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Canadian Association of Pompe
April 2014 edition of CAP News.
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International Pompe Day - Today!!

The goal of International Pompe Day is to foster international awareness of Pompe Disease and the slogan for our day is "Together We Are Strong". The International Pompe Association encourages everyone to become involved in our inaugural International Pompe Day to show how STRONG our Community is – both in numbers and in passion!

Winners of the International Pompe Day Art Contest

The IPA has announced winners of the first International Pompe Day Art Contest. Congratulations to all the winners (especially Erin :)

Age 0-4
Juan du Plessis (First place)
Townes Craft (Second place)

Age 11-18
Morgan Burroughs (First place)

Age over 18
Karen Kacures (First place)
Rebecca Brooks (Second place)
Erin Gosselin (Third place)

2014 CAP Meeting

We're pleased to be coming to Fredericton, New Brunswick or our annual meeting, June 21-22, 2014.

We are also pleased to announce that Pompe warrior and advocate Monique Griffin, from Florida, USA, will be joining us! Monique is the author of M.E.G.'s Confessional

Contact Brad at brad@pompecanada.com for more info.

Walk for Muscular Dystrophy

We're very excited that we will have the opportunity to attend the Walk for Muscular Dystrophy in Fredericton, NB on June 22, 2014.

It's not all just for fun. Please give generously.

For those that aren't aware, Pompe disease is one of many muscle-related disorders that fall under the umbrella of Muscular Dystrophy Canada.

Pompe Perspectives

One of the many things that Genzyme does to support the patient community. These are some great video clips of real people with real stories. Click to view.

Topics; the diagnostic journey, family testing, coping strategies, and team care.

About Pompe

Pompe Disease is a neuromuscular disorder that causes muscle weakness in persons of any age. It affects everyone differently but, in general, causes progressive muscle weakness, especially of the proximal muscles. This is why the patient's breathing is often affected. Patients that are affected as infants can also have organ involvement. Early diagnosis is critical.

...more info

 

About the Canadian Association of Pompe

The Canadian Association of Pompe was established to help persons in Canada, and elsewhere, become familiar with Pompe disease, and to support persons with Pompe disease.

...www.pompecanada.com

 
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