ENIL, Independent Living News.

Editorial Update

Welcome to the June edition of ENIL,Independent Living News!

In this months edition, we bring you news from ENIL's South Regional Team where a conference on the United Nations Convention on the Rights of Persons with Disabilities took place in Drama, Greece. We introduce you to the latest ENIL Role Model, Daniela Todorova. She is a Bulgarian parathlete and has been a javelin thrower her entire life. She has competed on the biggest sporting platform,at the Olympic Games in Beijing and you can read about her inspirational life story in this months edition. 

Also in this edition, we bring you the most recent updates on ENIL events. The ENIL Face-to-Face Board meeting took place at the Uloba Offices in Drammen. Norway. High up on the agenda was the Freedom Drive, the ENIL General Assembly and the Director's SWOT analysis. Members of the ENIL Board and ENIL staff members also participated in the Uloba Pride Parade which took place in Oslo with the slogan Proud, Strong and Visable! ENIL also conducted a study visit to Belarus for Accessibility Week and ENIL's Board member Kapka Panayotova and the South Regional Coordinator Dilyana Deneva met with members of the Office for the Rights of Persons with Disabilities" (ORPD). 

We are delighted to introduce you to Magnus Andén who is the most recent disability activist that ENIL have inducted into the Hall of Fame. He is from Sweden and you can read about his involvement in the establishment of the Swedish organisation JAG and his vision for the future of Independent Living.

We hope you enjoy and find this month's edition of our Newsletter engaging!


Role Model;Daniela Todorova

Daniela Todorova is a Bulgarian parathlete in her thirties and all of her life she has been a javelin thrower. Seven years ago, while being at a training camp with the other athletes from the national team of Bulgaria, she got a spinal cord injury. Less than a year after this life-threatening event she returned to the sport. She made her return to the sport in spectacular fashion. Her first participation in parathlete sport was on the biggest sporting platform – the Olympic Games (in Beijing)! Not only did Daniela compete in the Olympic Games but she also won the bronze medal there!

Hall of Fame: Magnus Andén

ENIL are delighted to introduce you to Magnus Andén who is latest disability activist to be inducted into the Hall of Fame. Magnus is from Sweden and in this interview he tells us how he became involved in the Independent Living movement and about the setting up of the Swedish organisation JAG. His mother, Founder of JAG, will speak at this year's Strasbourg Freedom Drive and her speech will focus on 'Supporting people with intellectual disabilities to live independently'.

Could you tell me a little about your background 

My name is Magnus Andén. I live in Stockholm in Sweden. I am Chairman of the Board of the JAG Association. The Swedish word “JAG” means “I”.  The letters JAG stand for the Swedish words for Equality, Assistance and Inclusion.

ENIL Study visit to Belarus

Kapka Panayotova and Dilyana Deneva had a short study visit in the capital of Belarus – Minsk, between 20th and 22nd May 2013. They were invited by a local disability organisation (run and controlled by people with disabilities and their non-disabled allies), called “Office for the Rights of Persons with Disabilities” (ORPD). The event they had organised was named ‘Неделя Доступности’ (‘Accessibility Week’). It took place in Minsk from 17th - 21st May in a Gallery in the centre of the city. There was no cost to participate and everybody interested in the issues of people with disabilities was welcome to attend. There was a wide programme of events, including guest speakers’ lectures, public discussions and documentary films.

 The Importance of National Human Rights Institutions for the Rights of Persons with Disabilities

Anna Friedli was one of the students who volunteered and was responsible for the successful organization of the International Human Rights Forum (IHRF) in Lucern in April.  Jamie Bolling, the ENIL Executive Director was invited to lunch by three of the students including Anna to hear about their engagement. The lunch led to an interview with Anna as Jamie found Anna’s upcoming thesis -"The Formation of an NHRI in Switzerland - An Analysis of the Driving Factors" interesting for ENIL.

ENIL's Face-to-Face Board Meeting

The ENIL Face-to-Face Board meeting took place at the Uloba Offices in Drammen, Norway on the 13th and 14th June 2013.  ENIL would like to thank ULOBA for housing the face-to-face board meeting with staff in Drammen, Norway once again this year. Six board members along with a number of staff members and Personal Assistants were in attendance.

Debates and decisions were on the agenda along with the Directors SWOT analysis. High up on this year's agenda was the preparations for the 10th Anniversary of the Freedom Drive. 

 ENIL's intern Cristina Arestin tells us about her time in Sweden

My name is Cristina Arestin and I undertook a six-month work placement at the ENIL office in Härnösand, Sweden. I left Sweden at the end of May and have written this short article about what I learned during my stay.
My placement is took place thanks to the Global Training Program, funded by the Basque Government and the Municipality of San Sebastian.  The purpose of this Program is to give qualified young graduates the opportunity to improve their work experience abroad. I hold a degree in Social Work as well as a master in International Migrations. 

People with disabilities are invisable- Open Letter to El. Stat

With an open letter, ESAmeA (Greek National Confederation of Disabled People) denounces the lack of data and statistical information related to disability and the impact this has in the design of public policies. Moreover, ESAmeA submits its proposals for compliance with the requirements of both modern national and European legislation. The Confederation had concrete proposals on the need to develop specific indicators and surveys focused on disability since the consultation of the draft recommendations of the Greek Statistical Authority (EL.STAT). 

Conference on the UN CRPD in Drama, Greece

On the 18th June 2013, The Paraplegics Association of Drama, together with the Local Youth Council held a conference about the United Nations Convention on the Rights of Persons with Disabilities in Drama, Greece.

According to statistics approximately 10 per cent of the world’s population or 650 million people live with a disability. The World Health Organization (WHO) indicates that this figure is increasing through population growth, medical advances and the aging process.
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