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New CF Talk video Out Now, Adults Activity Subsidy, Battle of the Bands for CF and much more!
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CF Talk Videos - Episode 1 Out Now!

We are very excited to launch episode 1 of our CF Talk video series!

In this episode, six adults with CF share with us how they navigate disclosing their condition to others at school, work and in their personal relationships.

Click here to watch now and look out on our Facebook and website for the next 5 videos coming soon!

These videos have been made possible thanks to generous support from Lotterywest.

OUR SUPPORT

We provide a range of services to individuals and families affected by cystic fibrosis.
Home & Hospital Care
Subsidies & Equipment
Education & Training
Resources

GET INVOLVED

Your support enables us to provide services and research funding for people living with cystic fibrosis in WA.
Give Now
Shop
Events
Host a fundraiser

Amy's Birthday Celebration for CF

Amy, an adult living with cystic fibrosis, recently celebrated her birthday by raising funds for CFWA. She asked her friends to donate to her fundraising page in lieu of buying her a drink on her birthday.

Amy’s small ask gained momentum and she flew past her goal of $500 to raise a massive $8,155!

If you would like to start your own Celebration for CF fundraiser get in touch with Marnie on events@cfwa.org.au or 08 6457 7333. 

Subsidised Parking at SCGH and PCH

Did you know that you may be eligible for concession parking during Sir Charles Gairdner Hospital (SCGH) and Perth Children's Hospital (PCH) admissions? This scheme is designed to help families of patients who have healthcare requirements that mean they attend hospital frequently.

SCGH Parking
Concession parking is available to adults attending Charlies Clinic. When you are given an admission date or are admitted, contact Sue Morey, Nurse Practitioner on (08) 6457 3333 to organise.

PCH Parking
Concession parking is available to eligible families for long hospital stays. Click here for more information about eligibility and gaining access to this program.

Corporate Battle of the Bands

One week to go until six local bands take the stage at The Charles Hotel in the name of ROCK and two worthy charities, CFWA and Youth Focus. Grain King, one of our very own supporters, will be playing on the night to help raise awareness for CF. 

Date: 16 February 2019
Time: 6pm doors open
Venue: The Charles Hotel, North Perth
Tickets: $35 pp online or at the door 

We are also looking for some extra helpers on the night. If you are available to volunteer and enjoy live music, please contact Marnie on events@cfwa.org.au or 08 6457 7333. 

Cystic Fibrosis Consumer Group Survey

Are you aged 13 years or older and living with cystic fibrosis (CF), or do you provide care for someone living with CF?

The Cystic Fibrosis Consumer Group would like to invite you to participate in a short online survey to work out what matters most to you as a person living with, or providing care for someone with CF.

For more information or to participate, contact the research team at charlie.mcleod@health.wa.gov.au before the closing date, 15 March 2019. 

Camp Hero by Zero2Hero

Zero2Hero are running a leadership camp for adolescents in years 9 to 12 called Camp Hero. The camp aims to equip students with the skills to become mental health leaders and ambassadors in their community.

Date:
23 to 27 April 2019
Venue: Nanga Bush Camp

For more information or to apply visit the Zero2Hero website. If you are applying, our team at CFWA are available to provide CF education for the Zero2Hero Team. 

Australasian Cystic Fibrosis Conference

The Australasian CF Conference is heading to Perth this August! We are excited for this opportunity for our WA members and are able to subsidise the cost of attendance.

Metro Attendants
Funded through CFWA fundraising, this subsidy is open to all parents and carers living in Metro Perth.
1. $150 towards the cost of registration to the CF Conference (current registration fee is $270)
2. $200 towards the cost of registration and attendance at the lay Dinner (current total cost of registration and dinner ticket $335)

To apply for this subsidy, please complete the subsidy application form link here. Please ensure you have copies of your receipts to hand

Regional Attendants
A generous subsidy is available for parents and carers from regional WA, thanks to support from a Telethon grant. This subsidy provides a considerable contribution towards the cost of conference registration, attendance at the Lay Conference Dinner and accommodation.

For more information about these subsidies please contact Paula on services@cfwa.org.au or telephone 08 6457 7333. 

HBF Run for a Reason Registrations

HBF Run for a Reason is celebrating it's 10th year of motivated and generous runners hitting the pavement for over 10 million reasons!

Over the last 5 years Cystic Fibrosis WA has had over 300 community members running for cystic fibrosis who have raised over $128,000 collectively! We would like to add to that number in 2019 and need your help. Make cystic fibrosis your reason to run this May and take on a 4km, 12km or half-marathon.

To find out more information or to sign up to the HBF Run, visit their website here

Personal Training & Gym Subsidy


We are excited to introduce a new subsidy for adults with CF across WA, to help encourage and increase physical activity.

This subsidy of up to $40 per week or $160 per month for a period of 12 weeks is available immediately. We recommend you purchase either a 3-month membership or multi entry pass up to $480.

For more information about this exciting new services for adults with CF, visit our website or contact Kathryn at servicesmanager@cfwa.org.au or on 08 6457 7333.

FREE Sporting Equipment

CFWA have a range of sporting equipment available to support your fitness schedule or to help you with that little bit of extra motivation!

Currently available:

  • Boxing gloves and mitts
  • resistance bands
  • other miscellaneous items

For further information on how to get your FREE sporting/exercise equipment please email Sam physio@cfwa.org.au or contact 6457 7333.

Telethon Mega Bingo Is Back!

July is Telethon Mega Bingo Time! Join thousands of other Telethon supporters at two huge pavillions at the Perth Convention and Exhibition Centre all in the name of Telethon! 

Anyone can play and the best part is, Telethon is a massive supporter of Cystic Fibrosis WA, so you know your involvement will benefit families living with cystic fibrosis as well as hundreds of other WA charities. 

For more information and to get your tickets, head to the Telethon website

Copyright © 2019 Cystic Fibrosis Western Australia, All rights reserved.


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