Copy
Last chance CF Conference, Kalydeco PBS announcement and much more!
View this email in your browser

Perth CF Conference Next Weekend!


The Australasian CF Conference is coming to Perth next weekend!

Now is your last chance to register for this exciting event and hear about the latest advances in CF with presentations from over 140 speakers from all over the world!

Thanks to generous support from Telethon and Lotterywest, CFWA are able to offer a generous subsidy to help offset the cost of attending the event. To ensure you get the most value out of your package and access the special rate from Crown Hotels, make sure you book your accommodation by 2pm today (26/07/19) using this link.

Event Details
Date: 3 - 6 August
Venue: Crown Towers Perth
Registration: For more information and to register visit our website

OUR SUPPORT

We provide a range of services to individuals and families affected by cystic fibrosis.
Home & Hospital Care
Subsidies & Equipment
Education & Training
Resources

GET INVOLVED

Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
Give Now
Shop
Events
Host a fundraiser
Facebook
Instagram
Twitter
LinkedIn
Website

Kalydeco PBS Announcement

Very exciting news for the CF community this week!

Kalydeco, one of the few drugs that targets the underlying cause of CF, will be made available through the Pharmaceutical Benefits Scheme (PBS) for children aged 12 to 24 months.

Kalydeco is already subsidised for people over 24 months old, but this new funding means that many young people with CF will be able to access this critically important treatment earlier.

Visit our website for more information about this exciting announcement.

Crazy Hair Day for CF

Looking for a fundraising idea? Why not take part in Australia’s craziest fundraiser and host a Crazy Hair Day at your school or workplace!

Style your hair in a whacky way or wear a crazy wig or hat to school or work for a donation to support people living with CF. When you register we’ll send you a free goody kit to help you get started!

To find out more and register visit the Crazy Hair Day website.

CFWA Hospital Care Packs

Are you an inpatient at PCH? Have you received your CFWA Hospital Care Pack?

Our bags are now delivered by one of the lovely ladies from your CF Respiratory team. If would like a visit from the CFWA services team, please let us know. We hope to see you soon.

To organise a visit from CFWA, please get in touch at info@cfwa.org.au or on 08 6457 7333.

Boys Boys Boys!

Cystic Fibrosis WA are excited to announce the arrival of the 3 newest members of our community.

Our Homecare Workers Hayley and Anna, and Personal Trainer Sophie have all had baby boys in the last few months. Aren’t they gorgeous?

Sibs Camp - Save the Date

The CFWA Sibs Camp is back this October school holidays!

Date: 3 - 5 October
Venue: Ern Halliday Recreation Camp

This camp is open to all kids aged 8-16 who have a sibling or parent with CF. A subsidy will be available for children in regional areas to travel to the camp.

More information and registration details will be coming soon, but make sure to save the date!

DonateLife Week


DonateLife Week begins this Sunday 28 July.

DonateLife is encouraging Australians to register to be an organ and tissue donor, and to have a chat about it with their family and friends. While the majority of Australians believe it’s important to be an organ and tissue donor, only a few take the necessary steps to register.

Visit their website for more information.

Garden Fundraising for CF

Do you have a beautiful garden?

You could host a fundraiser for cystic fibrosis by showing off your garden! With the help of Open Gardens West Coast you can open up your garden to visitors and raise funds through entry fees and donation.

To find out more, email Marnie on events@cfwa.org.au or visit the Open Gardens website.

Entertainment Books - Bonus $10 Woolworths Card


Have you ordered your Entertainment Book supporting Cystic Fibrosis WA?

If not, you're in luck! Order your Entertinment Bookbefore 11:59pm Sunday 28 July AEST to receive a free $10 Woolworths WISH eGift Card!

Click here for more information and to order.
Facebook
Instagram
Twitter
LinkedIn
Website
Copyright © 2019 Cystic Fibrosis Western Australia, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list