT & Exchange Tower Spin Challenge

The VAULT & Exchange Tower Spin Challenge is in full spin!

This year, the event organisers have expanded their challenge to a giant three-day event supporting Cystic Fibrosis WA and the Steve Waugh Foundation.

Together, the teams riding have raised over $11,500 and counting. Thank you all for your amazing support, what a great way to book end May, the national month of CF awareness!

Visit the event page to see how their fundraising is going!

HBF Run Thank You

We would like to send a massive thank you to all the teams and individuals who ran in the HBF Run for a Reason in May.

Together you raised over $28,270 for the CF community!

We loved seeing your photos on our social media and hearing about your achievements with new personal bests and reaching your fundraising targets.

Tax-Deductible Gift


The end of financial year is almost here. Will you please help people like Isobel and Ruby with a tax-deductible gift? Click here to read Isobel and Ruby's story.

A donation to Cystic Fibrosis WA will enable us to continue our vital support services and critical research funding for people living with CF.

Any gift over $2 is tax-deductible. Click here to give now.

New Mental Health Gap Funding


We are excited to announce a new mental health subsidy, available to adults living with CF in WA, to provide more affordable access to clinical counselling support.

If you're struggling with mental health, we are now able to offer a $50 gap payment per session to subsidise a community-based psychologist, social worker or counsellor in your area. This is in addition to the subsidised sessions available through a GP Mental Health Care Plan and Medicare rebate.

For more information and to access this subsidy visit our website.

Australasian CF Conference - CFWA Subsidies


The Australasian CF Conference is heading to Perth this August, and we are excited to be able to offer generous subsidies to help WA members attend the lay conference.

This is a great chance to hear about the latest advances in CF care from health professionals all over the world!

Event Details
Date: 3-6 August 2019
Venue: Crown Tower Perth
Registration: For more information and to register visit our website

Conquer Cystic Fibrosis Ball


Congratulations to Conquer Cystic Fibrosis for their successful 2019 Grand Ball on 18 May.

The dedicated volunteer team raised an incredible $197,426 net on the night, what an amazing achievement!
Copyright © 2019 Cystic Fibrosis Western Australia, All rights reserved.


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