Meetings & Events

2013 National CAP Meeting

The 2013 National CAP Meeting is being held June 8-9 in Toronto, ON. If you live in Canada and are affected by Pompe, join us!

...more

Infantile Pompe Meeting

The United Pompe Foundation has partnered with the Pompe Team at Duke to hold their first Infantile Pompe Meeting, Aug. 15-17, for ages up to 13 years. For questions about the meeting contact Katie Sheets (919) 681.1984 or Katie.Sheets@duke.edu

...www.dukechildrens.org

MD Walks

Muscular Dystrophy Canada is holding Walks for MD across Canada. Find one near you and raise awareness for MD. Pompe is one if the disorders that is supported by the efforts of MDC.

...www.walkformusculardystrophy.ca

International GSD Conference

The International GSD Conference is geing held Nov. 28-30, in Heidelberg, Germany. This will bring together muscle and liver types of GSDs for scientists and patients.

...conference2013.worldgsd.org

Interviews

Guy Ashford-Smith was interviewed by Cam Wells, CJAM Radio.

...more

Rare Disease in Canada

Orphan Drug Framework

Last fall, Federal Health Minister Aglukkaq announced the launch of the Orphan Drug Framework and Orphanet-Canada. This should ultimately increase access to new treatments.

...more

First gene therapy trial launched for Fabry disease

Exciting work being done in Calgary. “We hope this will one day become a form of treatment that effectively cures Fabry disease,” says Dr. Aneal Khan, a medical geneticist based at Alberta Children’s Hospital, who is leading the Calgary segment of the national project.

...more